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Women, Have U Used Depo Provera Before Symptoms Started?

jen3899

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jen3899 Apprentice
jen3899
Posted

I was thinking back and realized that I started getting Depo shots just a month or so before I started getting sick. I never put the two together but now (almost 5 years later) I just stopped getting depo shots because I am wondering if the Depo could have caused the onset of the celiac disease symptoms. I know that Depo has caused many women BIG problems. Open Original Shared Link This link is about Depo side effects, if you have time to read it, it is kind of scary. Anyways, I am wondering if anyone else started taking Depo before getting sick with celiac disease? I had NO symptoms of any kind before starting the Depo, and after being gluten free for like 4 years now, I am still suffering with Diahreea, stomach pain, weight loss, fatigue. I can not work and I hardly ever leave the house because my stomach is such and issue, plus I have panic attacks due to my symptoms. Please, If you started depo before you got sick, even if you dont think the two are connected, respond to this post!

THANK YOU!

-Jennifer

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Bonnie Explorer
Bonnie
Posted

Hi Jennifer,

Now that is the strangest thing. I have been thinking a lot over the last few weeks about what could have been my trigger. I have had stomach/digestive problems my whole life but things really came to a head last year.

I got a Depo injection last year in August for the first time in my life. I had terrible problems from it - bled non-stop for almost 4 months. Had another one anyway (I know, I know) in November and vowed never to go near it again. Anyway it was around October/November last year that I got really sick and started my long journey of visits to doctors, dietitians, etc. etc. etc.

Hmmm .... interesting! Anyone else?

Yvonne

DonnaD Apprentice
DonnaD
Posted
Hi Jennifer,

Now that is the strangest thing. I have been thinking a lot over the last few weeks about what could have been my trigger. I have had stomach/digestive problems my whole life but things really came to a head last year.

I got a Depo injection last year in August for the first time in my life. I had terrible problems from it - bled non-stop for almost 4 months. Had another one anyway (I know, I know) in November and vowed never to go near it again. Anyway it was around October/November last year that I got really sick and started my long journey of visits to doctors, dietitians, etc. etc. etc.

Hmmm .... interesting! Anyone else?

Yvonne

Hi Jennifer, I don't post much as I'm new and still on a steep learning curve :) But I just had to reply to this.

Yes, I did have Depo, I just phoned my GP to check and certainly had it from Dec 94 to at least Dec 95 and possibly before 1989 and after '95 I cannot be sure as it is so long ago and the receptionist was busy.

I was slim and fit once...... :rolleyes:

I'v got a TERRIBLE memory and a very long, fat medical history full of odd stuff. IBS, fibro, chronic pain, weight gain, bladder issues, odd rashes, teeth grinding, freezing feet and hands etc etc etc, something new and NOT SOoooo exciting each year, a steady decline.

I'v Seen 100s of doctors, specialists, had surgery, physio, drugs (and lots of them) I only started to link everything when I found this site looking for receipes for my D just dx by biopsy in Nov.

I have so many symptoms which could be auto-immune, coeliac, gluten intolerance, experiments by aliens (LOL) :P who knows?

I am going to look into Depo a bit further, especially the Detox side and bone loss issues. I'v sent off my Entolab samples today so may have at least some answers in 3 weeks. My GP has only just started to take me seriously after 25 years, after getting a 5 page medical report from the pain clinic.

Its so frustrating, I feel like I have bits of a jigsaw puzzle but didn't get the box, don't know how many bits I have, which way up they go, or what on earth the picture should be!

morrigan Newbie
morrigan
Posted

I was on the Depo shot in the past and have just recently found out that I have celiac. I think there may be a direct correlation to birth control and the onset of celiac.

cgilsing Enthusiast
cgilsing
Posted

I have never been on Depo Provera, but I know for a fact that taking birth contol pills triggered the onset of a lot of my health problems. I was taking a tri-phasal pill and within a month a had an orange-sized cyst and endometriosis. I switched Doctors and was told that the tri-phasal pill was the worst thing I could be on and the fluxuating hormones had caused my problems. I wasn't diagnosed with celiac disease for quite some time after that, but that was roughly the same time that I started having bowel problems too. I then went on a hormone treatment called Lupron Depo to cure my endometriosis. (I don't know if it is related to Depo Provera) It is possible that Lupron Depo contributed to triggering the Celiac disease (I have heard that Celiac disease can be triggered by stress and that particular treatment is very stressful).....but it is a miracle drug.....as you can see from my latest ultrasound it saved my fertility!

PreOptMegs Explorer
PreOptMegs
Posted

I just went to the Doctor yesterday and she is going to put me on Provera... or a possible substitution for its generic form. Do both have gluten in them?

jen3899 Apprentice
jen3899
Posted
  • Author

Depo Provera does not have gluten as far as I know; it just messes with your hormones. I think you should do some real research about it before deciding if you want to go on it, I was on it four years, and after two I started asking my doc every visit if it is safe to be on this long and they all said oh yeah no problem at all, well now the company has said to not be on it more then 2 years because of the bone loss it causes and who knows what else it causes. Docs don’t know crap about these drugs, they just know they make money giving them out, you tell them you have Celiac and they do not think about how drugs will affect your health differently. I don’t know, but if I were you I would just not mess around with ANY birth control but condoms, especially Depo because once they give you that shot you are stuck for at least 3 months no mater how you react to it. My last shot was on Aug 1st, I have not started my period again but in the last month my stomach has been completely different, better, but I still am not feeling good enough to get a job, and I think a lot of it has to do with the Depo! Just research it first, PLEASE!

-Jennifer

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jen3899 Apprentice
jen3899
Posted
  • Author

anyone else?

DonnaD Apprentice
DonnaD
Posted
anyone else?

I have a dowagers hump, and a lot of back /neck pain and all my problems started after the jabs. I am going to get bone density scans done and see if I have a problem. My daughter who is coeliac was born after I started the jabs. I'm waiting for my Entrolab results.

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    • Mari
      My only proof

      By Mari · Posted

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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