Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiac Disease?

mjcoelnc

Recommended Posts

mjcoelnc Rookie
mjcoelnc
Posted

Hi, I have't been tested yet but my older and younger brothers both have Celiacs Disease.

 

Normally I eat alot of skinless chicken and Tilaptia fish. Well about a month ago I had Digournos 5 cheese pizza and had 3 slices. 2 hours after eating it I started to feel sick to my stomach. Then the gurgling started. I went to the bathroom and I started with fire hose diarrhea. Then I started vomiting. This all lasted for 3 hours. Next day I was fine cause I ate fish again. 2 weeks ago i had elbow noodles with sauce and the same thing happened. Well last night I had white rice and a box of sweet and our chicken that I have had severl times over the last 3 years. I was sick again. Only this time the vomiting was worse and i had chills and a slight fever of 99.9 afterward. I was fine by morning. I have constipation a lot and after i go I have cramping.

 

I also have Fibromyalgia, Ostopeenia in back and Oteoporosis in hips, Hashimoto/hypothyroidism, high blood pressure,joint pain, eye floaters and cateracts in both eyes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

How often are you getting the blood tests for Celiac? If you have a " first- degree" relative, you should be tested every few years. And if you aren't following that recommendation - you would want to get tested when you have some symptoms .

You have symptoms & related conditions, so I would say you need to get tested.

mjcoelnc Rookie
mjcoelnc
Posted
  • Author

I haven't been tested yet. I have a doctor appointment July 31 so I am going to bring this up.

kareng Grand Master
kareng
Posted

Open Original Shared Link

Open Original Shared Link

You need to continue to eat gluten to help you get accurate tests.

mjcoelnc Rookie
mjcoelnc
Posted
  • Author

Even if it makes me vomit  horribly and have horrible fire hoe diarrhea and made me lose 10 pound in  month?

kareng Grand Master
kareng
Posted

Open Original Shared Link

"A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.

Prior to blood testing we recommend 12 weeks of eating gluten.

Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.

In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy."

And some info for your doc

Open Original Shared Link

mjcoelnc Rookie
mjcoelnc
Posted
  • Author

So today I had a cup of tea and a half slice of bread.. Now 2 hours later,I have a headache, i feel like throwing up but haven't thrown up yet. I have been having lots of gas, burping and passing gas. I feel totally wiped out. I noticed a have a sore in the bck of my mouth today.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Even if it makes me vomit  horribly and have horrible fire hoe diarrhea and made me lose 10 pound in  month?

Not everyone can make it through the gluten challenge.  Worn your doctor that it could be an impossibility for you, and perhaps he can get you in soon for a biopsy (requires only 2-4 weeks of 1-2 slices of bread per day or equivalent).  He might advise against all testing if it is that bad.

 

You can TRY to test on what you are eating now much chances are that it would be negative. Some people have higher levels of auto-antibodies that don't correlate to gluten consumption. After a long time gluten-free, most celiacs will have negative tests though.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,073
    • Most Online (within 30 mins)
      7,748
    ImVenus
    Newest Member
    ImVenus
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.