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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,304 topics in this forum

  1. Flyttfag3l
    trents

    Symptoms calming down?

    By Flyttfag3l, Last action:
    • 9 replies
    • 2.6k views
    • trents
    • trents
  2. samden
    trents

    Blood work- can you help me make sense of this?

    By samden, Last action:
    • 1 reply
    • 729 views
    • trents
    • trents
  3. harry17
    Jackie Garrett

    Is it too late? Celiac/coeliac UK

    By harry17, Last action:
    • 4 replies
    • 2.2k views
    • Jackie Garrett
    • Jackie Garrett
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  4. Sarah910
    Russ H

    Elevated Ttg IgG and negative biopsy

    By Sarah910, Last action:
    • 6 replies
    • 3.3k views
    • Russ H
    • Russ H
  5. Ucat
    Scott Adams

    Do You Have Similar Symptoms? 1 2

    By Ucat, Last action:
    • 26 replies
    • 5.5k views
    • Scott Adams
    • Scott Adams
  6. Brendadom
    knitty kitty

    Need help interpreting my Test Results. Appointment for recheck is not until 2 weeks and very nervous

    By Brendadom, Last action:
    • 2 replies
    • 1.3k views
    • knitty kitty
    • knitty kitty
  7. Liam1047
    trents

    Test Results

    By Liam1047, Last action:
    • 6 replies
    • 3.4k views
    • trents
    • trents
  8. LindzeLindz
    Parent of celiac teen

    Is this what it feels like to get Glutened???

    By LindzeLindz, Last action:
    • 9 replies
    • 3.1k views
    • Parent of celiac teen
    • Parent of celiac teen
  9. Gershon
    trents

    Borderline Celiac Serology

    By Gershon, Last action:
    • 14 replies
    • 4.5k views
    • trents
    • trents
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  11. ErinHasQuestions
    Scott Adams

    Diagnostic Testing done on gluten-free Diet

    By ErinHasQuestions, Last action:
    • 6 replies
    • 2.1k views
    • Scott Adams
    • Scott Adams
  12. LGillette

    Help me understand my Results

    By LGillette, Last action:
    • 6 replies
    • 5.2k views
    • LGillette
    • LGillette
  13. Ginger38

    Confused, Lymph Nodes and Appt

    By Ginger38, Last action:
    • 19 replies
    • 3.5k views
    • Ginger38
    • Ginger38
  14. New2celiac2022
    trents

    So confused by results

    By New2celiac2022, Last action:
    • 10 replies
    • 2.5k views
    • trents
    • trents
  15. Jaimelyn
    C4Celiac

    Test Results

    By Jaimelyn, Last action:
    • 11 replies
    • 3.5k views
    • C4Celiac
    • C4Celiac
  16. KitRivers

    pre testing protocol

    By KitRivers, Last action:
    • 3 replies
    • 1.5k views
    • KitRivers
    • KitRivers
  17. iwant2believe
    RedFacedJock

    Negative test results!!! Unsure where to go from here

    By iwant2believe, Last action:
    • 6 replies
    • 2.8k views
    • RedFacedJock
    • RedFacedJock
  18. spincricket
    trents

    I need a little help deciphering my test results

    By spincricket, Last action:
    • 15 replies
    • 4.6k views
    • trents
    • trents
  19. Ashleigh
    Sunny1971

    Testing Confusion. Diagnosed years ago, latest testing says Celiac Negative!

    By Ashleigh, Last action:
    • 17 replies
    • 3.9k views
    • Sunny1971
    • Sunny1971
  20. Aries213
    Sabaarya

    I think my daughter has celiac

    By Aries213, Last action:
    • 3 replies
    • 1.8k views
    • Sabaarya
    • Sabaarya
  21. Macala
    Wheatwacked

    Questions about results of endoscopy

    By Macala, Last action:
    • 3 replies
    • 3.3k views
    • Wheatwacked
    • Wheatwacked
  22. heidiheidiho
    Scott Adams

    Neg celiac test, close family history, next steps?

    By heidiheidiho, Last action:
    • 2 replies
    • 1.1k views
    • Scott Adams
    • Scott Adams
  23. liz.is.listening
    Wheatwacked

    Joint swelling w Celiac?

    By liz.is.listening, Last action:
    • 3 replies
    • 2k views
    • Wheatwacked
    • Wheatwacked
  24. sae0693
    Wheatwacked

    Fatigue and possibly celiac disease 1 2

    By sae0693, Last action:
    • 26 replies
    • 5.6k views
    • Wheatwacked
    • Wheatwacked
  25. Universal G
    trents

    Getting tested a second time years later

    By Universal G, Last action:
    • 18 replies
    • 3.8k views
    • trents
    • trents
  26. Jessica93
    trents

    I don’t understand my blood results/comments

    By Jessica93, Last action:
    • 10 replies
    • 3.2k views
    • trents
    • trents

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  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      323

      Terrible Neurological Symptoms

      Awful terrible burning pains recently. Got suicidal thoughts from this crap yet again. I'm going to try doing low carb again as meat and veg type food has in the past reduced it. This is doing my head in.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your health and keep healthy.
    3. julie falco
      - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

      thank you that is good to know that it is safe for celiac people
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the...
    5. Scott Adams
      - Scott Adams replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

      Are you trying to make us in the USA jealous? 😉
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  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Awful terrible burning pains recently. Got suicidal thoughts from this crap yet again. I'm going to try doing low carb again as meat and veg type food has in the past reduced it. This is doing my head in. 
    • Mari
      Second chance

      By Mari · Posted

      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your   health and keep healthy. 
    • julie falco
      Schar's products contain wheat!

      By julie falco · Posted

      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

      By Scott Adams · Posted

      Are you trying to make us in the USA jealous? 😉
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