Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Hair Loss

jamie111

By jamie111
in Related Issues & Disorders

Recommended Posts

jamie111 Newbie
jamie111
Posted

I was diagnosed with Celiac in Sept 2016. I have been gluten-free for 7 months. 

Pre-diagnosis: hair thinning, dry skin, head aches, awful bloating, etc. Symptoms have steadily improve with bloating here and there. Now, the past month, my hair has taken a dramatic turn for the worse with loss and thinning of hair again - but worse!! Why is this? I need help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PinkyGurl Explorer
PinkyGurl
Posted
43 minutes ago, jamie111 said:

I was diagnosed with Celiac in Sept 2016. I have been gluten-free for 7 months. 

Pre-diagnosis: hair thinning, dry skin, head aches, awful bloating, etc. Symptoms have steadily improve with bloating here and there. Now, the past month, my hair has taken a dramatic turn for the worse with loss and thinning of hair again - but worse!! Why is this? I need help!

Hi jamie111. I had the SAME thing!  Turned out I also had hashimotos which is often seen with celiac.  I would have your thyroid antibodies and thyroid levels checked.  My antibodies were up but my thyroid labs were "within normal". I saw my endocrine and told her of all my thyroid symptoms and she was amazing and started me on meds (very low dose) and wow what a difference!

icelandgirl Proficient
icelandgirl
Posted

Hi Jamie!

I completely agree with Pinky.  Have your thyroid fully investigated.  A lot of Dr's will only test TSH and it just doesn't tell the whole story.  You also need Free T3, Free T4, TPOAb andTgAb.  The last 2 are antibody tests.  Your TSH should be close to 1 and both Free's should be within 50-75% of the range to be optimal.  When your thyroid isn't operating optimally you can have a variety of issues, including hair loss.

Another thing to have checked is your ferritin, stored iron.  If that's low it can cause hair loss as well.

Good luck...I hope you get this figured out!

janpell Apprentice
janpell
Posted

I noticed a huge improvement once I started my iron supplements. It still grows very, very slow though but no hair loss anymore.

cristiana Veteran
cristiana
Posted
17 hours ago, janpell said:

I noticed a huge improvement once I started my iron supplements. It still grows very, very slow though but no hair loss anymore.

I think there has been a direct correlation with my anemia and hair thinning.  Unfortunately I have to limit my iron intake as I have a suspected blood disorder but I'm a rare case - under normal circumstances I'd be supplementing much more as I feel it makes quite a difference.   If I were you I'd get your iron tested and then supplement if on the low side - but make sure your levels are monitored as too much iron is a bad thing.

Some other tips I've picked up from my nutritionalist: eat sufficient protein (eggs, chicken, oily fish), fresh fruit and veg.  And from surfing the net:  make sure you are getting enough exercise; also, some people don't use hair products that contain gluten - this seems a bit controversial, but I've changed mine and I think it has helped.    

Also - are you sure your food isn't being cross contaminated as I have heard some people shed hair if they are glutened?

On that tack - something I'd love to know from other celiacs who have problems with oats (most celiacs don't) is if they feel that oats have ever caused hair loss, in the way that gluten has caused it?

Anyway, do let us know if you find any answers!

 

  • 6 months later...
Feesa Apprentice
Feesa
Posted

OMG I think you have been talking to me, I have found in the last 2 months my hair is falling out like crazy!! I am afraid of the brush now because all it does is make me cry, After reading everyone else's comments I am going to make a Dr apt and get the TSH  tests done, Sorry to hear you are going threw this. But I will say it helps people understand that they are not alone.. Thank you so much for sharing your story.   :)

vonpop626 Newbie
vonpop626
Posted

has anyone heard about this ...Low-Dose Naltrexone (LDN) and that it can help with celiac?

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted
2 hours ago, vonpop626 said:

has anyone heard about this ...Low-Dose Naltrexone (LDN) and that it can help with celiac?

 

I've read that some people with Crohn's Disease use it and think it can help them.  But I've never read about it being used for celiac disease.

cyclinglady Grand Master
cyclinglady
Posted
5 hours ago, vonpop626 said:

has anyone heard about this ...Low-Dose Naltrexone (LDN) and that it can help with celiac?

 

Not for celiac disease.  There are some alternative sites promoting it for autoimmune issues, but no studies have been made to my limited knowledge (I am not a doctor).  Besides the side effects are GI issues!  Not great if you already have a damaged gut. 

I assume you are concerned about hair loss?  How long have you been gluten free?  Have other I issues ruled out?  

vonpop626 Newbie
vonpop626
Posted

one year!

cyclinglady Grand Master
cyclinglady
Posted
5 hours ago, vonpop626 said:

one year!

Okay, a year of being gluten free.  When was your last celiac antibodies test taken?  It should be done annually or more often if you are having issues.  It can help determine if you are actually diet compliant.

