Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Getting Frustrated Again!

danikali

Recommended Posts

danikali Enthusiast
danikali
Posted

Okay, so I've been eating nothing but WHOLE FOODS. Here is a list in the past few days:

Apples

Grapes

Oranges

Bananas

carrots

celery

onions

beans

tomatos

potatos

rice

(also Pacific almond milk)

Nuts, of all kinds

rasins

just water

meat, fish with only salt and pepper

asparagus

and more veggies I can't think of right now

WEll, today I had

1 apple

2 bananas

peanut butter and carrots

peanuts/almonds/rasins

1 potato

And my knee pains are back so bad when I sit down, and I have foul gas again. I've had it for the past 4 or 5 days or so!

Yesterday, all I had was applesauce, rice cakes, peanut butter and carrots! And still.........

I am taking

calcium/magnesium/zinc supps.

glucosamine supps.

acidopholis

and they are all 'supposed' to be gluten/soy/dairy/etc. etc. free!

What the heck am I doing wrong????

I haven't changed any of my lotions or make-up. I did change my toothpaste for one day to "Go SMile" whatever that is, and it didn't have any weird things in the ingredients. So why are my symptoms slowly coming back????/ I was doing so well! I'm going to start eating everything again if this keeps happening! I'm so, excuse me, but PI$S#D off!!!!!!!!!!

I'm leaving work right now, but if anyone could please help me with any advice at all, I would love you so much! I won't get a chance to reply tonight, but Help me!!!

P.S. I had that toothpaste about a week ago already and the beans and all of the 'gassy' foods on Saturday. But my symptoms started last week, and they just aren't going away!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

It sounds to me like you have other intolerances. You're eating quite a variety so it would be hard to pinpoint the cause. It could really be anything on that list causing your symptoms. This is why food diaries can be helpful. Have you had any testing done for food sensitivities? You could be eating the most healthy gluten-free diet but still feel sick if your body isnt liking something in your diet. I would start eliminating some of those foods temporarily. The ones I'd probably exclude are the nuts (including peanut butter), potatoes, tomatos and bananas since those are more allergenic than the rest. You could see how you feel after eliminating a few things for a couple weeks and then try adding them back in one at a time...like about 4 days apart. If you notice no difference from any of those foods focus on some of the other foods on your list. Its not easy figuring out food intolerances and it takes some time.

darlindeb25 Collaborator
darlindeb25
Posted

Dani--To begin with, your body hasnt had time to heal yet. Maybe you are eating too much fruit and too much gassy veggies. I cant eat gassy veggies and I have been gluten-free for over 4 yrs. I cant eat tomato in any form. Are you dairy free too? In the beginning I ate cottage cheese with fruit in it a lot of the time. I had my rice cake with peanut butter every morning, still do, to this day. Dont give up--it hasnt been 2 months yet--keep at it hun. Deb

Guest Viola
Guest Viola
Posted

I've had major problems with gluten contaminated nuts. Dry roasted peanuts and all other nuts have gluten! Make sure of your nut source and double check. The only ones I seem to get away with are Planters cashews and any nut in the shell.

Sorry ... that's all other nuts that are dry roasted! :rolleyes:

Carriefaith Enthusiast
Carriefaith
Posted

I would guess that you may just need more time to heal. My symptoms continued for about one year after I started the diet. For the first 4 months or so, I was sick almost every day. Slowly, I started having good days and bad days. And eventually, my symptoms just disappeared.

Also, are you 100% sure that the Pacific almond milk and nuts are safe? I believe that I have been contaminated from two products that have "gluten free" on the label. One of those companies even stated on their website that they detect gluten in their "gluten free" products.

mookie03 Contributor
mookie03
Posted
Dani--To begin with, your body hasnt had time to heal yet. Maybe you are eating too much fruit and too much gassy veggies. I cant eat gassy veggies and I have been gluten-free for over 4 yrs. I cant eat tomato in any form. Are you dairy free too? In the beginning I ate cottage cheese with fruit in it a lot of the time. I had my rice cake with peanut butter every morning, still do, to this day. Dont give up--it hasnt been 2 months yet--keep at it hun. Deb

Dani :( Im so sorry! but i agree w/ deb-- veggies and fruits are really tough on ur digestive system, id try to stick to easier foods to digest. And give it some time-- feel better!!!

Bonnie Explorer
Bonnie
Posted

Dani,

I have been gluten-free for 9 months now and am still having problems with other intolerances.

As the others mentioned, fruit can be a problem. Any fruit other than bananas upset my stomach - gas and bloating.

I am VERY intolerant of rice so perhaps eliminate that for a while too.

I also have a problem with sulphites which are often on fruit and especially raisins. Peanut butter can be full of sugar which can also cause intestinal gas and bloating.

No easy answers to your problem I'm afraid. Just stick with it - it will get easier! :)

P.S. Darlindeb - I was wondering if I have a problem with tomatoes - what symptoms do you have if you ear them?

Yvonne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

My guess would be that you are still healing. It didn't matter what the heck I ate (all gluten-free) when I started the diet, I just felt like crap from being sick for so long. It took me a few months to feel somewhat normal. I remember I would eat very simple, plain things and then freak out because I was still feeling awful.

