Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,234 topics in this forum

  1. mbg98
    • 2 replies
    • 1.3k views
  2. Lister
    Terrilyn
    • 3 replies
    • 2.2k views
  3. gabyy
    • 3 replies
    • 1.6k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. wonkabar
    Lister
    • 2 replies
    • 1.4k views
  6. GravStars
    slpinsd
    • 7 replies
    • 1.5k views
  7. Becky72
    dawnhulio
    • 14 replies
    • 2.7k views
  8. Patty55
    • 7 replies
    • 1.9k views
  9. GravStars
    • 3 replies
    • 1.6k views
  10. Lister
    • 2 replies
    • 1.2k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. Lister
    mouse
    • 2 replies
    • 1.4k views
  13. Guest mmc
    sarahjo
    • 9 replies
    • 1.8k views
  14. miles2go
    Mia H
    • 1 reply
    • 2.3k views
  15. JenP
    Guest
    • 20 replies
    • 3.2k views
  16. LyndaK
    • 12 replies
    • 2.1k views
  17. sarahjo
    tarnalberry
    • 24 replies
    • 3.4k views
  18. Amie
    • 0 replies
    • 866 views
  19. Mmom
    Nancym
    • 1 reply
    • 1.3k views
  20. Michl
    Guest
    • 3 replies
    • 1.2k views
  21. Mo92109
    lorka150
    • 6 replies
    • 1.7k views
  22. Peridot
    flagbabyds
    • 3 replies
    • 1.3k views
  23. Lister
    flagbabyds

    Upper Gi

    • 2 replies
    • 3k views
  24. kimchi
    Fiddle-Faddle
    • 9 replies
    • 3.9k views
  25. laura3377
    • 0 replies
    • 1.1k views
  26. jm815
    • 4 replies
    • 1.2k views
  27. eleep
    tiffjake
    • 2 replies
    • 1.3k views

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,159
    • Most Online (within 30 mins)
      7,748

    Robyn Newton
    Newest Member
    Robyn Newton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      HypOthyrOidism is HashimOtO's thyrOiditis.  HypeRthyRoidism is GRaves disease.
    • mermaidluver22
      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
    • mermaidluver22
      hi, how are u now? any answers?
×
×
  • Create New...