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Celiac and Type 2 Diabetes Meds

HJL122

By HJL122
in Related Issues & Disorders

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HJL122 Newbie
HJL122
Posted

I had to get off Metformin after 5 years. It controlled my sugar; but, created diarrhea 37% of calendar days. Next on Januvia, I was able to tolerate the med relative to diarrhea; but, did not keep A1C in check.  I am now considering Trulicity and would like to from others if it will significantly impact diarrhea issue again.  It is listed as a side effect.  I was diagnosed as Gluten Intolerant 31 years ago. 

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kareng Grand Master
kareng
Posted

I don't think think Celiac had anything to do with the side effects of those meds.  I think those are possible side effects for any one?  They didn't specify Celiac, correct?

cyclinglady Grand Master
cyclinglady
Posted

The side effects for Metformin are well documented.  They can affect anyone -- celiac or not.   Metformin is considered the "safest" for TD2.  Have you tried the  extended release version?  The other TD2 drugs also have some serious side effects.  Trulicity can cause gastroparesis) slow stomach emptying).  

Have you considered a low carb high fat diet?  Carbs, even healthy carbs are not good for a TD2.  

Has your doctor screened you for TD1?  Celiac disease is linked to Type 1 diabetes.  It is usually called latent or LADA.  There are specific antibodies you can have checked.  You can develop TD1 at any age.  When older, it can be slow to develop (years....).   Doctors often think that if you are old or overweight, you must be type 2.  

You might even consider insulin as a treatment form if your beta cells are burned out.  Safer that most of the diabetes drugs.  

HJL122 Newbie
HJL122
Posted
  • Author

Thank you for your thoughts. They are well taken and appreciated. 

cyclinglady Grand Master
cyclinglady
Posted

I hope you find a solution.  I am insulin resistant.  So far, I have managed on just my my diet alone (gluten free and a low carb high fat diet).  I am trying to avoid Metformin because I am assuming that my gut is my weakest part of my body, but as I stated earlier, Metformin has been around for a long time and is considered pretty safe.  I basically eat foods that my meter likes.   My goal is to avoid long-term complications.  My doctors have been impressed with my results.  

Take care.  

knitty kitty Grand Master
knitty kitty
Posted
8 hours ago, HJL122 said:

I had to get off Metformin after 5 years. It controlled my sugar; but, created diarrhea 37% of calendar days. Next on Januvia, I was able to tolerate the med relative to diarrhea; but, did not keep A1C in check.  I am now considering Trulicity and would like to from others if it will significantly impact diarrhea issue again.  It is listed as a side effect.  I was diagnosed as Gluten Intolerant 31 years ago. 

Hi.  I have type two diabetes.  Also, I am allergic to anything containing sulfur, like sulfonylureas, antidiabetic drugs containing sulfur.  I had dreadful diarrhea on Metformin.  So I had to find a way to keep my blood glucose levels within range without drugs.  I came across this book by Dr. Sandra Cabot, "Diabetes Type Two - You can reverse it naturally".  I found it very helpful and motivational in altering my diet to a no carb/low carb/high protein diet.  My body seemed to breathe a sigh of relief and started functioning better.  The diet really clicked with me.  

K

 

 

ravenwoodglass Mentor
ravenwoodglass
Posted

In addition to the great advice you have already gotten I found a book on the glycemic levels of foods to be a bit helpful.  I refused Metformin and was told I would be able to use insulin when I needed to use something.  Haven't needed anything yet.

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HJL122 Newbie
HJL122
Posted
  • Author

Thank you for the suggestions. 

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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