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One Year Gluten Free Tomorrow.

Chibiehotaru

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Chibiehotaru Newbie
Chibiehotaru
Posted

Hello everyone,

I have been much better since my last post. I have been getting much more family support which makes me feel much less alone. I wont lie, I still have my days I feel like crying and asking myself "why me?!" Some days are still difficult to be around others eating foods I would love to eat. I do get jealous. :,(

My question to others with celiac disease that have dairy issues is:

I have been gluten free a full year tomorrow. I gave up dairy shortly after as I realized I had almost the same reaction to dairy as I did with the gluten. (Uncontrollable diaherria, severe ststomach burning, bloating, etc...) is there anyway to possibly eat dairy again? Has anyone been successful in adding dairy back into their diet? If so, when? Any feedback would be helpful and give me confidence to go down that path or put to rest the idea of having a gluten free pizza with yummy cheese. Also, I apologize if there's any thread going on thia topic. My phone isn't letting me search for anything. Thank you.

~Nora. Survivor of celiac disease of one full year.

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GF Lover Rising Star
GF Lover
Posted

Hi Nora  CONGRATULATIONS  :D .  1 year is a biggie.

 

Many, many people get dairy back.  Once the villi heal is when it happens, assuming you were not lactose intolerant before.  Add back one dairy item at a time and see how you do.  

 

Good Luck, Colleen

ravenwoodglass Mentor
ravenwoodglass
Posted

I am one of the ones that was able to add dairy back. It is suggested that you first add back low lactose items like hard cheeses, cheddar for example, and yogurt. If all goes well you can try small amounts of other dairy like milk, ice cream and soft cheeses like mozzarella.  I was so happy to get dairy back and hope the same happens for you.

nvsmom Community Regular
nvsmom
Posted

  :D Woo Woo!  :)  One year!  Congratulations!  B)

 

Dairy was an issue for me too - lactose is not a good thing for me. ;)  I started trying to add parts of it back after about a year, and at that point it wasn't frequent.  At first, I always took a lactaid (with lactase) when I ate dairy, or tried to buy lactose free products.  That helped.  

 

I never went back to drinking milk or eating yogurt - too much lactose - and I don't like to drink milk much anyways.  The dairy products I missed were cheese and ice cream.  I still can not have much ice cream or it gets me; lactase tablets still help with that.  Happily I can eat hard cheeses now, and have been able to for at least a year.  That being said, if I can substitute some non-dairy in (like Daiya "cheese",  or plain coconut yogurt for sour cream, or coconut cream for half and half) I will still do it.  Dairy is not an essential part of a humans diet, it just tastes good.  ;)

Chibiehotaru Newbie
Chibiehotaru
Posted
  • Author

Thank you everyone for sharing! I am hopeful to try a few pieces of cheese here in the summer. Lol... I have a few days off so if my body decides to disagree I can suffer in the protection of my own home. :) fingers crossed and wish me luck. Thanks again. :)

ThisIsMyUserName Explorer
ThisIsMyUserName
Posted

I love that I am now part of a community where using the words "uncontrollable diahreaa" on a message board doesn't raise eyebrows.

squirmingitch Veteran
squirmingitch
Posted

I had trouble with dairy too. I was off of it for over a year - I'll say around a year & 3 months. There were 2 reasons for me being off dairy. 1 was the gut issues & 2 was the iodine in it which makes the dh rash flare so I was off dairy longer than perhaps my gut issues needed to be. But I am happy to say when I went back to it I had no problems at all. My gut said uuuum, ummmmm, good!

 

HAPPY ANNIVERSARY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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Chibiehotaru Newbie
Chibiehotaru
Posted
  • Author

Thank you. I have not read deeply into any of the topics on why some people with Celiac end up having issues with dairy or what exactly in the dairy triggers people. I always thought it was lactose but I heard from someone recently it was the cassiene? (Not sure if that's spelled correctly) but iodine as well, huh? So, it could be any one of those ingredients or a combo that kill me? Lol.

squirmingitch Veteran
squirmingitch
Posted

No. no. no ~~~ the iodine is not for you to worry about. Only those of us with the celiac rash b/c the iodine content makes our rash flare. 

beth01 Enthusiast
beth01
Posted

Kraft shredded mozzarella and cheddar have 0 lactose per serving. I use them on my pizza, but still have to be careful on the amount I use and still take Lactaid and a anti-gas when I eat it.  I'm a little over a year gluten free and too much dairy still bothers me.  Ice cream I make myself with Almond milk or the Lactaid milk.  I know nothing of casein allergies, someone else will have to chime in about that.

cap6 Enthusiast
cap6
Posted

Congratulations on your one year anniversary! That is a milestone to be celebrated. As stated, you can add a tad of dairy and see if you tolerate it ok. I am at five years and can handle it if I don't eat too much. We all heal at such different levels!

Judy3 Contributor
Judy3
Posted

I don't have the dairy issues but have some exciting news about my food allergies.    I've been allergic to shrimp and fish and nuts for years (23 to be exact) and diagnosed with Celiac almost 5 yrs ago.   I have been gluten free since that day and now my doctor sent me to an allergist for my sneezing etc.. and it turns out that I have nonallergic rhinitis in regard to that but in the process he tested me for the food allergies 20 of them.. both blood tests and skin tests and they all came back negative!!!   So in a month I'm doing a food challenge with shrimp in his office and if I pass I can eat it again!    The last time I ate shrimp I had anaphylactic shock and ended up in the ER via rescue squad.      He said allergy testing has come a long way in 23 yrs but he thinks that I either out grew it or more likely my undiagnosed Celiac disease manifested in a strange way and it 'appeared' that I was allergic to all this stuff...but now that it's healed they are gone..    He said at most I have an intolerance and not a true allergy so it's not life threatening. He did some blood tests yesterday to see if I'm missing an enzyme which could be causing the nut allergy symptoms (numbness in the mouth) when I eat nuts and flax...     I'm very excited about all this!   

 

Wish me luck, I just may have a tuna sandwich for lunch  (on gluten free bread of course  lol) 

cyclinglady Grand Master
cyclinglady
Posted

I don't have the dairy issues but have some exciting news about my food allergies.    I've been allergic to shrimp and fish and nuts for years (23 to be exact) and diagnosed with Celiac almost 5 yrs ago.   I have been gluten free since that day and now my doctor sent me to an allergist for my sneezing etc.. and it turns out that I have nonallergic rhinitis in regard to that but in the process he tested me for the food allergies 20 of them.. both blood tests and skin tests and they all came back negative!!!   So in a month I'm doing a food challenge with shrimp in his office and if I pass I can eat it again!    The last time I ate shrimp I had anaphylactic shock and ended up in the ER via rescue squad.      He said allergy testing has come a long way in 23 yrs but he thinks that I either out grew it or more likely my undiagnosed Celiac disease manifested in a strange way and it 'appeared' that I was allergic to all this stuff...but now that it's healed they are gone..    He said at most I have an intolerance and not a true allergy so it's not life threatening. He did some blood tests yesterday to see if I'm missing an enzyme which could be causing the nut allergy symptoms (numbness in the mouth) when I eat nuts and flax...     I'm very excited about all this!   

 

Wish me luck, I just may have a tuna sandwich for lunch  (on gluten free bread of course  lol)

Congratulations! That is thrilling news!

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      how much gluten do I need to eat before blood tests?

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