Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Parents With Intolerance


w8in4dave

Recommended Posts

w8in4dave Community Regular

Both my parents are passed , I was a change of life baby :) But I was talking to my sister who is in TX. I am in MI. She is a few years older than me. Well when I was telling her all my Celiac problems and my Corn intolerance , she told me that my dad could not eat anything from a can. I never knew that! That makes sense that I am having all these problems!! I knew my mom always made stuff from scratch , I just figured she was a wonderful cook! Now I know, altho she was a bread maker , Dad ate alot of bread. Altho I don't remember my mom eating alot of bread. Ever wish you could go back just to watch it all over again? I think back now thinking my mom probably had Celiac, with her bone problems and Big D problems she always had. But to find out my dad couldn't eat anything canned. I think they both had some problems. And I may have inherited from both sides! I am the only one in my family so far with all these problems, well except my Daughter. But nieces , nephews and stuff not a one. My sisters are all ok. Just me my 1 daughter and her son so far. Guess we are just lucky! Huh  :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I got double DQ2 and Double DQ8 with no known relatives with celiac.  We do have many diabetics.  I think others in the family have celiac, but nobody tests positive.  I am hoping for better testing soon.  I am afraid to have more of my children tested, the ones that have what might be symptoms blood tested negative.  I insist any symptom might be celiac, but they insist it can be something else.  I am currently watching Mom die.  I think she began celiac after back surgery.  If the doctor tested, either it was negative, or nobody is telling me.  They are giving her vitamin B, vitamin d, and magnesium.

w8in4dave Community Regular

I was at my Christmas dinner and of course everyone has to talk about my diet. Or ask me if I want something (Like meat balls) I said no but when they were talking my Niece said her husband thinks he might have a problem. Not related to me at all. But I told him to look up the symptoms and get tested. It can only get worse!! If you have Celiac. 

nvsmom Community Regular

Hugs to you, desperateladysaved. I hope your mom improves.

I wonder about my Dad. He died of pancreatic cancer when he was 42... Young people do not often get that one and I know it is linked to celiac disease. I also remember him having a nap everyday after work. As a kid I thought nothing of it but now that I'm about the same age as he was, I know it's not normal.

My mom has a minor (few symptoms) gluten intolerance. She's changed her diet a lot and has cut gluten from at least 95% of her diet - impressive for a 70 year old lady. :)

As for the genes, I would guess I have the double but don't know. On both sides of the family we have celiac disease, p,us RA on one side and thyroiditis on the other.

w8in4dave Community Regular

Wow nvsmom , you have it from every corner!! You know I just set and think of things and , you know commercials , the ads on bill boards  and signs, all for Mc. Donalds or some other FF restaurants, Or my husband watching all the cooking shows. Everything has either Gluten or corn or something that I cannot eat.The stuff that is added to our food is horrid! I sometimes cannot stand to see juice drinks and stuff for kids anymore! just all the junk food out there. It is amazing! What at least the Americans put into our bodies. 

Juliebove Rising Star

My parents drive me nuts!  They tell me that I was allergic to any and all milk as a baby and yet I was forced to drink milk with almost every meal.  They only stopped making me drink it after a Dr. suggested that it might be causing my acne.  My face didn't clear up.  It did get better.  And my stomach got a bit better.  Prior I had constant tummy trouble and big D that was so chronic that I was on a prescription med for it.  The problem?  Both parents when they think of milk, think of a glass of white liquid.  No matter to them that it was in other foods they were having me eat.  Bread, mac and cheese, ice cream, gravy.  And I know now that it only takes a speck of something to make me ill.

 

My brother?  He was little.  Loved Quisp and Qauke cereal.  Ate them daily.  Had some sort of a reaction but I was 4 or less so I don't remember the specifics.  I only remember the Dr. telling my mom to try him on one cereal for a week then the other and figure out which one wasn't good for him.  She did do that and stopped feeding him one.  But...  One was corn and the other wheat.  Would seem clear to me that one of those things was likely the cuprit.  And now that he is an adult, Hunt's ketchup makes his ears water and he gets big D whenever he eats at a particular restaurant.  I did too but it is a pizza place and I would suspect cheese to be the problem there.

