Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You Have Another Autoimmune Disorder...

jenvan

By jenvan
in Related Issues & Disorders

Recommended Posts

jenvan Collaborator
jenvan
Posted

Hey there! I thought this would be an interesting question to ask. I also wonder because since going gluten-free my psoriasis has continually gotten worse. I am definitely gluten-free, and my last blood work came back normal. Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?! I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time. Gracias! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

Does dairy free help with that?

elisabet Contributor
elisabet
Posted
Does dairy free help with that?

<{POST_SNAPBACK}>

for my son It helped both diary free and soy free,but it is so difficult.

Guest Viola
Guest Viola
Posted

Hi, my psoriasis seemed to get worse for the first year or two ... I think because I was so stressed out over the new diet, plus changing houses and other family stuff. But after that it continued to get better until now I only get it when some crises pops up. Also It does tend to show up in small patches in the hot humid days during the summer.

My arthritis improved after diagnosis, but now as I get older it is starting to get worse again.

nikki-uk Enthusiast
nikki-uk
Posted

My husband was dx with Psoriatic Arthritis about 2 yrs before celiac disease.

Psoriatic Arthritis is very similar to rheumatoid arthritis.

Anyhow ,the arthritis was very painful,very aggresive flare ups and he had a general decline in health.

Since going gluten-free a year ago-his psoriasis has disappeared completely-and has only had niggles in his joints(touch wood!)

The arthritis is still there-but no where as debilitating pre gluten-free. :)

redheadheather Explorer
redheadheather
Posted
for my son It helped both diary free and soy free,but it is so difficult.

<{POST_SNAPBACK}>

You're dairy and soy free as well as gluten-free w/your son? MY son was diagnosed w/milk and soy allergies as an infant - but we were told he outgrew them because he has no skin reactions to them anymore. What are your typical meals for your son? How old is he? I'm going to bring up these issues w/my son's doctor when we see them next week (how we know he's *really* outgrown these allergies, etc).

Thanks!

julie5914 Contributor
julie5914
Posted

Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

I wonder if maybe some of your headaches are due to gluten withdrawl .. something like caffine withdrawl causes headaches as well. I can remember getting headaches years ago, but can't remember if it was before or after I started the diet. Now I only get them if I have to skip my morning coffee :rolleyes: Also I find a good many Celiacs have problems with bouts of depression, would that cause headaches? Certainly stress does if we are dealing with family or friends that won't help, or at the very least co-operate with food issues.

Just some thoughts <_<

Rachel--24 Collaborator
Rachel--24
Posted
Apparently YES! I had had some mild thyroid troubles before going gluten free and have been wondering all this time, isn't that supposed to get better, but it is getting worse. Then I wonder if maybe I am noticing it more since my intestines are more happy, but I don't think that's it. Headaches came back worse, fatique is often worse and muscle pain and achiness is worse! What a trade off. I am waiting on a slew of blood test results to see if we can figure out what's going on.

<{POST_SNAPBACK}>

Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

maxcarr Newbie
maxcarr
Posted
Julie,

What kind of thyroid problems did you have? Were you Hypo? Do you take meds?

When I went gluten-free I got headaches and hairloss related to overactive thyroid. It was because more of my meds were being absorbed as I started to heal. I had to decrease the dose.

<{POST_SNAPBACK}>

Hi Rachel, I have hypo too, and was diagnosed with celiac about 18 months ago - but I'm now having my hair fall out quite a bit (again) ...I guess time to get the thyroid levels checked!

judy05 Apprentice
judy05
Posted
Hey there!  I thought this would be an interesting question to ask.  I also wonder because since going gluten-free my psoriasis has continually gotten worse.  I am definitely gluten-free, and my last blood work came back normal.  Perhaps my body is going crazy on my skin since it is no longer attacking my intestines?!  I'm not sure...but wanted to see if anyone else's additional autoimmune disorder or disease had gotten worse since going gluten-free...even if it was only for a period of time.  Gracias!  :)

<{POST_SNAPBACK}>

My auto immune disease got worse, I developed type 2 Diabetes! Before that I had to have half of my thyroid removed because it was destroying itself. I also get bad headaches from allergies but my migraines have lessened. You name it, I've had it. The only thing that helps is the gluten-free diet and exercise. I thank God I am losing weight so maybe the diabetes will get better without having to take medication.They say when one organ goes, they all go. Remember the skin is condidered an organ too.

jenvan Collaborator
jenvan
Posted
  • Author

Judy- interesting thoughts on developing diabetes... makes me wonder--maybe my skin is also worse b/c now i am absorbing more carbs, sugar etc...which is related to one of the theories for psoriasis. hmm...

julie5914 Contributor
julie5914
Posted

No, I wasn't on meds - I should have said I had symptoms like hypo, but the numbers were always normal until lately - now they are going up, and I will likely be on meds soon. Hopefully that will correct itself though. My doc also thinks that a lot of my autoimmune symptoms are linked to adrenal problems (which then later cause thyroid trouble). We shall see when she calls back next week with the results. I suppose it could be some sort of withdrawal - the headaches usually wake me up at night though - I sense they are blood pressure related (I have low bp).

Eliza13 Contributor
Eliza13
Posted

I had pain in my knee and edema, which went away after 3 weeks on the diet. I also had what I believe was DH on my elbows, which went away spontaneously prior to going on the diet.

Skar.

jenvan Collaborator
jenvan
Posted
  • Author

thanks for the responses all...trying to play 'detective' ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.