Picked Up A Copy Of Labs

[4tomorrow]

Prior to my testing I was living on Cream of Rice for about three weeks. I doubt that it would have made my numbers this low, but wanted to get others opinions. Plus I was wondering if it would still be possible to be gluten sensitive or gluten intolerant without these tests being positive.

Antigliadin Abs, IgA <1.............positive is >4 u/ml

Antigliadin Abs, IgG 4................positive is .9

ttG <1......................................positive is weak 4-10, strong >10

Endomysial Antibody IgA Negative

Immunoglobulin A, Qn, Serum 249 mg/dl .........Normal 70-400

Thanks everyone for taking the time to help me figure all of this out. The doctor that has my biopsy results isn't open again until Monday. So I won't get to look at those until then.

Also was wondering if I'm really going to learn anything new with the Enterolab kit. Thanks.

[tiffjake]

Prior to my testing I was living on Cream of Rice for about three weeks. I doubt that it would have made my numbers this low, but wanted to get others opinions. Plus I was wondering if it would still be possible to be gluten sensitive or gluten intolerant without these tests being positive.

Antigliadin Abs, IgA <1.............positive is >4 u/ml

Antigliadin Abs, IgG 4................positive is .9

ttG <1......................................positive is weak 4-10, strong >10

Endomysial Antibody IgA Negative

Immunoglobulin A, Qn, Serum 249 mg/dl .........Normal 70-400

Thanks everyone for taking the time to help me figure all of this out. The doctor that has my biopsy results isn't open again until Monday. So I won't get to look at those until then.

Also was wondering if I'm really going to learn anything new with the Enterolab kit. Thanks.

My last batch of blood work, after one month of gluten-free was totally normal, and my doc couldn't understand it. He said that there should have been some ttG left in there, but there wasn't. I didn't need him to find something for me to know that gluten-free was the way to be. And he understood that I had been on the diet and was taking it seriously, so he said that he was going to list it in my records as gluten intolerent, which is fine my me, because I have already had the enterolab test, the Lame Advertisement test, and learned that Celiac runs in my family (My paternal grandmother, and my father have it). There isn't a pill that I wanted him to give me, so I am not really worried what he thinks about the tests, because I already know that I am going to have to live gluten-free.

You might be doing a really good job of keeping the gluten out and so your numbers are down quickly. Thats what happened with me. Good for you if that is the case!!!!

[jenvan]

4tomorrow--i'm a little confused. so have you been gluten-free for several weeks or were you still eating gluten? pls clarify for me, then i'll comment on labs. thnx!

[4tomorrow]

I am very excited about my enterolab test. I need an answer. I am unfortunately one of those people that need a diagonisis. Mostly because it will help me w/ people who don't think it's necessary for me to go Gluten Free. I'm currently eating a normal diet. The diarrhea isn't too bad right now at all. I think that has more to do with the Librax and the Nexium though.

I fully intend to forward my results from my entoerlab testing to my GI. She was not happy when I brought it up. She basically went on a tangent about biopsy being the "gold standard" and ushered me out the door. What I didn't get is that if I want to spend my money on it, what does it really matter to her? I expected her to be more professional than that.

I am very thankful that I got the gene test also. That way I will know for sure whether or not it is possible that I could have it.

I had been living on cream of rice for about three weeks at the time that I took the test. Before that I had been eating a normal diet. I am currently eating normal diet. The librax has taken care of the pain so that I can function until I find out what's wrong. I just don't want to be on the librax any longer than I have to so I am trying to find out what's wrong as quickly as possible.

Thanks in advance for taking the time to give your opinion.

Also I don't know if you saw in my other post that when she did my endoscopy she saw flattening but then said that my biopsies were inconclusive so she said I didn't have celiac.

[CMCM]

I am very excited about my enterolab test. I need an answer. I am unfortunately one of those people that need a diagonisis. Mostly because it will help me w/ people who don't think it's necessary for me to go Gluten Free. I'm currently eating a normal diet. The diarrhea isn't too bad right now at all. I think that has more to do with the Librax and the Nexium though.

I fully intend to forward my results from my entoerlab testing to my GI. She was not happy when I brought it up. She basically went on a tangent about biopsy being the "gold standard" and ushered me out the door. What I didn't get is that if I want to spend my money on it, what does it really matter to her? I expected her to be more professional than that.

I am very thankful that I got the gene test also. That way I will know for sure whether or not it is possible that I could have it.

I had been living on cream of rice for about three weeks at the time that I took the test. Before that I had been eating a normal diet. I am currently eating normal diet. The librax has taken care of the pain so that I can function until I find out what's wrong. I just don't want to be on the librax any longer than I have to so I am trying to find out what's wrong as quickly as possible.

Thanks in advance for taking the time to give your opinion.

Also I don't know if you saw in my other post that when she did my endoscopy she saw flattening but then said that my biopsies were inconclusive so she said I didn't have celiac.

