Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Meal Replacement Shakes

Bubby

By Bubby
in Dermatitis Herpetiformis

Recommended Posts

Bubby Newbie
Bubby
Posted

Does anyone know of a meal replacement drink that is free of gluten, dairy, soy, eggs, corn, rice, nuts and avocados?  I'm trying to do an elimination diet to see what exactly makes the rash worse.  I'm not a big meat eater and just can't eat anymore meat or chicken so I thought if I could drink a protein shake or two a day I would be able to make it through.  I've been gluten-free for 7 months, gluten-free house, gluten-free personal products but still have the rash all over my body.  I did remove all gluten-free products likes pasta, breads, crackers and it is helping a bit but it doesn't leave me much to eat.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fundog Enthusiast
Fundog
Posted

I have a protein powder called Vega Veggies and Greens.  I got it from Costco.  It is vegan and gluten free, but it does contain sprouted whole grain brown rice, and xanthan gum.  The Rash is contingent upon how long it takes to purge the antibodies out from under your skin.  This could take a couple of years, I am told. :(   Meanwhile, it can flare at random, without any provocation.  However, some people find that iodine can exacerbate the inflammation, so they avoid or limit their consumption of shellfish, kelp, nori, and iodized salt, for example.  (Carageenan is an ingredient to watch for.)  I've only been gluten free for ten weeks, so although I'm a lot better than I was, my arms and legs still look pretty ugly. :(   Baking soda baths and Caladryl lotion help immensely when I'm feeling particularly itchy.

squirmingitch Veteran
squirmingitch
Posted

Good advice from Fundog.

NSAID's are also known to aggravate the rash. If you have to take something Tylenol is the least offensive.

Ice packs help too.

Bubby Newbie
Bubby
Posted
  • Author

Thanks Fundog and squirming itch!  I'll check out the Costo protein powder.  I do watch my iodine and ice packs are the only thing that gives me relief.  One of the worst things is lack of sleep from the itching and changing out ice packs.  I'm a zombie hermit these days and I hate it.  I can't get anything done because I'm exhausted or having an itch fit and have to lie down with ice packs, especially after work.  Have a good week!

 

squirmingitch Veteran
squirmingitch
Posted

You're welcome. I have never used the protein shakes. I know what you mean about zombie hermit. I don't think I slept for a full 2 years except in increments of 10-20 min. from absolute exhaustion.

Hang in there.

Lobstah Rookie
Lobstah
Posted

I make smoothies all the time...

1 cup Kefir, plain (available at most grocery stores now, in the yogurt section)

1/2 half and half

fresh strawberries, blueberries, raspberries, whatever is available (can use frozen too)

1tsp stevia.

some ice, if using fresh berries

Tastes like a milk shake from days gone by.

 

p.s. these are also low-carb.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748
    MLB1970
    Newest Member
    MLB1970
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.