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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,230 topics in this forum

  1. manfrdy
    Wheatwacked
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  2. Julep
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  3. magan baker
    trents
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  5. ButWhatCanIEat
    Scott Adams
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  6. pugqueen5432
    trents
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    GodsGal
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  8. Kwx525
    Scott Adams
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  9. mk123
    Scott Adams
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  10. Yvonne (Vonnie) Mostat, RN
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  12. Skoit
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  13. BrianG
    Scott Adams
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  14. Gluten-Hater
    DebJ14
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  15. Alan12345
    GodsGal
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  16. Rebecca129
    notme
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  17. Jessica P
    cristiana
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  18. mjroda
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  19. Lauraclay
    Flash1970
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  20. livycat
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  21. Annieoh
    Scott Adams
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  22. Christine Wilson
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  23. Holly1917
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  24. Khudaija javed
    Scott Adams
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  25. Sue84
    Scott Adams
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  26. steve-o
    ChefBonny
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  27. hicupingandburping
    trents
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  • Posts

    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
    • trents
      Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes. 
    • Rejoicephd
      Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point).  So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another possible explanation for some of the issues that I'm dealing with.
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