Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting To Realize Hurt Feelings Aren't As Important As Personal Health


Nicole Thomas

Recommended Posts

Nicole Thomas Newbie

I know folks say it a lot on this board, but I feel it has to be said once again. I have a very big meat and potatoes kind of family. They do most things homemade and if you don't eat, feelings are generally hurt.

 

I was really nervous about yesterday, but I hadn't been to a family function since I went gluten free close to 6 months ago, so I decided to go anyway. I did eat before I left, but upon my arrival, my aunt (the hostess) was slightly annoyed when I said I couldn't eat most of what she made.

 

She assured me the ham was gluten free, and it was the only thing I touched (I maybe ate 3-4 bites before handing the rest off to hubby).

 

Later, she brought out her first ever homemade carrot cake, and once again I was asked if I'd like some. When I said no thank you, she got pissy about it and gave me a look that basicaly said 'it won't kill you.'

 

The rest of the family had cake while I sat playing with the dog. Family members made a point of telling me how wonderful it was and, once more, someone asked 'you can't have one bite?'

 

At this point I was frustrated and sorely disappointed. I looked at them and said no, I can't just have one bite. You know that peanut allergy this uncle has or this allergry you have? You get really sick from a little bit, right? Well, so do I.

 

That got them to shut up until I was getting ready to leave. Folks were commenting on how nice dinner was and I agreed. My aunt got moody again and said I couldn't say if the dinner was nice or not since I hadn't eaten much of anything.

 

I guess she was right, because the company wasn't very good either.

 

In any case, by the time I got home, I wasn't feeling well. This morning, I feel even worse and am certain I got glutened somehow.

 

I asked in advance if I could bring something, but she said no. This is the aunt I expect to understand me the most. I'm not sure if it was ignorance yesterday or what, but I now know family functions aren't for me. I'll go to barbecues and something that's outside, but I won't go in a house that has gluten. It's too big of a risk.

 

So, while I may end up hurting feelings, I can't afford to risk my health. Not anymore.

 

Your health is more important than keeping others happy. If they can't understand that this isn't some fad, then it's on them. You're the one who will be sick that night, the next day or even days after. Don't risk your health.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I will say that, if you have a basically nice family, it can get better.  We do hear about families where, if its not Celiac, they would find something else to complain about.  That situation won't get better.

 

For my family, I usually have all events at my house.  My sister might make a gluteny dessert. I like that because that is one less thing I have to make.   We get out dessert after all the other food is put away.  She has started bringing other things after discussing it with me.  But, anyway.... back to what I was trying to say.... It took a while, but people started getting it.  I just had to reinforce the gluten-free thing and show by example. I had to still show up and expose them to it. After time,  it just becomes normal.  With my hubs side, I either bring my food or eat ahead.  And always bring a snack.  We stayed too long and everyone started eating again....except me because I didn't bring anything.

w8in4dave Community Regular

Wow !! So sorry to hear you had a rough time. I don't ask if I can bring anything I just do it. I eat only what I bring. This is what I don't understand. People find out they have Celiac or are intolerant, They clean their cupboards , get new pots and pans. Get a gluten-free kitchen so they don't have to worry about stuff. Then they go eat at someones house and they get glutened. Even if the ham was gluten-free she has no idea how to "NOT" contaminate it. the pan it was cooked in the utensils she was using. who knows maby the seasonings? I bring my own dish to pass give myself a huge serving 1st then let everyone eles contaminate and I don't eat anymore of it. I do not eat from anyone eles dishes even if they swear they are gluten-free and in my case Corn free also. I will not take the chance. I make enuf mistakes myself I cannot trust anyone who is not Celiac to just whip something up and say here ya go it's Gluten Free. In time your family will start to understand. It is a huge health risk for you. I am so glad my family understands. They don't even try and feed me anymore. I just bring my own. My friends are the same way. They ask me what I can and cannot eat. I say "You don't worry about me! I will bring my own" . 

djl Newbie

Sorry you had a bad experience. I was diagnosed two months ago and at first it seemed to get a few family members very angry. Yesterday was our first holiday and in addition to the gluten free meal my brother's family cooked for me there was a variety of gluten and dairy free desserts available.

I found fighting with facts and information is better than getting loud (my family usually takes this road). But you're correct, if they don't get it that's their problem. When you start to feel better the thought of eating gluten again can be terrifying. Stick to your guns and eventually they'll get it.

