Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron Supplement/constipation/vommiting


momma bee

Recommended Posts

momma bee Rookie

My little one is now 19 months old, was diagnosed about 3 months ago now. Her iron levels have been low since before diagnosis but were not treated as weren't "too low". We switched from milk (which we worried was making her worse anyways) to formula to add in some iron but her pulmonologust just started her on iron supplement in addition to the formula with iron. Since she has started it she is now suffering from constipation and get backed up to the point of projectile committing everything she has taken in. Then, she commits and pukes and is good for a day buy the one after that same thing occurs.

Anyone else had this problem with iron? Any ideas of how to better manage it for her? I am trying to give lots more water and juice and increased her veggies but she really is not much if an eater, especially with this tummy trouble :( any other parents with kids on iron with similar problems or advice?

Hate seeing her in so much pain and hate to see the food we work so hard to get her to take in to just come back out!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

My little one is now 19 months old, was diagnosed about 3 months ago now. Her iron levels have been low since before diagnosis but were not treated as weren't "too low". We switched from milk (which we worried was making her worse anyways) to formula to add in some iron but her pulmonologust just started her on iron supplement in addition to the formula with iron. Since she has started it she is now suffering from constipation and get backed up to the point of projectile committing everything she has taken in. Then, she commits and pukes and is good for a day buy the one after that same thing occurs.

Anyone else had this problem with iron? Any ideas of how to better manage it for her? I am trying to give lots more water and juice and increased her veggies but she really is not much if an eater, especially with this tummy trouble :( any other parents with kids on iron with similar problems or advice?

Hate seeing her in so much pain and hate to see the food we work so hard to get her to take in to just come back out!

Yes! please consult with your doctor.  Iron is vey hard to digest, for adults ....much less baby children.!!!  She may have allergies at 3 months, but Celiac is only on issue when gluten is introduced.  At three months, your daughter should still be on formula.  Who diagnosed her?

momma bee Rookie

Sorry, I might have confused it... She is 19 months old. She was diagnosed by a GI surgeon who did a scope Feb 14th while she was having an adenoidectomy and has been gluten free since we got he results early march. She has never had constipation issues, always frequent loose stools. We have yet to see a GI specialist about the celiac diagnosis, we got a phone call back telling us the results. We will apparently get a new GI specialist appointment after she has been gluten free for 6 months but so far not much medical guidance from a physician. She sees a pulmonologist about her other issues and this is who has ordered the iron as she thinks low iron is contributing to her overall health including the pulmonary and sleep issues and she still chokes a lot.

At 19 months she should be more milk and not formula but we cannot get her to take in a lot of food, she is small for her age and we wanted her to get the iron... Not sure that is the right decision but no guidance otherwise :( her pediatrician does not want to deal with anything celiac as he said the gi specialist will :(

I am presuming the iron is causing the problem since time of starting correlated but perhaps it is something else too? Maybe the being gluten free?

stanleymonkey Explorer

If she still chokes and vomits a lot, ask about eosinophilic esophagitis, our 2 yr old is going to be checked for it ask she chokes a lot, even on her own spit

seezee Explorer

This sounds like something to check with the doctor. My daughter is 14 and taking iron for low iron and they asked us to call if any symptoms like you describe. I think there are multiple forms of iron supplement. It could be an issue with sulfur if it's ferrous sulfate for example.

pricklypear1971 Community Regular

All of the above, and I personally have noticed different brands affect me differently. So, it may be as easy as switching brands. Or not...

frieze Community Regular

immediately return to doc.  do not pass go.  she is getting NO benefit from the iron if it, and the food comes back up.  has she seen a speech pathologist to check on the chocking?  and at 19 months she shouldn't need milk or formula, though I could see that this may be the only way to get nutrition into her at this point.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.