 

And both parents?  Love to live in denial.  Recently my mom said that my dad had an allergic reaction to some kind of seafood.  I can't remember what.  Crab or Lobster.  And he is chronically blowing his nose and also has chronic big D.  I did notice while he was in the hospital and unable to eat while they sorted things out, the nose blowing stopped.  But seriously chronic.  As in can easily go through a huge box of Kleenex and then some in a day.  That used to be me.  Stopped dairy and eggs?  No more Kleenex.

 

My mom has said over the years that she is allergic to this and that and then she will still eat it.  Have a reaction and beg us never to let her have whatever the food is again.  Then if we try to stop her, she goes all witchy on us.  Then she eats whatever it is and wonders why her head hurts or why she is sick to her stomach.  I don't want to hear it!  I know accidents happen.  But these are no accidents.  She is willingly eating the food.  Says she can't help it.  Says she craves these things and can't stop herself.

 

Me?  Anything that I know makes me sick is something I will do my best to avoid.  I won't even eat a food if I can't tell what's in it.

w8in4dave Community Regular

My parents drive me nuts!  They tell me that I was allergic to any and all milk as a baby and yet I was forced to drink milk with almost every meal.  They only stopped making me drink it after a Dr. suggested that it might be causing my acne.  My face didn't clear up.  It did get better.  And my stomach got a bit better.  Prior I had constant tummy trouble and big D that was so chronic that I was on a prescription med for it.  The problem?  Both parents when they think of milk, think of a glass of white liquid.  No matter to them that it was in other foods they were having me eat.  Bread, mac and cheese, ice cream, gravy.  And I know now that it only takes a speck of something to make me ill.

 

My brother?  He was little.  Loved Quisp and Qauke cereal.  Ate them daily.  Had some sort of a reaction but I was 4 or less so I don't remember the specifics.  I only remember the Dr. telling my mom to try him on one cereal for a week then the other and figure out which one wasn't good for him.  She did do that and stopped feeding him one.  But...  One was corn and the other wheat.  Would seem clear to me that one of those things was likely the cuprit.  And now that he is an adult, Hunt's ketchup makes his ears water and he gets big D whenever he eats at a particular restaurant.  I did too but it is a pizza place and I would suspect cheese to be the problem there.

 

And both parents?  Love to live in denial.  Recently my mom said that my dad had an allergic reaction to some kind of seafood.  I can't remember what.  Crab or Lobster.  And he is chronically blowing his nose and also has chronic big D.  I did notice while he was in the hospital and unable to eat while they sorted things out, the nose blowing stopped.  But seriously chronic.  As in can easily go through a huge box of Kleenex and then some in a day.  That used to be me.  Stopped dairy and eggs?  No more Kleenex.

 

My mom has said over the years that she is allergic to this and that and then she will still eat it.  Have a reaction and beg us never to let her have whatever the food is again.  Then if we try to stop her, she goes all witchy on us.  Then she eats whatever it is and wonders why her head hurts or why she is sick to her stomach.  I don't want to hear it!  I know accidents happen.  But these are no accidents.  She is willingly eating the food.  Says she can't help it.  Says she craves these things and can't stop herself.

 

Me?  Anything that I know makes me sick is something I will do my best to avoid.  I won't even eat a food if I can't tell what's in it.

That does sound crazy!! Jeeze!! Yea I never heard a complaint! At all from my parents nor do I remember having problems as a child or teen, I think it just happend to me a few years ago. But I just think I was too young to know what my parents problems were. My sister knows some but you know! No canned goods? Pffttt it's almost no info to me. But I do wonder!! HFCS? Was it in stuff back then? 30/40 years ago?? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.