Open Original Shared Link

Ruling out celiac disease as the culprit would be helpful as your hair loss might be related to another autoimmune issue or illness.  

Autoimmune thyroid is commonly linked to celiac disease and if you are hypothyroid that can contribute to hair loss too.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease...
    2. Heatherisle
      - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      35

      Blood results

    3. Healthierbody2026
      - Healthierbody2026 posted a topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

      I take Niacin, bilberry, Omega threes, zinc, selenium, and Vitamins C and A for eye health, skin health and digestive tract health. The skin, digestive system and eyes are all derived from basically the same sort of cells. Niacin is extremely important to keeping these tissues healthy. Niacin has be shown to prevent cataracts and improve eye...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

      Thankyou. I have cyclosporine 0.05% OP single use drops and Erythromycin ophth ointment 3.5 Gmail for eyes. Dermatologist gave Pimecrolimus cream 1% and Clobetasol Propoonate USP 0.05% it doesn't help at all.i do see a difference taking Yarrow Pom but its too expensive!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,460
    • Most Online (within 30 mins)
      7,748
    SuzaP
    Newest Member
    SuzaP
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      New at gluten sensitivity

      By trents · Posted

      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
      Blood results

      By Heatherisle · Posted

    • Healthierbody2026
      New at gluten sensitivity

      By Healthierbody2026 · Posted

      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
    • knitty kitty
      Related issues

      By knitty kitty · Posted

      I take Niacin, bilberry, Omega threes, zinc, selenium, and Vitamins C and A for eye health, skin health and digestive tract health.  The skin, digestive system and eyes are all derived from basically the same sort of cells.  Niacin is extremely important to keeping these tissues healthy.    Niacin has be shown to prevent cataracts and improve eye health.  Niacin is turned into tryptophan which is necessary to heal the digestive tract.  Tryptophan is used to make Serotonin, a very important neurotransmitter in mood regulation.  Those with Niacin insufficiency become irritable and easily upset, angry, even. Niacin improves skin health.  The flushing of Niacin opens the smallest blood vessels in the skin so that waste products can more easily be removed.  I have Dermatitis Herpetiformis.  Niacin helps drain away those built up antibodies in the blisters and improve skin health.   Bilberry contains lutein and zeaxanthin and other anthocyanins,  potent antioxidants that help protect the eyes from macular degeneration and cataracts.  Bilberry has sGLT1 and GLUT2 which help to lower glucose levels by removing excess glucose from the bloodstream.  High blood glucose levels are bad for eye health.   Omega Threes are important to provide relief in dry eyes.  You are familiar with how oil floats on water.  Same thing happens with eyes.  Omega threes provide the oily layer that protects water from evaporating from the eyes causing dry eyes.  Omega threes in olive oil, sunflower seed oil,  and flaxseed oils will help improve dry eyes. Vitamin A and Riboflavin B2 are important in this function as well.   None of the medications I was given improved my dry eyes.  I increased my Omega threes and Vitamin A, and had improvement very quickly. Selenium and zinc are important in skin and eye barrier functions, too, and are important to preventing infections. When I take 100 mg of Niacin every three hours (but not more than 500 mg/day), my skin and eye health improves.  If one is deficient in Niacin, the flushing effects may be uncomfortable, but ride it out, continue taking Niacin and the flushing goes away as niacin stores inside cells are repleted.  When flushing, don't scratch!  Use pressure applied over a bigger area above the itch.  I wrap up in a towel or blanket to create the counter pressure.  The flushing goes away the longer one takes Niacin.  Don't use Niacinamide (the non flushing form of Niacin).   Other vitamins that improve eye health are Vitamin E and Pyridoxine B6 and Thiamine B1.  Most Vitamin E sold is derived from wheat germ, so find another source of Vitamin E.  I used Evening Primrose oil, also a source of healthy Omega threes and helps with female problems like perimenopause  and menopause symptoms. Do be aware that antifungals and antibiotics (as are frequently prescribed) destroy Thiamine.  Immunosuppressive drugs can suppress production of tTg antibodies.  Supplementing with thiamine above the RDA is safe and nontoxic.  RDA were set as the lowest amount to prevent illness.  Optimal health is seen in higher amounts.   Do talk to your doctor and dietician about supplementing essential nutrients.   References: https://pubmed.ncbi.nlm.nih.gov/39183990/ https://pubmed.ncbi.nlm.nih.gov/41156490/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7602486/
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Thankyou. I have cyclosporine 0.05% OP single use drops and Erythromycin ophth ointment 3.5 Gmail for eyes. Dermatologist gave Pimecrolimus cream 1% and Clobetasol Propoonate USP 0.05% it doesn't help at all.i do see a difference taking Yarrow Pom but its too expensive!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.