Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Pain & Extended Abdomen on Left Side


Andi

Recommended Posts

Andi Rookie

Hi Everyone, I need some help here.  I was diagnosed in 2002 with Celiac by Dr Peter Green.  Unfortunately, I could not continue after I retired because of insurance reasons.  Anyway, I am diagnosed in chronic pancreatitis last year.  I have a great doctor here in Florida and she sent me to a surgeon.  He was very nice and spent over a hour with my husband and I.  It seems I have pain on my left side next to my naval and my stomach extends quite a lot.  I take several medications and nothing seems to help.  Just had a colonoscopy a couple of weeks ago and my Dr said my colon is torque.  Endoscopy last year which showed I am compliant with my diet.  I have Barretts too.  The surgeon told me that he could do a laproscopic but 99% of the times they find nothing at all.  I have had several surgeriess on my stomach so they think it could be adhesions.  Has anyone out there had this problem?  If so what did you do.  I am going to be 70 next week and really  do not want this pain for the rest of my life.  All ideas and suggestions would surely be helpful.  Thank you all so much.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Hi Andi. So sorry you are suffering so much. I have a twisted intestine also. In my case it isn't real painful at this point it just feels like I have a towel running down my left side inside. An internal ultrasound showed my intestines are displaced. I have had adhesion surgery and that did give me some relief for a few years but as often happens they grew back.  I would go back to the surgeon. Maybe bring your husband with you as many doctors will discount how much discomfort a woman is experiencing. If this is interferring with your life then perhaps the laproscopy would not be a bad idea. There are risks with any surgery and you will want to consider them carefully. Perhaps there might be another test like a CT or MRI that they could do to figure out better what the issue is. I hope some others come on with some ideas for you. I hope you get some relief soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...