Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Eat gluten-free Oatmeal?


StClair

Recommended Posts

StClair Apprentice

I would love to try out oatmeal, but I am nervous because I've been told that even the gluten-free kind can cause problems for celiacs. My diet is severely restricted due to problems with acid reflux/gastritis, and fructose/lactose intolerances, and I need to find more gentle, nourishing food. I would eat it, even with a few "side-effects," as long as I was certain that it would NOT cause intestinal damage.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If you have negative effects from consuming anything you shouldn't eat it. It is not just intestinal upset we need to worry about as celiac is an autoimmune disease. 

You could try it when you have fully healed but if you have any negative reaction drop it. When someone does try adding in any new food my doctor advised eating it at least once a day for up to a week as the antibody reaction can be delayed. 

Hope you are one of us that can add it back in. I miss oatmeal but found that Cream of Buckwheat is a good sub for me. 

Gemini Experienced

I love oatmeal and never had any problems from certified gluten-free oats.  I was extremely sick at diagnosis also, yet trialed oatmeal within months of starting the gluten-free diet.  Tolerated it extremely well so go figure, huh?  ;)

 

I think it is a very independent thing and people react very differently depending on a number of things.  I do not believe that everyone needs to wait a year to try them, either.  That is just the medical profession instilling fear where it doesn't need to be.  One should never be nervous when adding back foods into their diet. I am not really sure if oatmeal would aggravate acid reflux but if you do well with other high fiber foods, it might be OK for you to try.  You will not know if you are one of a very few who cannot tolerate gluten-free oats until you actually try them.  But it will not set you back to square one if you do have a reaction.

 

I wish you luck....I love oatmeal too!

nvsmom Community Regular

I chickened out and never tried it again after going gluten-free.  Part of the reason for that is that I don't always have severe reactions to gluten and my symptoms' severity sneaks up on me.  I slowly feel worse and worse until it takes quite a while to recover.  It's not worth the risk in my mind, but that's just me.  Many celiacs do just fine with oatmeal... I'll stick to bacon and eggs.  ;)

LauraB0927 Apprentice

Chex makes great gluten free oatmeal that I love more than regular oatmeal - have a couple different flavors.  I'd suggest giving it a try!

Tigercat17 Enthusiast

Sorry, but I am too chicken to even try gluten-free oatmeal.. LOL! :D  And I've been gluten-free for almost 6 years now. But I have substituted it with Quinoa for my cereal in the mornings. Just add any berries, walnuts and silk almond milk. It is really so good that I don't even miss oatmeal.  ;)

twe0708 Community Regular

I eat Bob's Red Mill gluten-free every morning.  And yes, I mean every morning.  I don't think it is giving me any problems and I don't know what I would do if I couldn't eat it for breakfast bc what other options would I have,  :(  I'm a very picky eater.  I do on occasion have stomach cramps but can't tell if it's from the eggs or oatmeal, or if something else is causing it.  It only last for 5 to 10 minutes and then goes away.  It also only happens a couple of times a month so if it was the oatmeal I would think it would be a daily thing issue.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

We eat Bob's Red Mill oatmeal regularly (not every day), and have no problems with it. I find it to be a good source of dietary fiber--something the gluten-free diet is often short of.

Michielyn Newbie

I ate it for a couple weeks post diagnosis, but I stopped when I realized I was still eating something causing a reaction. I'm pretty sure it wasn't the oatmeal but I'm scared to start again. I DO eat the Chex gluten-free granola without problems.

obesiac Newbie

Over the years I have tried oats and I think they make my vision blurry. That may sound odd to a non celiac but to you people just a normal conversation, right?

So I'm never eating oats again.

jrlaird Rookie

Obesiac, I have the same issue when I eat soy (one of my food sensitivities). My eyes get blurry and it's really frustrating. Its nice to know Im not the only person who has had vision symptoms from a food they ate.

 

Jonathan

  • 3 weeks later...
LucyGoose Newbie

I had a reaction to gluten free oatmeal after I was first diagnosed. I tried it again periodically, and after about two and a half years was able to eat it again without feeling bad.

psawyer Proficient

I had a reaction to gluten free oatmeal after I was first diagnosed. I tried it again periodically, and after about two and a half years was able to eat it again without feeling bad.

During the healing process, you may react to many things that do not contain gluten, but are still a challenge for the gut. Most experts suggest waiting at least six months before trying pure oatmeal. It was several years after my diagnosis that pure oatmeal was available in Canada.
  • 3 weeks later...
StClair Apprentice

OP here. Well, I had a big bowl of oatmeal this morning, 3 months post-diagnosis and gluten free (as far as I know), and so far everything is fine. In my former life, pre-gluten-free, oatmeal would always make me feel a little bit queasy for awhile, but nothing now. And it was a big bowl. Breakfast is starting to look up! I've also recently tried gluten free pancake mix, which I was avoiding because acid reflux/fried, etc, and it did not make me feel sick either, for the first time in my life.

Hoping no silent destruction is going on, but if I continue with no symptoms I'll probably continue with the oatmeal, as it is highly recommended for my still healing gastritis/esophagitis.

GF Lover Rising Star

Glad things are looking up :)

 

Colleen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,020
    • Most Online (within 30 mins)
      7,748

    Ericaa
    Newest Member
    Ericaa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.