If, after being super gluten-free for awhile, then I would look into other intolerances. It seems like there are many people on this board with multiple intolerances, and many that are "only" Celiacs.

Hope that you start feeling better soon.

Rusla Enthusiast
Rusla
Posted

Dani,

I have been gluten-free over a month and I still get that from time to time also. I also get it when I get a minor glutening, like from the desk at work. Perhaps your glucosamine or other supps have a wheat based filler.

danikali Enthusiast
danikali
Posted
  • Author

Thank you everyone, so much!

Well, I'm feeling a little better today. I couldn't sleep last night at all due to really bad heartburn (like a knife going into my chest) and stomach pains. I kept getting up to go to the bathroom, too. Anyway, for some reason, in the middle of all of my thoughts, I heard my Mom saying "you need something to coat your stomach from all of the acid, have one glass of milk, REAL milk." I don't know what came over me, but I did it. I had one glass of my fiance's REAL milk, and guess what? IT HELPED!!!!!!!!!!!!!!!!!!!!!

I have been staying away from dairy because I have a problem with constipation and always thought I had a problem with dairy. But now I'm wondering if I really do.......I just couldn't believe how 'normal' I felt after drinking that huge glass of milk. I haven't felt so 'normal' laying down in months! (that's usually when I get the worst heartburn)

So, I'm thinking maybe my diet just isn't balanced enough..........all I'm really eating these days is a lot of fruits, a lot of veggies, some starchy things like rice cakes and potatos (barely any though), and A LOT OF NUTS and peanut butter! The peanut butter is natural organic and in the ingrediants only says 'peanuts.' But I had no clue that roasted nuts that don't specifically say gluten free, are made with gluten! That's horrible! I could be glutening myself everyday! I do have some nuts in the shells at home, I guess I will stick to those and see how it goes. But I've been buying those bagged nuts and mixes that you buy at any convience store or deli.......hmmmm......

Also, today, I was thinking about getting sushi, is that okay for me? I know if I get the 'imitation' meats, there could be gluten in there, but what about the raw salmon, avocado and cucumber sushi? If I have him make it for me in front of me, would this be okay??

I also made an appointment to see a dietician because I need some guidance on balanced meals. And I think I'm going to have one serving of real milk or yougart a day to help break down the acid. I don't want to eat a lot of it, but it really really really really really helped last night!

lonewolf Collaborator
lonewolf
Posted

I suffered from really bad arthritis for a while and discovered that potatoes (and all nightshade vegetables) and peanuts were not good for me. I survived for quite a while on fish (just salt), rice, some vegies and fruits and sunflower seed butter. It helped a lot. I have been able to add potatoes back in, but still avoid peanuts (as well as gluten, dairy, citrus, eggs and soy) and have no joint pain whatsoever. You probably need to continue to be REALLY restricted until your system has more of a chance to heal, then start adding back things you think will be safe.

Good luck!

Liz

danikali Enthusiast
danikali
Posted
  • Author
I suffered from really bad arthritis for a while and discovered that potatoes (and all nightshade vegetables) and peanuts were not good for me. I survived for quite a while on fish (just salt), rice, some vegies and fruits and sunflower seed butter. It helped a lot. I have been able to add potatoes back in, but still avoid peanuts (as well as gluten, dairy, citrus, eggs and soy) and have no joint pain whatsoever. You probably need to continue to be REALLY restricted until your system has more of a chance to heal, then start adding back things you think will be safe.

Good luck!

Liz

May I ask why so many Celiacs and gluten intolerant people have problems with peanuts? I'm staying away from all nuts for a few days now, and I'll add the peanuts last but can peanuts alone really cause stomach and acid problems? Do nuts have acid? And are ALL roasted nuts made with gluten?

Rachel--24 Collaborator
Rachel--24
Posted

I agree with Lonewolf about being restrictive until you've been gluten-free awhile. I also think you're asking for trouble with the dairy. Every doctor I've seen stated that dairy is off-limits during the first months. Personally, I dont think its a good idea especially if you're having problems.

danikali Enthusiast
danikali
Posted
  • Author
I agree with Lonewolf about being restrictive until you've been gluten-free awhile. I also think you're asking for trouble with the dairy. Every doctor I've seen stated that dairy is off-limits during the first months. Personally, I dont think its a good idea especially if you're having problems.

Then how come the milk helped me so much last night? I don't get it........aren't some Celiacs okay with dairy? At least every once in a while?

Rachel--24 Collaborator
Rachel--24
Posted
I'm staying away from all nuts for a few days now, and I'll add the peanuts last but can peanuts alone really cause stomach and acid problems?

Basically any food intolerance can cause stomach problems and also slow healing process.

lonewolf Collaborator
lonewolf
Posted
May I ask why so many Celiacs and gluten intolerant people have problems with peanuts? I'm staying away from all nuts for a few days now, and I'll add the peanuts last but can peanuts alone really cause stomach and acid problems?

