Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder Issues Related To Gluten Intolerance?


Aviiii

Recommended Posts

Aviiii Newbie

Sudden symptoms that arose last fall...SUPER bloating, like I look pregnant again after eating, and really bad constant heartburn. Tried the tums, otc heartburn stuff, nothing helped. I'm on a heavier prescription for that now, but I have osteoporosis in my family and do not want to take it : (

 

Symptoms I have had most of my life...heartburn once in while, constipation, migraines, diarrhea, fuzzy brain, serious enough anxiety that I have previously been on meds, and it's been really bad again lately, psoriasis (head).

 

I did get the "celiac panel" blood test just last week which came back negative. I do see on here that I may need more tests...but I have to find out what exactly was on that panel. I stopped eating gluten around xmas and did feel better. It was hard though and I eventually went back to it for the last 2.5 months or so thinking that wasn't my issue. I did just start again and am off my heartburn med for now, with no issues. 

 

This month I was finally diagnosed with Biliary Diskenesia, basically my gallbladder empties just barely. My hida scan came back with 6% functionality. I thought all these stomach issues were symptoms of that. The second opinion I went to to talk about surgery, insists they are not related. The first doc thought they were maybe related. So that puts me back to square one with all the stomach issues. My gallbladder doesn't hurt so I'm keeping it for now unless it starts hurting. But if I thought it would help with the stomach issues I would so take that sucker out! Any thoughts from you all? I thought I read something about many people with gluten/celiac issues having gallbladder issues too.

 

I guess I just want an answer...which I'm starting to realize I may never get and I may just have to be zen about that! I'm trying : ) Thanks in advance for any thoughts!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

The pain of a gallbladder is not fun. Mine was 5% when i had the HIDA scan done. I opted for the surgery because it was a constant pain. I could hardly stand to move. Heck, even the recovery from the surgery was no where near as bad (it still hurt) as the pain my gallbladder caused me.

 

I would look into further testing for celiac.

 

What tests did you get?

IrishHeart Veteran

Since gall bladder disease IS associated with celiac and gluten intolerance (and the majority of my family members, including me--no longer have a gall bladder )

 

I would say  YES! it is related.

 

I had mine removed at 25 because I was so very sick .....and that was just the beginning of all my problems

 

I was not diagnosed until 53, but not before I acquired dozens of horrid symptoms you do not want.

 

"Untreated celiac disease can be life threatening. Celiacs are more likely to be afflicted with problems relating to malabsorption, including osteoporosis, tooth enamel defects, central and peripheral nervous system disease, pancreatic disease, internal hemorrhaging, organ disorders (gall bladder, liver, and spleen), and gynecological disorders. Untreated celiac disease has also been linked an increased risk of certain types of cancer, especially intestinal lymphoma."

 

Open Original Shared Link

 

 

 

https://www.celiac.com/articles/119/1/Gall-Bladder-Disease-and-Celiac-Disease---By-Ronald-Hoggan/Page1.html

 

Open Original Shared Link

cyclinglady Grand Master

My GB was functioning at zero percent!!!!!  Had my GB removed in Las Vegas while on a business trip.  It actually started to rot!  Yuck.   Felt great after it was removed after having issues for 30 years (pain so severe at times I would pass out!)  Developed celiac disease just recently (or at least it was diagnosed with only anemia and thyroid symptoms).   My Dad's one of seven siblings and six of them have had a non-functioning GB -- no stones.  I definitely think celiac disease is related.  One of my Dad's sisters had the GB curse and  still had issues after surgery  (thinking back I think she had celiac disease).  She had pancreatitis twice later and ended up dying from it.  I think she might have lived if she had been diagnosed with celiac disease (her sister and niece,  both GB free,  have gluten issues and I'm the first to get a formal diagnosis).

powerofpositivethinking Community Regular

when I was first looking into constipation issues, the gallbladder kept coming up, but I kept reading about horrific pain others would have, and I don't have that.  my older sister had her gallbladder removed in the 7th or 8th grade, which is really young, but I remember her being in intense pain.  I think she has a problem with gluten, but I'm just the younger sister, so what do I know :lol:   I had a liver/gallbladder ultrasound done of mine, and the GI said it looked perfect, but I've never had one of those HIDA scans done.  

 

Thankfully, my constipation has improved since going gluten free, but from what I've determined, I am having some fat malabsorption problems.  Is it possible to have your gallbladder not function properly, but not be in pain?

Aviiii Newbie

Hi everyone. Thank you for the replies! I have to find out what exactly was on the blood test panel.

Shadow...I see the list of tests that one should get and I'm sure it wasn't complete. I will request the list from my doc to see what was on their panel. I have been gluten-free on and off for a few months so I will have to weigh getting back on again for further testing. I feel a little better right now gluten-free for a few days!

Power- I def do not have the gallbladder pain. I have seen people that have...sweating and lookin like they're going to pass out...I get twinges here and there but I eat pretty low fat so I only feel it when I have an avocado or beef which I rarely have. So I'm hesitant to take it out even if it is functioning at 6%. The docors both said I should not worry about leaving it in if I am not in pain.

I just hate to cut out so much if it's not gluten. I'm sure you all understand! This is frustrating.

