Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calming Intestines?


BeckyW

Recommended Posts

BeckyW Contributor

I have Celiac disease and 2 other auto immune diseases.  I never eat gluten but my intestines still have absorption issues.  I have trouble sometimes where my body absorbs meds too much and other times it doesn't absorb enough.  Making my TSH level and calcium levels fluctuate.  Does anyone else have issues with this?

 

Also, has anyone found anything to take to keep the intestines "calm".  Something to keep it healthy feeling and not feeling like you always have a stomach ache?

 

Thank you for any help you can provide.  This is a constant battle.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Waitingindreams Enthusiast

Do you possibly have issues with other foods? I was avoiding gluten and lactose, but every now and then I would still get stomach cramps, bloating, gas, diarrhea, etc. It didn't make sense! I started doing elimination diets and found I had an issue with yeast, and all legumes (soy, lentils, chickpeas - etc) maybe you are eating something else that is causing you these issues?

BeckyW Contributor

I do have alot of other food issues. Soy is the biggest offender and then dairy.  I just can't always avoid them all but try my best to.  Sure isn't easy, is it?

Waitingindreams Enthusiast

Avoiding soy is definitely tricky. I'm lactose intolerant, so although I knew I'd miss dairy, it was time I gave it a rest. I eat lactose free dairy sometimes and I have no issues. (At least none that I can tell)  if soy is an offender, you might possibly be sensitive to other legumes as well..such as peanuts. Do you eat a lot of peanut butter,or hummus? What are you eating that contains soy? Soybean oil is in a lot of canned soups, and I found out there was soy lecithin in my minute brown/wild rice. Ugh! I ate that all the time! I switched to buying steamfresh frozen brown rice, the only ingredients are rice and water. I've been avoiding all canned soup - I can't find any that are gluten, yeast, dairy AND soy free. UGH!

cyclinglady Grand Master

I have Hashimoto's Thyroiditis (dx 20 years). It really went crazy the two years prior to menopause and my celiac disease diagnosis. I would swing from hypo to hyper within days. Trying to figure out my Armour thyroid replacement was probably driving my doctor crazy. I worried more when I hit the hyper stage as it affected my eyes and my mom (Graves) has permanent damage from all the years she ran hyper. It did not help my osteopenia either!

I think the gluten-free diet, going through menopause with the help of HRT and avoiding foods that triggered symptoms helped calm down my system. I take my Armour sublingually even though it probably does not absorb (can not find enough studies to support) but at least it is well dissolved and can be absorbed easier.

My dosage, though high, is stable for the past six months, but going gluten-free has not improved my thyroid. Antibodies have come down and I am no longer swinging, so I can not complain.

1desperateladysaved Proficient

When I have cramping, a warm water bottle on my belly can help sooth it.  I also use helichrysum essential oil a couple of drops rubbed in over the area.

 

Dee

BeckyW Contributor

I do use a warm rice bag on my tummy when it is upset. I wish I could find something to just soothe it quickly rid of discomfort.  What is the helichrysum essential oil?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

It is used in natural medicine.  It is an oil derived from a helichrysum plant.  My essential oil book says that a couple of drops  can be rubbed on the skin above the cramps to help ease them.  I use this with a hot water bottle.  I purchase these at local health food stores and even my local grocery store sells some common oils.

 

Dee

CathyO Rookie

I started drinking Aloe Vera about 2 months ago.  It has made a huge difference for me.  We went on a camping trip and I forgot to take any with me, and I sure could tell the difference after 2 days without.

 

This is what I drink: 

 

http://images.iherb.com/l/GAV-10064-1.webp

BeckyW Contributor

Thank you for the suggestions on the oils.  I will make a trip to the health food store this week and see what is available.

GF Lover Rising Star

I started drinking Aloe Vera about 2 months ago.  It has made a huge difference for me.  We went on a camping trip and I forgot to take any with me, and I sure could tell the difference after 2 days without.

 

This is what I drink: 

 

http://images.iherb.com/l/GAV-10064-1.webp

 

Hi Cathy,.

 

I remember watching a TV show, I think it was Anthony Bourdain or that other guy.  Anyway, I can't remember what city it was (Aisa) and the populus swore that by drinking Aloe Vera everyday it would manage all types of ailments.  This stuff was fresh and very thick and it tasted awful.  Otherwise I don't know anything else about it.  

 

I hope it continues to help you even tho I don't know how you can get it down...lol

 

Colleen

CathyO Rookie

Hi Cathy,.

 

I remember watching a TV show, I think it was Anthony Bourdain or that other guy.  Anyway, I can't remember what city it was (Aisa) and the populus swore that by drinking Aloe Vera everyday it would manage all types of ailments.  This stuff was fresh and very thick and it tasted awful.  Otherwise I don't know anything else about it.  

 

I hope it continues to help you even tho I don't know how you can get it down...lol

 

Colleen

What I use is like drinking water. Clear, odorless, colorless and tasteless.

I wouldn't be able to drink the other stuff.

GF Lover Rising Star

What I use is like drinking water. Clear, odorless, colorless and tasteless.

I wouldn't be able to drink the other stuff.

 

Ah....cool.  Much more palatable.  The fresh stuff was like goo....and stringy.  

 

Colleen

cyclinglady Grand Master

I was looking at my previous posting today and thought I must addressed a different topic! But I did not. Though it is clear now that I was rambling!

Becky, is your doc trying to address your fluctuating TSH levels? Going into a hyper stage can wreak having on your intestinal system by speeding thing up. Going hypo can slow things.

BeckyW Contributor

Cyclinglady - I have an appt with a new Endocrinologist on June 9th.  For now my family doctor is treating my thyroid.  No one really knows how to treat it. When it is hyper they lower the synthryoid, when it is hypo they raise it.  I can't seem to find a dose that maintains.  My body is like swinging all over the place.  I am moody, shedding hair, weight loss then gain, and the symptoms just go on and on.  I just don't know how to regulate it and neither do the doctors.  It is really making life difficult.

cyclinglady Grand Master

Becky, I can relate. I had been having swings the two years prior to my celiac disease dx and almost a year after. It was crazy. I really worried about the hyper times as my mom has Graves and has permanent eye damage. Luckily, I have not changed my thyroid dosage in months! Yeah!

I think it was really related to hormonal changes. I blame it on perimenopause. Now that I am on the other side (menopause), and maintaining a gluten-free diet, I think my thyroid has been able to calm down. It helps that my body is probably absorbing my Armour Thyroid now. Just a few years ago, it was formulated so that you could take it sublingually if you wanted. Now, I keep it under tongue after chewing it and then swallowing it with water. I have no evidence that this works, but it makes my brain happy and that is always your first line in defense when healing!

I have no solutions for you. Sorry! Good luck on your doctor's appt.!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748

    PatientOne
    Newest Member
    PatientOne
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.