Nicole Thomas Newbie

That's what I'm starting to think as well. I have a feeling it may have been the knife they used to cut the ham, or the cutting board or any number of small things. I want to be with family because we're close. And Karen was also right. My family is the type that will complain on one thing or another, i just happened to be the focus yesterday. I've found some amazing gluten free meals/snacks I could take along, so I'll be sure to do that in the future. That said, I am curious. Those of you who take your own dish, do you keep away from items that need to be heated? Or, do you risk using the microwave?

notme Experienced

we do the church dinner quite a bit, so i will make something that is gluten free, take some out and bring it in a separate container.  i never eat what's on the 'buffet' EVEN IF I BRING IT AND IT STARTS OUT GLUTEN FREE.  (true story:  i used to play a game with myself.  the Can't Eat THAT Game.  watch how fast things get contaminated.  crouton drops into the big bowl of green salad.  whelp.  can't eat THAT :(  somebody sticks the pasta spoon into the chili.  whelp.  can't eat THAT...)  it's over pretty quick, lolz, just bring your own so you don't starve to death or have to be sick for days on end.  and, if you happen to bring some of your dish home that is leftover, don't be tempted to eat it  :)  no, no, no!  :)

 

it does get easier  :)  it's a hard concept for people to understand, but eventually they ..........well........ actually, no, they still offer me up their food, but it is quickly followed with a "you're not gonna eat this,, are you."  NOPE!  smile big :D  move along ;)

GottaSki Mentor

I agree with -- it may get better with time.  Our extended family and friends took a bit of educating to the fact that "just a little gluten" was indeed slowly killing me. 

 

I think the last time I had someone treat me the way you were treated yesterday was at about a year and half gluten-free -- not counting new acquaintances -- I don't give a flying fig what new folks think...in fact people's reaction to my need to be completely gluten-free is often a good barometer for choosing new friends ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CaliSparrow Collaborator

I'm sorry some of your family members were inconsiderate yesterday. Back before I understood how vigilant I had to be, I sent an email to Original Pancake House to find out more about their "gluten-friendly" pancakes (I know, I know). They sent me the most impressive response. They explained all the reasons why they did NOT want me walking in their door. They went in-depth into how long flour hangs in the air and how they don't dedicate towels or utensils, etc. They went into detail on the many ways I could be cross-contaminated by their restaurant. They underlined and bold certain sentences for extra emphasis. I showed it to my mother-in-law. She asked if I would print it out for her and I did.

Before reading your post, I thought my husband's family broke the mold on the emotional intelligence scale but now I'm thinking my MIL passed around the memo! Before that she was frustrated when I couldn't eat her food. She derives pleasure from feeding her family.

Family can be complicated and sometimes it takes longer but eventually, the change (you) becomes normalized and people adjust. If someone doesn't adjust, they have a problem and it's not yours to solve! It took one or two of these situations for my health to weigh more than not hurting someone's feelings.

Experiencing another's reaction does serve as a nice built-in barometer for potential friendships!

I hope you feel better soon.

Monklady123 Collaborator

This was, and still is to some extent, something I wondered about. I guess I don't come from a family that's tied up in food issues, because I can't imagine any one of them getting angry or hurt if I didn't eat something they'd prepared. I'm sorry for those of you who do have family (or friends) like this. :(

Nicole Thomas Newbie

Thank you all so much. I'm still not feeling quite right today, but not as bad as yesterday. I hate how easily we can get sick as it really wears you down. Fortunately, it looks like this gluten reaction will only last 2-3 days before I'm back to where I was on Saturday.

GottaSki Mentor

Glad you are feeling better :)

kareng Grand Master

That's what I'm starting to think as well. I have a feeling it may have been the knife they used to cut the ham, or the cutting board or any number of small things. I want to be with family because we're close. And Karen was also right. My family is the type that will complain on one thing or another, i just happened to be the focus yesterday. I've found some amazing gluten free meals/snacks I could take along, so I'll be sure to do that in the future. That said, I am curious. Those of you who take your own dish, do you keep away from items that need to be heated? Or, do you risk using the microwave?

 

 

I will use the microwave or the oven.  I even try to bring food that is similar if possible.  Unless the microwave is really dirty, with food falling off the "ceiling" it shouldn't be a problem.  

NoGlutenCooties Contributor

I don't ask.  I do let them know that I will be bringing my own food - seems only polite to let them know they don't have to count on another person to feed.  And I bring my own.  If they don't like it, that's just tough nuggies for them.  If they argue, I make it clear - I either bring my own food or I don't go.  Period.

 

Also... are you sure the ham was gluten free?  I know some deli meat has filler crap in it that can have gluten - I have no idea about a whole ham, as I never eat them.  Anyone know if a ham can have gluteny fillers infused in it?

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,111
    • Most Online (within 30 mins)
      7,748

    Donna J G
    Newest Member
    Donna J G
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.