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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,303 topics in this forum

  1. samden
    trents

    Blood work- can you help me make sense of this?

    By samden, Last action:
    • 1 reply
    • 728 views
    • trents
    • trents
  2. harry17
    Jackie Garrett

    Is it too late? Celiac/coeliac UK

    By harry17, Last action:
    • 4 replies
    • 2.2k views
    • Jackie Garrett
    • Jackie Garrett
  3. Sarah910
    Russ H

    Elevated Ttg IgG and negative biopsy

    By Sarah910, Last action:
    • 6 replies
    • 3.2k views
    • Russ H
    • Russ H
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  4. Ucat
    Scott Adams

    Do You Have Similar Symptoms? 1 2

    By Ucat, Last action:
    • 26 replies
    • 5.5k views
    • Scott Adams
    • Scott Adams
  5. Brendadom
    knitty kitty

    Need help interpreting my Test Results. Appointment for recheck is not until 2 weeks and very nervous

    By Brendadom, Last action:
    • 2 replies
    • 1.3k views
    • knitty kitty
    • knitty kitty
  6. Liam1047
    trents

    Test Results

    By Liam1047, Last action:
    • 6 replies
    • 3.4k views
    • trents
    • trents
  7. LindzeLindz
    Parent of celiac teen

    Is this what it feels like to get Glutened???

    By LindzeLindz, Last action:
    • 9 replies
    • 3.1k views
    • Parent of celiac teen
    • Parent of celiac teen
  8. Gershon
    trents

    Borderline Celiac Serology

    By Gershon, Last action:
    • 14 replies
    • 4.5k views
    • trents
    • trents
  9. ErinHasQuestions
    Scott Adams

    Diagnostic Testing done on gluten-free Diet

    By ErinHasQuestions, Last action:
    • 6 replies
    • 2.1k views
    • Scott Adams
    • Scott Adams
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  11. LGillette

    Help me understand my Results

    By LGillette, Last action:
    • 6 replies
    • 5.1k views
    • LGillette
    • LGillette
  12. Ginger38

    Confused, Lymph Nodes and Appt

    By Ginger38, Last action:
    • 19 replies
    • 3.4k views
    • Ginger38
    • Ginger38
  13. New2celiac2022
    trents

    So confused by results

    By New2celiac2022, Last action:
    • 10 replies
    • 2.5k views
    • trents
    • trents
  14. Jaimelyn
    C4Celiac

    Test Results

    By Jaimelyn, Last action:
    • 11 replies
    • 3.4k views
    • C4Celiac
    • C4Celiac
  15. KitRivers

    pre testing protocol

    By KitRivers, Last action:
    • 3 replies
    • 1.5k views
    • KitRivers
    • KitRivers
  16. iwant2believe
    RedFacedJock

    Negative test results!!! Unsure where to go from here

    By iwant2believe, Last action:
    • 6 replies
    • 2.7k views
    • RedFacedJock
    • RedFacedJock
  17. spincricket
    trents

    I need a little help deciphering my test results

    By spincricket, Last action:
    • 15 replies
    • 4.6k views
    • trents
    • trents
  18. Ashleigh
    Sunny1971

    Testing Confusion. Diagnosed years ago, latest testing says Celiac Negative!

    By Ashleigh, Last action:
    • 17 replies
    • 3.9k views
    • Sunny1971
    • Sunny1971
  19. Aries213
    Sabaarya

    I think my daughter has celiac

    By Aries213, Last action:
    • 3 replies
    • 1.8k views
    • Sabaarya
    • Sabaarya
  20. Macala
    Wheatwacked

    Questions about results of endoscopy

    By Macala, Last action:
    • 3 replies
    • 3.3k views
    • Wheatwacked
    • Wheatwacked
  21. heidiheidiho
    Scott Adams

    Neg celiac test, close family history, next steps?

