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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,301 topics in this forum

  1. Sarah910
    Russ H

    Elevated Ttg IgG and negative biopsy

    By Sarah910, Last action:
    • 6 replies
    • 3.2k views
    • Russ H
    • Russ H
  2. Ucat
    Scott Adams

    Do You Have Similar Symptoms? 1 2

    By Ucat, Last action:
    • 26 replies
    • 5.5k views
    • Scott Adams
    • Scott Adams
  3. Brendadom
    knitty kitty

    Need help interpreting my Test Results. Appointment for recheck is not until 2 weeks and very nervous

    By Brendadom, Last action:
    • 2 replies
    • 1.3k views
    • knitty kitty
    • knitty kitty
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  4. Liam1047
    trents

    Test Results

    By Liam1047, Last action:
    • 6 replies
    • 3.4k views
    • trents
    • trents
  5. LindzeLindz
    Parent of celiac teen

    Is this what it feels like to get Glutened???

    By LindzeLindz, Last action:
    • 9 replies
    • 3.1k views
    • Parent of celiac teen
    • Parent of celiac teen
  6. Gershon
    trents

    Borderline Celiac Serology

    By Gershon, Last action:
    • 14 replies
    • 4.5k views
    • trents
    • trents
  7. ErinHasQuestions
    Scott Adams

    Diagnostic Testing done on gluten-free Diet

    By ErinHasQuestions, Last action:
    • 6 replies
    • 2.1k views
    • Scott Adams
    • Scott Adams
  8. LGillette

    Help me understand my Results

    By LGillette, Last action:
    • 6 replies
    • 5.1k views
    • LGillette
    • LGillette
  9. Ginger38

    Confused, Lymph Nodes and Appt

    By Ginger38, Last action:
    • 19 replies
    • 3.4k views
    • Ginger38
    • Ginger38
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  11. New2celiac2022
    trents

    So confused by results

    By New2celiac2022, Last action:
    • 10 replies
    • 2.5k views
    • trents
    • trents
  12. Jaimelyn
    C4Celiac

    Test Results

    By Jaimelyn, Last action:
    • 11 replies
    • 3.4k views
    • C4Celiac
    • C4Celiac
  13. KitRivers

    pre testing protocol

    By KitRivers, Last action:
    • 3 replies
    • 1.5k views
    • KitRivers
    • KitRivers
  14. iwant2believe
    RedFacedJock

    Negative test results!!! Unsure where to go from here

    By iwant2believe, Last action:
    • 6 replies
    • 2.7k views
    • RedFacedJock
    • RedFacedJock
  15. spincricket
    trents

    I need a little help deciphering my test results

    By spincricket, Last action:
    • 15 replies
    • 4.6k views
    • trents
    • trents
  16. Ashleigh
    Sunny1971

    Testing Confusion. Diagnosed years ago, latest testing says Celiac Negative!

    By Ashleigh, Last action:
    • 17 replies
    • 3.9k views
    • Sunny1971
    • Sunny1971
  17. Aries213
    Sabaarya

    I think my daughter has celiac

    By Aries213, Last action:
    • 3 replies
    • 1.8k views
    • Sabaarya
    • Sabaarya
  18. Macala
    Wheatwacked

    Questions about results of endoscopy

    By Macala, Last action:
    • 3 replies
    • 3.2k views
    • Wheatwacked
    • Wheatwacked
  19. heidiheidiho
    Scott Adams

    Neg celiac test, close family history, next steps?

    By heidiheidiho, Last action:
    • 2 replies
    • 1k views
    • Scott Adams
    • Scott Adams
  20. liz.is.listening
    Wheatwacked

    Joint swelling w Celiac?

    By liz.is.listening, Last action:
    • 3 replies
    • 2k views
    • Wheatwacked
    • Wheatwacked
  21. sae0693
    Wheatwacked

    Fatigue and possibly celiac disease 1 2

    By sae0693, Last action:
    • 26 replies
    • 5.5k views
    • Wheatwacked
    • Wheatwacked
  22. Universal G
    trents

    Getting tested a second time years later

    By Universal G, Last action:
    • 18 replies
    • 3.8k views
    • trents
    • trents
  23. Jessica93
    trents

    I don’t understand my blood results/comments

    By Jessica93, Last action:
    • 10 replies
    • 3.2k views
    • trents
    • trents
  24. Bro90
    knitty kitty

    Symptoms

    By Bro90, Last action:
    • 14 replies
    • 2.8k views
    • knitty kitty
    • knitty kitty
  25. Gemmahughes

    PRE DIAGNOSIS QUERY

    By Gemmahughes, Last action:
    • 2 replies
    • 1.6k views
    • Gemmahughes
    • Gemmahughes
  26. persianp
    trents

    Confused by result

    By persianp, Last action:
    • 7 replies
    • 2.2k views
    • trents
    • trents

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  • Recent Activity

    1. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder...
    2. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
    3. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      THANKS again!!!
    4. trents
      - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    5. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago. The gluten will be my 4th autoimmune disease. Thanks so much for all your input!!!
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  • Posts

    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Why now?

      By heart390 · Posted

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
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