Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Did It!


Guest BERNESES

Recommended Posts

Guest BERNESES

You guys have all been so supportive this year as I struggled (and tore my hair out) that I wanted to share something personal and important with you. For the last three years I have been in the PhD program in education at UNH. In the first year of the program, my mom passed away very suddenly from a rare form of stomach cancer. The year after that I got married and then three months later became really ill with my gluten-intolerance. But despite evrything, I officially finished the course work for my PhD on Monday (all 82 credits! Yikes!). I can't believe it!

I want to thank all of YOU because without the support of this board (and of course my DH and friends) it may not have happened! Thanks to all of you, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

Congratulations! I am going through something similar to you - I am working on my masters of science (in biology) and had a difficult time in the last year b/c of my celiac. Now, I have one chapter left and a defense, and I'll be done. It definitely shows our strength considering the disadvantages we face from our illness (and being sick so often) that we have made it this far. And, I am so proud of my "sisters" that follow through with advanced degrees! Not enough women out there have masters and Ph.D.'s. So, congrats again!

traveljunkie Rookie

Beverly,

Congrats!!! :):) Even though I'm fairly new to this forum, I've learned how supportive and caring everyone is here!! You've been through a lot, and accomplished so much!! You must be proud!!

Charlene

Guest BERNESES

Thanks Ladies- thank God for this board! B

Bluelotus- you keep going!

jerseyangel Proficient

Beverly--Congratulations! :D

jenvan Collaborator

B--Congrats Congrats! Be proud--you had a lot of overcome. Hope your holidays are good this year, even as you miss your mom... Your story is encouraging to us...especially when I think about going back to school too!

Lauren M Explorer

Good for you Beverly! Major Congrats!

On a side note, have you been able to do any horseback riding lately? I'm a wimp about the cold weather, so I've stayed away from the barn recently :P

- Lauren


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

Congratulations Beverly! That would be a major accomplishment for a healthy person with no problems. Good for you for getting it done under all that stress!

Guest BERNESES

Lauren- I haven't been able to ride lately because it appeared as though it was making me sick. However, I'm willing to try again in the spring- right now we have a ton of snow and it's been in the 20's. No indoor ring either. I won't give up hope! My major goal is to get back to skiing this winter as I had a bad accident last winter (right before we figured out I was gluten in.) and was out for the rest of the season. 2005 was a heck of a year!

Thanks everyone- you ALL rock! B

Canadian Karen Community Regular

Congrats, Beverly!!!! Way to go!

That is quite an accomplishment!

Hugs.

Karen

Nantzie Collaborator

CONGRATULATIONS!!!

:D

Nancy

nettiebeads Apprentice

A Very BIG CONGRATULATIONS!!!! :D:D:D

Guest nini

That is a very big accomplishment! Congrats! I'm sure your mom would be so proud of you!

kevsmom Contributor

WAY TO GO! ! ! ! ! ! !

Cindy

Lisa Mentor

YEAH FOR YOU B, I ADMIRE ALL OF YOU THAT ARE CONTINUING WITH YOUR STUDIES. BRAIN FOG DID NOT HINDER YOU......................YOU MADE IT!!!!!!!

Proud of you. :rolleyes:

Lisa B

tarnalberry Community Regular

Congrats!

Matilda Enthusiast

..

Carriefaith Enthusiast

Congratulations! :) I know how it feels to be done of something that you worked so hard at. It's a great feeling!

Guest BERNESES

Thanks you guys- if we all lived near each other I'd invite you all over for a BIG gluten-free feast! So, I'm sending you all a big virtual hug instead :D ! B

Rusla Enthusiast

Congratulations Beverly! That is a big accomplishment and an even bigger one in the face of adversity.

i canary Rookie

Beverly,

I wanted to add my congratuations too! I want to get my masters, but so far haven't had enough relieve from the brain fog to do it. I've had to drop out twice now. You give me hope that I too can one day go further with my education.

Thank you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.