Nuts can just be plain hard to digest. As for peanuts and joint pain, they contain something called Arachodonic acid, which can cause or make worse inflammation. Peanuts also contain a lot of mold - even organic ones. They make lots of lists of "foods to never eat".

Liz

mookie03 Contributor
mookie03
Posted

Dani,

While i agree that dairy can be a problem for some once they go gluten-free, i just have to play devils advocate for a second-- i thought i was lactose intolerant my whole life until i realized it was just gluten, and now i have found that having a glass of milk can help me a lot when im glutened or just not feeling 100%. The verdict is still out on dairy and soy for me- sometimes i think it helps, sometimes i think it hurts. I think the lesson is to listen to your body and keep in mind that every food will help or hurt at some point as your body tries to heal. I always just eat what my body craves- if it is craving milk, i find that milk makes me feel better, and the same with meat, sugar, fruit, etc.

danikali Enthusiast
danikali
Posted
  • Author
Dani,

While i agree that dairy can be a problem for some once they go gluten-free, i just have to play devils advocate for a second-- i thought i was lactose intolerant my whole life until i realized it was just gluten, and now i have found that having a glass of milk can help me a lot when im glutened or just not feeling 100%. The verdict is still out on dairy and soy for me- sometimes i think it helps, sometimes i think it hurts. I think the lesson is to listen to your body and keep in mind that every food will help or hurt at some point as your body tries to heal. I always just eat what my body craves- if it is craving milk, i find that milk makes me feel better, and the same with meat, sugar, fruit, etc.

I agree, and I remember you saying this at dinner when we went out. And the more I thought about it, I realized that the times when "milk" hurt me the worst, was when I would eat it with cereal! Duh! Regular, gluten containing ceral! And then I tried the soy milk which was okay at first, and I liked it so much that I would drink it straight (no cereal-I never used to drink a glass of regular milk, plain, I just never craved it) and that's when I noticed that it bothered me a lot. So someone suggested casein because that could be in soymilk. So I decided I should not have all dairy. But now, I'm realizing, it's probably the soy because other soy products bother me! Sheesh!

Anyway, I think I am going to just have dairy in moderation for now. But if I get those pains tonight, I'm def. going straight for the REAL milk again. That REALLY REALLY REALLY helped! I couldn't believe it! I even woke Danny (my finace) up to tell him what just happened! hahah :P

Guest Viola
Guest Viola
Posted

No ... not all roasted nuts have gluten, just if it says DRY roasted. Also smoked almonds have gluten.

I don't have a problem with dairy, but lots do. If you can drink milk with no problems, then by all means go for it :P

danikali Enthusiast
danikali
Posted
  • Author
No ... not all roasted nuts have gluten, just if it says DRY roasted. Also smoked almonds have gluten.

I don't have a problem with dairy, but lots do. If you can drink milk with no problems, then by all means go for it :P

I can't belielve I never knew this! Thank you so much! There are so many things to learn, it's insane!

jerseyangel Proficient
jerseyangel
Posted

Hi Dani--To add my 2 cents to this, I think that because we, as Celiacs, are routinely told to stay away from dairy for the first 6 months, we tend to automaticly blame it for the additional symptoms we may get after going gluten-free. Now, I'm dairy free, by choice, since before my Dx. But the point of all of this eliminating and experimenting with the different foods is to find the combination that works for you. I would listen to your body and go with the milk if you feel it's helping. The worst thing that can happen is that you find that it is not helping as you thought and then you can always cut it back out. I had a strange thing happen today--I've been cutting out all grains and sugar the past couple of weeks in order to lose a little weight and help with my lingering upper GI symptoms. The last few days, I've had a lot of pressure, and gas that would build up and not go anywhere. Today, I said--the heck with it and had several Dove dark chocolate pieces. And I feel better! The pressure is releasing upward and it happened after the chocolate. I don't understand how, but I really don't care. Hope you are on to something and get some lasting relief. :)

danikali Enthusiast
danikali
Posted
  • Author

Thank you so much Patti! That makes me feel a lot better knowing that depriving myself of everything may only be making things worse. My stomach is completely normal today, after having weird stuff get worse and worse everyday for the past week. (I think it also may be those nuts that I've been eating, dry roasted). I think the most frustrating part of Celiac is all of the hidden sources of gluten, and of course finding other food intolerances. But you think you're doing so well, and then all of a sudden, you are feeling like crap again, and you don't know why.

Thanks everyone for replying to me. I totally knew that you would all understand and help me figure SOMETHING out. I got a lot of answers today, and last night, by listening to my body. I am going to have a little dairy once a day because it just helped so so much that I can't ignore it.

Thanks!!! :D

jerseyangel Proficient
jerseyangel
Posted

I know--it's so depressing to be going along so well and then hit another wall. Those dry roasted nuts were probably trouble, it's good that you found out about those. Keep feeling good :D

celiacat35 Newbie
celiacat35
Posted

Well, just to add to the nuts concern.I bought a container of mixed nuts not thinking that it may have any glutin, but once I was reaching for it I found a warning that it may contain WHAET!.

So becarefull with some brands.

Celiacat35

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,856
    • Most Online (within 30 mins)
      7,748
    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.