Aviiii Newbie

Very interesting links IrishHeart. Thank you!

Since gall bladder disease IS associated with celiac and gluten intolerance (and the majority of my family members, including me--no longer have a gall bladder )

I would say YES! it is related.

I had mine removed at 25 because I was so very sick .....and that was just the beginning of all my problems

I was not diagnosed until 53, but not before I acquired dozens of horrid symptoms you do not want.

"Untreated celiac disease can be life threatening. Celiacs are more likely to be afflicted with problems relating to malabsorption, including osteoporosis, tooth enamel defects, central and peripheral nervous system disease, pancreatic disease, internal hemorrhaging, organ disorders (gall bladder, liver, and spleen), and gynecological disorders. Untreated celiac disease has also been linked an increased risk of certain types of cancer, especially intestinal lymphoma."

Open Original Shared Link

https://www.celiac.com/articles/119/1/Gall-Bladder-Disease-and-Celiac-Disease---By-Ronald-Hoggan/Page1.html

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

My GB was functioning at zero percent!!!!!  Had my GB removed in Las Vegas while on a business trip.  It actually started to rot!  Yuck.   Felt great after it was removed after having issues for 30 years (pain so severe at times I would pass out!)  Developed celiac disease just recently (or at least it was diagnosed with only anemia and thyroid symptoms).   My Dad's one of seven siblings and six of them have had a non-functioning GB -- no stones.  I definitely think celiac disease is related.  One of my Dad's sisters had the GB curse and  still had issues after surgery  (thinking back I think she had celiac disease).  She had pancreatitis twice later and ended up dying from it.  I think she might have lived if she had been diagnosed with celiac disease (her sister and niece,  both GB free,  have gluten issues and I'm the first to get a formal diagnosis).

Mine was right there with yours. The assistant surgeon said it looked dead when they took it out. :blink:

cyclinglady Grand Master

when I was first looking into constipation issues, the gallbladder kept coming up, but I kept reading about horrific pain others would have, and I don't have that.  my older sister had her gallbladder removed in the 7th or 8th grade, which is really young, but I remember her being in intense pain.  I think she has a problem with gluten, but I'm just the younger sister, so what do I know :lol:   I had a liver/gallbladder ultrasound done of mine, and the GI said it looked perfect, but I've never had one of those HIDA scans done.  

 

Thankfully, my constipation has improved since going gluten free, but from what I've determined, I am having some fat malabsorption problems.  Is it possible to have your gallbladder not function properly, but not be in pain?

I only got annual gallbladder attacks (I always passed out).  Each ultrasound show a healthy gallbladder without stones.  In retrospect, I think the annual attacks were times that my gallbadder wouldn't empty, would cause severe pain (usually lower abdomen) and then it would start working again.  No visit to the ER ever caught it even though I had a strong family history.  One gastro thought I had abdominal epilepsy, but fortunately, the nero disagreed!  It wasn't until five years ago, that the doc in Las Vegas ordered a HIDA scan after the ER doc admitted me thinking that I had appendicitis (raging infection).  So, don't bank on an ultrasound.  However, if you can keep all your "parts" then do it!  Maybe if I had known about celiac disease, I'd still have my gallbladder.

shadowicewolf Proficient

I only got annual gallbladder attacks (I always passed out).  Each ultrasound show a healthy gallbladder without stones.  In retrospect, I think the annual attacks were times that my gallbadder wouldn't empty, would cause severe pain (usually lower abdomen) and then it would start working again.  No visit to the ER ever caught it even though I had a strong family history.  One gastro thought I had abdominal epilepsy, but fortunately, the nero disagreed!  It wasn't until five years ago, that the doc in Las Vegas ordered a HIDA scan after the ER doc admitted me thinking that I had appendicitis (raging infection).  So, don't bank on an ultrasound.  However, if you can keep all your "parts" then do it!  Maybe if I had known about celiac disease, I'd still have my gallbladder.

Mine showed up fine on the blood tests and the ultra sounds. No gallstones here.

Aviiii Newbie

Mine showed up fine on the blood tests and the ultra sounds. No gallstones here.

I was lucky in that I know a few people that had serious gallbladder issues, and they said to push for the hida scan. The ultrasound found nothing for me either...just some "sludge" but they said it wasn't important. Doc was very surprised when the hida came back so low. It is twingy on and off so I'm sure it will eventually get painful enough to remove...I won't wait once I have one of those attacks! I feel bad you all had to go through so much pain with yours, that's awful.

  • 1 year later...
Chrissie32 Newbie

I know this is an old thread but I'm interested as I have been told I have to have my gall bladder out and I have a bile duct blockage (this was about 6 weeks ago) I had some blood test results back yesterday that confirmed Celiac. I have had severe pains on and off for years and always put it down to trapped wind/indigestion...never realised it could be this! Must say it does worry me that I've had gallstones and Celiac for so long without knowing it.

Questore Rookie

What scares me to death is how much we have going wrong with us, and the Medical Community barely knows what is going on!

 

So much pain and suffering on this board...I keep praying for all of you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,924
    • Most Online (within 30 mins)
      7,748

    Mckshane
    Newest Member
    Mckshane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      I have a lot to learn!  Thank you
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.