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Stress causing twitching


cristiana

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cristiana Veteran

I'm just interested to know if anyone has managed to find a solution to a problem that is really bugging me.

About six months before my DX (in 2013, where my biopsy showed bad damage to my gut, and also my blood test readings were off the scale), I started to get neuro issues.  Tingling extremities, arms and legs, numb hands and arms on waking, and twitching muscles eyelids and face, and arms and legs.  I started to supplement when I knew that gluten was the problem and bit by bit those symptoms went.  

Thing is - as soon as I get stressed about things in my life the twitching  comes back in my face.  It really annoys me. I used to be able to cope with stress - yes, maybe I got a headache, or a nervous stomach, but now if I'm worried about anything those twitches come back to my face.  At the moment have a close relative who is unwell, a big deadline coming up and a twitch above my temple that started last week after a stressful phone call seems to be setting up permanent residence!

I'd love to be able to walk away from my problems  but realistically I can't. Has anyone else had this problem of stress retriggering celiac nerve problems  and managed to find a solution? I'm upping the supplements again (magnesium, B12, fish oil tablets).  The only thing that helps the twitch is when I go for a long walk but I can't walk all day long! Wish I could!

Thanks so much

And a Happy New Year! 


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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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