Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How I've Grown

BlessedMommy

By BlessedMommy
in Coping with Celiac Disease

Recommended Posts

BlessedMommy Rising Star
BlessedMommy
Posted

Thanks to all of your support, I feel like I've made such strides and improvement! Thank you for the support and information.

 

In the past 7 months, I've corrected my CC mistakes in my kitchen, had symptoms resolve that I thought for sure I was stuck with for life, successfully started my kids on a gluten challenge (since July), and learned to advocate for myself. I've learned that it's perfectly okay to refuse all forms of gluten even if you don't have a note from your doctor.  :P

 

I now have a much easier time saying, "No thank you," to the CC'ed bag of gluten free pretzels or chips or in politely telling someone that I will bring my own food. I've learned that it really doesn't matter what anyone else thinks of my diet because they only see me in public, they don't see what health issues I might have to deal with.

 

So thank you, thank you, thank you! I feel like my life is so much better for the support I've received here and I will continue to hang around and support other people so that they can get the same benefits.  :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

I am glad to hear you are recovering and happy to hear the good report!

 

Dee

CajunChic Explorer
CajunChic
Posted

My thoughts exactly, Ruth!! It's been, and still is, a learning first year for me. Year 2 has got to be better!

BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

I actually went gluten free in 2010, but I made a lot of newbie mistakes, due to lack of information and support. That's why I'm so happy to have this forum now, they've taught me how to be strict in my diet and given me the courage to advocate for myself. :)

icelandgirl Proficient
icelandgirl
Posted

That's so great Ruth and so encouraging to hear! Thank you for sharing.

IrishHeart Veteran
IrishHeart
Posted

For a second there, Ruth, I thought you were going to tell us that you had gained a few inches! That you were taller (or wider)  ^_^

Just teasing you!

 

I am very happy for you. Give yourself some major props. You worked hard to sort all this out.

Yes, you got some assistance.....and now, you are helping others--- to pay it forward.

 

It's all good.  :) Cheers, hon !

mamaw Community Regular
mamaw
Posted

Thanks  for  sharing  because  this  will help  newbies  truly understand  that  when  us well seasoned celiac people say  it will get  better   it  actually  does with a lot  of  training  &  learning  on the newbie's  end....

Glad  you  found  the  path to a  healthy happy  future.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

For a second there, Ruth, I thought you were going to tell us that you had gained a few inches! That you were taller (or wider)  ^_^

Just teasing you!

 

I am very happy for you. Give yourself some major props. You worked hard to sort all this out.

Yes, you got some assistance.....and now, you are helping others--- to pay it forward.

 

It's all good.  :) Cheers, hon !

 

LOL!! :)

GottaSki Mentor
GottaSki
Posted

LOL!! :)

I read it that way too!

Glad to hear your strength throughout your post.

It only gets better from here...and paying it forward is what makes this forum so special :)

BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

That would be really something if going gluten free caused adults to all of sudden start growing again! :)

GottaSki Mentor
GottaSki
Posted

That would be really something if going gluten free caused adults to all of sudden start growing again! :)

My son stalled growth just prior to gluten removal at 15....he got another inch just before he turned 20 for which he was grateful seeing how his little brother grew to 6'3 ;)

icelandgirl Proficient
icelandgirl
Posted

Hey Ruth...would you share the cc mistakes you were making in your kitchen? My kitchen is not 100% gluten free and I'd love to know ow what you did. Thanks!

BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

The mistakes that I made were mainly things like using scratched non-stick pans for regular food and then cleaning them and using them on gluten free food. Same with cast iron. I also didn't really know much about wooden spoons and I don't know that my wooden spoons were necessarily dedicated to gluten free food.

 

I already knew stuff like not double dipping condiments and the like.

 

After I learned what I was supposed to be doing, I did a kitchen purge and ran my cast iron pan through the self clean cycle of the oven to clean it and reseasoned it. I kicked the non stick pans out of my kitchen (or designated them for gluten food only) and bought new versions for my gluten free food, including replacing an old scratched up non-stick pot with a new stainless steel one. I bought a bunch of new dedicated gluten free utensils and a bunch of other new dedicated gluten-free stuff.

 

After really cracking down and getting strict on CC, I eventually let gluten back into my house so that my kids could do a gluten challenge. I started getting sick with headaches and some speech issues. I've removed the gluten from my house (other than one bag of pretzels that the kids can eat outside on the lawn) and now I'm not sick anymore. I don't think that it's a coincidence. I think that when my kids are done trialing gluten, I will remove all gluten from the house and whoever can still eat gluten can eat it at restaurants or friend's houses.

icelandgirl Proficient
icelandgirl
Posted

Good tips Ruth...thanks for sharing!

Gemini Experienced
Gemini
Posted

That would be really something if going gluten free caused adults to all of sudden start growing again! :)

That would make me very happy, says the 5'4" woman who would love to be at least half a foot taller! ;)

 

Congratulations, Ruth......you get the gold star on your forehead for learning the ropes correctly!  :)

LauraTX Rising Star
LauraTX
Posted

I have been noticing how you have had some personal growth in the gluten hating area... especially how you have been handling out of the house scenarios.  Thanks for helping newbies!

BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

No prob...have to spread the love around! :)

 

I used to be the one who would eat things that other people had made as long as they hadn't used any gluten ingredients and hadn't done any obvious CC like using CC'ed peanut butter in it or something. This board has taught me that that's very risky business at best and it's best to just give people a polite, "Thank you, but I prefer to bring my own food."

 

I don't think that I would've developed that confidence without the support of the board. :)

NoWhammies Newbie
NoWhammies
Posted

 

I used to be the one who would eat things that other people had made as long as they hadn't used any gluten ingredients and hadn't done any obvious CC like using CC'ed peanut butter in it or something. This board has taught me that that's very risky business at best and it's best to just give people a polite, "Thank you, but I prefer to bring my own food."

 

I am not so good at this. I get such pressure and derision from others (particularly my mother and sisters) when I tell them I want to bring my own food. With others who aren't family, it's far easier, but my family dynamic makes this very difficult with all the eye rolling that goes on. Oh well - this year at the holidays I am going to stick to my guns, because I feel so much better that I don't want to go backwards.

BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

Here's a great thread that I read whenever I need a pep talk on the subject:

 

https://www.celiac.com/forums/topic/98359-always-bring-your-own-food/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748
    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.