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- knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis4Help I’m cross contaminating myself,
I suffer from Dermatitis Herpetiformis, too. Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up. I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins. (Meat and liver are great sources of B vitamins.) Low levels of certain B vitamins ( B1... -
- RMJ replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications1Gluten free nuts
I think Tierra Farms is a gluten free facility, at least that is what it says on the bag of walnuts that I have. -
- Clear2me posted a topic in Gluten-Free Foods, Products, Shopping & Medications1Gluten free nuts
All of a sudden I can't get any gluten-free nuts. There are only 2 nuts available that I can find on the market that are gluten-free. One is Mauna loa brand macadamia nuts, the other is Wonderful pistachios. Other than that all types of nuts that are plain nuts, roasted or raw are no longer gluten-free and are processed and plants that also process wheat... -
- knitty kitty replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10
Taking Probiotics but Still Getting Sick After Gluten – Advice?
@Xravith, How are you doing? Two cookies are not enough. For testing, you need to be eating a minimum of ten grams of gluten for two weeks minimum before testing for Celiac antibodies. Ten grams of gluten is roughly five or six slices of gluten containing bread per day for two weeks minimum. Breads that contain lots of gluten typically...- advice
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@knitty kitty Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better. I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? -
By knitty kitty · Posted
I suffer from Dermatitis Herpetiformis, too. Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up. I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins. (Meat and liver are great sources of B vitamins.) Low levels of certain B vitamins ( B12, Thiamine, Pyridoxine, and Niacin) can affect the nerves, resulting in itching and tingling. Niacin especially helps with the itching and healing the blisters. Tallow Balm helps with the healing, too. Zinc and Vitamin A also help with skin health. I've gotten such good results with Niacin and the other vitamins mentioned that I've never had to go on Dapsone. -
I think Tierra Farms is a gluten free facility, at least that is what it says on the bag of walnuts that I have.
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All of a sudden I can't get any gluten-free nuts. There are only 2 nuts available that I can find on the market that are gluten-free. One is Mauna loa brand macadamia nuts, the other is Wonderful pistachios. Other than that all types of nuts that are plain nuts, roasted or raw are no longer gluten-free and are processed and plants that also process wheat. Has anyone found a source for Pecans, almonds peanuts, walnuts, Pine nuts, etc that is gluten-free?
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By knitty kitty · Posted
@Xravith, How are you doing? Two cookies are not enough. For testing, you need to be eating a minimum of ten grams of gluten for two weeks minimum before testing for Celiac antibodies. Ten grams of gluten is roughly five or six slices of gluten containing bread per day for two weeks minimum. Breads that contain lots of gluten typically have large bubbles formed by gases escaping during baking. Gluten helps form those bubbles of trapped gases, like a balloon. Artisan breads, and thick, chewy pizza crust are good examples. Look at the size of the bubbles in cakes and cookies. Small bubbles, so not lots of gluten in them. You'd have to eat tons of cookies to get ten grams. Antibodies are made in the small intestine. If you eat at least TEN grams of gluten for at least two weeks, then there will be sufficient antibodies to move into the bloodstream, which can be measured in antibody tests. If you eat less than ten grams of gluten daily, you will get celiac symptoms, but not enough antibodies will get into the bloodstream to be measured, resulting in false negatives. Anemia, diabetes, and thiamine deficiency can also affect testing, resulting in false negatives. Since you are having such difficulty consuming sufficient quantities of gluten, you should consider getting a genetic test done. You do not have to eat gluten to have a genetic test done. Celiac is inherited. It's in your genes. Genes don't change whether you eat gluten or not. A genetic test looks for the most common known Celiac genes. If you do not have the genes, your doctor can look for other health conditions that can be causing symptoms. If you do have Celiac genes, you can assume that those genes are actively causing symptoms. An endoscopy to check for the amount of intestinal damage caused by Celiac Disease is usually done. You should also be checked for nutritional deficiencies. Ask for an Erythrocyte Transketolace Activity test, which checks for Thiamine deficiency. Thiamine, Vitamin B 1, is one of the eight essential B vitamins. Thiamine can become low quickly because our bodies use so much of it everyday. If we're not replenishing Thiamine daily from our diet or because of malabsorption, we can become seriously ill. Same with the other seven B vitamins. Doctors are not familiar with nutritional deficiency symptoms as can occur in Celiac disease. Please get checked for nutritional deficiencies. Ask for the Erythrocyte Transketolace Activity test soon. Please let us know how you are doing.
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