    By heidiheidiho, Last action:
    • 2 replies
    • 1.1k views
    • Scott Adams
    • Scott Adams
  22. liz.is.listening
    Wheatwacked

    Joint swelling w Celiac?

    By liz.is.listening, Last action:
    • 3 replies
    • 2k views
    • Wheatwacked
    • Wheatwacked
  23. sae0693
    Wheatwacked

    Fatigue and possibly celiac disease 1 2

    By sae0693, Last action:
    • 26 replies
    • 5.5k views
    • Wheatwacked
    • Wheatwacked
  24. Universal G
    trents

    Getting tested a second time years later

    By Universal G, Last action:
    • 18 replies
    • 3.8k views
    • trents
    • trents
  25. Jessica93
    trents

    I don’t understand my blood results/comments

    By Jessica93, Last action:
    • 10 replies
    • 3.2k views
    • trents
    • trents
  26. Bro90
    knitty kitty

    Symptoms

    By Bro90, Last action:
    • 14 replies
    • 2.8k views
    • knitty kitty
    • knitty kitty

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  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      Domino's and Mountain Mike also has glutenfree pizza.However the issue is the cross contamination. Not worth a few minutes of yum yums i n the taste buds with a painful explosion later.
    2. par18
      - par18 commented on Scott Adams's article in Winter 2026 Issue
      3

      Why Celiac Diagnosis Still Takes Years—and How to Change That

      Withholding the treatment (strict gluten-free diet) until the very end to me is the biggest obstacle to getting more people "identified" with gluten intolerance/Celiac. The strict gluten-free diet in my opinion is both the effective treatment and also a valuable diagnostic tool. My personal advice would be to go on a properly administered gluten-free diet...
    3. Scott Adams
      - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Reverse Osmosis (RO) Water

      I don't recall seeing "many people here recommending RO water," but reverse osmosis (RO) water is water that has been purified by forcing it through a very fine membrane that removes dissolved salts, heavy metals, fluoride, nitrates, PFAS, and many other contaminants. It is one of the most thorough household filtration methods available and can be especially...
    4. Scott Adams
      - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      With the wide availability of frozen prepared gluten-free pizzas, for example DiGiorno's, it's probably best to avoid the risk of eating pizza in restaurants that also make regular pizza.
    5. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Gluten Free Sugar or Starch known to increase gas?

      This article may be helpful:
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  • Posts

    • Jmartes71
      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      By Jmartes71 · Posted

      Domino's and Mountain Mike also has glutenfree pizza.However the issue is the cross contamination. Not worth a few minutes of yum yums i n the taste buds with a painful explosion later.
    • Scott Adams
      Reverse Osmosis (RO) Water

      By Scott Adams · Posted

      I don't recall seeing "many people here recommending RO water," but reverse osmosis (RO) water is water that has been purified by forcing it through a very fine membrane that removes dissolved salts, heavy metals, fluoride, nitrates, PFAS, and many other contaminants. It is one of the most thorough household filtration methods available and can be especially beneficial in areas with well water or known contamination concerns. While RO systems also remove beneficial minerals like calcium and magnesium and may produce slightly “flat”-tasting water, most dietary minerals come from food rather than drinking water, so this is not usually a health concern for most people. Overall, RO water is very clean and safe to drink, and it can be a smart option where water quality is questionable, though it may not be necessary in areas with well-tested municipal water.
    • Scott Adams
      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      By Scott Adams · Posted

      With the wide availability of frozen prepared gluten-free pizzas, for example DiGiorno's, it's probably best to avoid the risk of eating pizza in restaurants that also make regular pizza.
    • Scott Adams
      Gluten Free Sugar or Starch known to increase gas?

      By Scott Adams · Posted

      This article may be helpful:    
    • Scott Adams
      dairy? gluten in chocolates?? calcium?

      By Scott Adams · Posted

      Sorry to year you got glutened. This article, and the comments below it, may be helpful:   and this may help you avoid this next time:  
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