Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

costo treatment


ironictruth

Recommended Posts

ironictruth Proficient

So I continue to have this pain in my right rib cage and into my back.  Sometimes it's a deep pain which I assumed was related to gluten and other times I can just touch my rib cage and it's tender. 

 it comes and goes although there's always something on the right hand side whether it be pressure or pain. Some days it's a lot worse, some days it's not too bad. My gallbladder was taken out about 20 years ago so it's not that and my liver has been viewed via CT scan, MRI, and ultrasound. Everything looks fine there too.

 My specialist told me that it could be inflammation  of surrounding tissue due to the intestinal inflammation.

 So today I went to my primary care and asked for his advice.  I had gastritis last summer and some gastropathy showed up on a recent capsule endoscopy.  I also have some villi blunting so I told him I didn't think taking Advil would be such a great idea.

He prescribed a topical NSAID.  He told me they often use it for people who have had gastric bypass surgery because it doesn't go into the stomach. However as soon as I opened the package and started reading about applying it, there is a huge section on issues with stomach bleeding etc, so on and so forth. 

 So I looked it up online and sure enough:

"topical diclofenac(Pennsaid, Voltaren) may cause swelling, ulcers, bleeding, or holes in the stomach or intestine". 

 So now I'm back to square one. And kind of annoyed that I paid a $20 copay today for this.  Perhaps I'm overthinking it?  Maybe I should just start using the stuff and hope that the package insert and online is being ridiculous and the doctor is more knowledgeable?  I mean, I'm actually applying the stuff basically on to my gut!  I already applied some tonight and tried washing it off after.

 I have done heat, ice, a TENS unit, and Kinesiology tape.

 Not sure if it's Costo or not. It doesn't travel up to the ribs in my chest, just the lower ribs and into the back. 

 Anybody have this before with any luck with a particular med that doesn't wreak havoc on your  intestine or stomach?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

I know that for obvious reasons the first thought is intestinal inflammation but it sounds a bit like intercostal neuralgia? Not sure if that's been ruled out / in? Ignore me if that's a daft idea, a lot of my gluten mediated problems come via the nervous system so I wonder if that's the same for others. If it were in any case the NSAID is a potential treatment: Open Original Shared Link

As for the side effects. I think you have to look at the 'may cause' and make a risk assesssment. In the UK a lot of hospital admissions are related to adverse drug reactions to prescribed medications so you're right to be vigilant. On the other hand, these medications have been through a testing procedure and should therefore offer at least some chance of working.

Maybe there's another alternative with less troubling side effects. Ask a pharmacist and see if you can find out any stats on that 'may cause' statement. Because if it's 1 in a thousand, you may want to give the medicine a shot?

Ennis-TX Grand Master

I ended up going to using natural herbs, Marshmallow Root, Cinnamon Oil, Aloe Vera, and looking at perhaps slippery elm. All for my UC inflammation issues. You can check the various info on them here Open Original Shared Link

ironictruth Proficient

Thanks guys. 

I do use slippery elm and marshmallow tea when I can feel gastritis starting.

I do not think it is all intestinal for sure. I did fall pretty hard there 6 months ago but the xray was normal. so the rib-nerve issue could make sense.

I worry About any warning for stomach/intestine because I already have documented issues with both. But calling the pharmacy is a great idea. 

Awol cast iron stomach Experienced

Ironic truth,

I don't have further info myself, but I wanted to send you well wishes on finding comfort soon.

 

ironictruth Proficient

Just an update for anyone interested:

I did call the pharmacist and explained. He did say the stomach/intestinal warning still applied to the topical cream. HOWEVER, the topical solution would be less absorbed into the gut then the pill version, which seems obvious, so the chance of an issue would be less then say, taking advil. The last time I took advil when I had existing nausea, I ended up vomiting.

Given the mild nausea, pressure and dizziness I have had today I think I would rather deal with the pain then potentially add to the nausea. The pain has not been to awful today. Yesterday sucked.

I will explore online for more options I guess and use the ointment if totally desperate.

Thanks all!

icelandgirl Proficient

Hi ironic and ((((hugs))))

For several months prior to diagnosis and a few after I had something like this on my left side.  My lower ribs were sore to the touch.  I used to massage the area and went to sleep with a heating pad each night.  It was awful.  It did start getting better after going gluten free thankfully.

I'm so sorry that yours has not gotten better.  I completely understand your hesitation with using this medication.  I am always scared about adding something new in.  

I really do hope that you figure something out and start to feel better soon! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi IT,

My sister has a problem with ribs sometimes coming out of joint.  She goes to a chiropracter to get them "adjusted".  Might help.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.