Celiac Disease, Comprehensive Test Results

[Moeie586]

Hi there! Maybe I am searching keywords wrong to find some clarity on these results. If anyone can shed light on what this means that would help a lot. I have my GI Endoscopy and Gallbladder test next monday, just looking for some input with these results before then... thanks:

Tissue Transglutaminase Antibody IgA Result Negative
Tissue Transglutaminase Antibody IgG Result Negative          

Gliadin (Deamidated) Antibody IgA 24.05  High
Gliadin (Deamidated) Antibody IgA Result  WEAK POSITIVE             

Gliadin (Deamidated) Antibody IgG Result Negative

[tessa25]

You only need a high on one test to get the endoscopy/biopsies to confirm celiac. You have a high so your endoscopy is the correct next step. Sorry, no more info beyond that.

[cyclinglady]

Whatever you do, keep consuming gluten daily! This is critical for the endoscopy  which is being done to obtain intestinal biopsies.  Make sure your GI takes four or more biopsies in the small intestine (more if he sees some inflammation in the stomach).

Okay, we are not doctors but we can share our personal experiences.  

Here is my story. Like you, I tested positive to ONLY the DGP IgA.  My biopsies revealed a Marsh Stage IIIB which means moderate to severe patches of villi damage.  It is not common that just the DGP IgA test is the only positive on the celiac panel (looks like you did not get the EMA, but I did not get a positive on that either);  however, it only takes one positive to move forward in the diagnostic process.    (Even in many follow-up tests, I am never positive on any of the other celiac blood tests, so it was not a fluke.) 

Gallbladder.  I had a non-functioning (no stones) gallbladder that was diagnosed via a HIDA scan (ultra sound only looks for stones).   I believe that if my celiac disease had been caught first, I would not have had to have gallbladder surgery.  I could be wrong though.  Family members tell me that our family is cursed with gallbladder issues (maybe celiac disease too).   They simply stop working (over a period of time) and they rot.  In my case, it was so infected that I had to have emergency surgery.  If I had been able to get my body to stop attacking myself, I might have saved my gallbladder.  If possible, it is good to keep all your body parts.  Just saying.....

Keep us posted.  Keep eating gluten.  You need to be on a full gluten diet for a solid two weeks.  Am I making this up?  No.  Here are some links, but you better start googling.  Your best defense is knowledge.  

http://www.cureceliacdisease.org/screening/

https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/

Nice to have an another person with an elevated  DGP IgA on the forum!  We are rare!  

 

Edited December 6, 2018 by cyclinglady

[Moeie586]

Thank you!!! Wow I cant believe how rare that is, I couldnt find any info on it! Thank you so much for all of that information!!!

I have issues with fibroids. so for the last 5 years of constant upset tummy pain after I would eat anything, I just always assumed the fibroids were causing it... never suspected anything else. But this past month, I decided to go see the doctor because I was having accompanied joint pain and weird eye burning sensations,  and he explained  to me that celiac disease or something similar can actually cause all of those symptoms at once. Crazy!

Ill continue my diet as normal for now... and after the endoscopy next week, I will post an update on what they find.

 

Thanks again!

[cyclinglady]

Fibroids?  Me too!   Happy to report that menopause solved them.