Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bechet's Disease

jenvan

By jenvan
in Related Issues & Disorders

Recommended Posts

jenvan Collaborator
jenvan
Posted

I have a friend who was tentatively diagnosed with Bechet's disease--another autoimmune. Just wondering if anyone here has any info or experience with it...I'm trying to do some research for her.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

It was on Mystery Diagnosis recently. There's all sorts of information on the Web. Have you googled it yet?

Guest CD_Surviver
Guest CD_Surviver
Posted
Have you googled it yet?

i wounldn't use google i would use metacrawler.com. metacrawler searches the search engienes and so you get more from your search. like it searchs google and yahoo and jeeves and a few others i can not remeber right now. but i love i use it for all my research papers and things.

Lauren

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

I just looked it up on Yahoo. It's actually called Behcet's disease and was first discovered about 200 years ago in Turkey. Nobody really knew about it then of course. The name "Behcet's disease" it actually got (if I can recall it right) 1932, when they found out that some of the main symptoms were mouth and genital ulcers. Very interesting...

Hey, I just found this:

"Behçet's disease was first described in 1937 by Dr. Hulusi Behçet, a dermatologist in Turkey."

So it wasn't 1932, it was 1937...

Here are the symptoms: Most symptoms of the disease are caused by inflammation of the blood vessels. The five most common symptoms of Behçet's disease are mouth sores, genital sores, other skin lesions, inflammation of parts of the eye, and arthritis.

bluelotus Contributor
bluelotus
Posted

Sounds painful. Hope your friend can find relief soon.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

They also mentioned that there is no known cure for it yet... :huh:

jenvan Collaborator
jenvan
Posted
  • Author

Thnx guys...I have done some internet research, just didn't know if anyone here had it or knew someone who did. She is pretty miserable to say the least..and has some crohn's type symptoms...just trying to research and see where all these things might intersect....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Gee, I had never heard of it and it sounds awful. Hope your friend has a Dr. that is up on the latest info. about it and that she doing better soon.

zakismom Newbie
zakismom
Posted

I do know someone with it but I'm not close enough to ask about it. What I have seen of it so far is not very good. I hope your friend doesn't get the more severe symptoms. Another woman I know was tested for it but they ruled it out. She is also a diabetic (type 1) and has a son with Aspergers.

jenvan Collaborator
jenvan
Posted
  • Author

zakismom-

thanks for the info--sounds like your friend isn't doing really well... did they ever mention if they are on meds?

zakismom Newbie
zakismom
Posted

I'll see what I can find out and let you know.

  • 3 weeks later...
debimashni Newbie
debimashni
Posted

I was diagnosed with Behcet's Disease in 2001. I was also diagnosed with Celiac Disease in 2003 and autoimmune hepatitis last November. I have Remicade IV treatments every 6 weeks...it helps with the pain, but my quality of life sure isn't what it used to be. Feel free to email me, if you would like more info.

debismashni@aol.com

jenvan Collaborator
jenvan
Posted
  • Author

I definitely will drop you a line--thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,048
    • Most Online (within 30 mins)
      7,748
    Delpickle1
    Newest Member
    Delpickle1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.