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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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- chrish42 posted a topic in Doctors0Doctors and Celiac.com
I wonder how many doctors are aware of this site and would or should recommend it to their patients? -
- imdoodah331 commented on Scott Adams's article in Summer 2025 Issue1Gluten-Free in the Apocalypse: How to Build a Celiac-Safe Emergency Food Supply (+Video)
I am so pleased to see this article. I was diagnosed "probable" Celiac, but definitely gluten intolerant just as the last pandemic got started. I had no idea how difficult daily life could be until then. I had to completely unlearn and re-learn safe ways to eat at a time when pretty much everything was scarce, limited, or just disappeared from store shelves...- celiac disease
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- Zuma888 replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Hypothetical question about antibodies
I just got my test results after a less than 2-week gluten challenge consuming about 5 g of gluten per day on average. Anti tTG-IgA: <0.2 AU/ml (<8 is negative) IgA: 180 mg/dl (Reference range is 70-400) I previously had been on a gluten-free diet for around 3 years or so, with occasional cheating and not being strict about cross-contamination... -
- sc'Que? commented on Scott Adams's article in Latest Research1How Deamidation Changes Gliadin and Reduces Its Harm to the Intestine: A Study Summary for Patients and Families Living with Celiac Disease
I LOVE this write-up, @Scott Adams! Lots of science... and you've also disposed of the cut-and-paste intro. Please keep it coming!- celiac disease
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Posts
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I wonder how many doctors are aware of this site and would or should recommend it to their patients?
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I just got my test results after a less than 2-week gluten challenge consuming about 5 g of gluten per day on average. Anti tTG-IgA: <0.2 AU/ml (<8 is negative) IgA: 180 mg/dl (Reference range is 70-400) I previously had been on a gluten-free diet for around 3 years or so, with occasional cheating and not being strict about cross-contamination. I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches). Is this likely to be NCGS rather than celiac disease given the test results and my history? Note: I have one copy of HLA-DQ8.
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How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time.
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By nataliallano · Posted
Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps. -
Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
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