Personally, I think you have a doctor who is fairly ignorant about celiac disease. She has her little textbook two paragraphs of information and she is going by that. If you don't fit the textbook profile (distended belly, wasting, blah blah blah) you don't have it. In Dana Korn's book "Wheat Free, Worry Free" she has a long article written by a doctor explaining why doctors don't want to diagnose celiac, and why they are unable and unwilling to pursue it in most cases. Very interesting and enlightening reading.

I decided before getting into an endless and useless and very expensive clueless doctor cycle that I would just proceed by learning as much as I could on my own and I got the Enterolab full panel test on my own. It was far more informative and vastly cheaper than going down the other road. I instinctively knew I had problems with both dairy and gluten, and my mom is celiac, so it wasn't hard to put two and two together. But I'm a person who wanted something definitive, so the Enterolab test was worth it to me...and it told me a whole lot. Frankly, at this point I a great deal more about celiac and gluten sensitivity than any doctor I know. I didn't see any sense in paying them to hum and haw and order expensive tests that I already knew might not show anything at all (since I had been minimizing gluten for over a year, and had totally eliminated it for 7 weeks or so at that point). The gene test right off the bat shows that you have a predisposition to celiac or gluten sensitivity (in my case, I had both genes). That knowledge alone means you should not eat gluten, end of discussion. The other tests shows if you have antibody/autoimmune reactions going on right now. The third test shows if you have malabsorption occurring. Additionally, you get a casein sensitivity test.....very useful because casein sensitivity has a high correlation rate with gluten/celiac sensitivity.

Armed with this knowledge, you can figure out what to do and you don't need a doctor or to spend huge amounts of money to get similar knowlege. And remember, the blood test can be quite inconclusive. So can the biopsy, which is expensive and invasive. A biopsy can positivity identify damage, but it can't completely rule it out. Many celiac specialists are now arguing against doing the biopsy at all. All these discussions take time, meanwhile. If you are in "inquiring mind" who wants to know, do the Enterolab tests as a starting point. If that shows the genes and reactions occurring, DO THE GLUTEN FREE DIET and that should tell you what you need to know!

Doctors know a little about a lot of things, but there are equally a lot of things about which they know NOTHING at all. Celiac is apparently one of the latter.

[aikiducky]

I am very excited about my enterolab test. I need an answer. I am unfortunately one of those people that need a diagonisis. Mostly because it will help me w/ people who don't think it's necessary for me to go Gluten Free. I'm currently eating a normal diet. The diarrhea isn't too bad right now at all. I think that has more to do with the Librax and the Nexium though.

You might feel like you need a piece of paper to convince other people, but are you actually going to go around waving that piece of paper at them if they doubt you? the only thing that is needed for other people to believe you is that you need to be convinced yourself. People pick up on those things subconciously, if you just say firmly, I can't eat gluten, it makes me ill and miserable... after a while people get used to it. I'm not saying don't pursue further testing if you want - but do it for yourself, not other people.

Also I don't know if you saw in my other post that when she did my endoscopy she saw flattening but then said that my biopsies were inconclusive so she said I didn't have celiac.

It doesn't sound like your doctor is very knowledgeable about celiac, so who knows what she actually saw? It might actually have been mild damage indicating beginning celiac? Would it be possible to get a second opinion on the biopsy results?

Pauliina

[4tomorrow]

I have an appointment with supposedly the best specialist in town. It's not until the end of March though.

I need that piece of paper because of my mother in law. I know that sounds stupid but she is conviced that there isn't anything really all that wrong with me. She just doesn't get it. I love her dearly. I lost my parents when I was 14, so when I met my husband 7 years ago she became like my own mother. So in many ways we argue like mother and daughter and I need that paper to say "see I'm not making something out of nothing." I know that sounds crazy but I'm just turning 26 this week and she means the world to me, she's taken care of me like one of her own. But.......she's the type that wants the proof. Amazing though because she has IBS and we are all very careful for her in our cooking.

It's also for me, I want to see on paper that I haven't been nuts this whole time. I would also like to see if there is any malabsorbtion, or milk sensitivity.

As far as my other doctor goes, I don't know. I wrote her a letter explaining why I am displeased. I am not looking for her to become more sensitive to me. Just hopeful that she will be able to help someone else better the next time.

[jenvan]

4tommorrow-

1st off, would it be possible to get a mannitol test? It is another way to measure damage to the intestines... read this article, might be another option for you: https://www.celiac.com/st_prod.html?p_prodid=52

I will say if you feel better minus gluten, then stick with the gluten-free diet. Those who need a gluten-free diet, but don't have the "classic" celiac symptoms or test results often are told they can eat a regular diet. (hence your doc touting the gold standard and not leaving room for otherwise) You may be one of those folks.

If I am reading your results correctly from what you've written, your IgG levels are the only ones which tested high. (Did you mean your result was 4 and a positive is above .9? Or should that have been 9?) Its really hard to say what's going on… But one thought… People have different bodies and heal at different rates. Going gluten-free for 3 weeks could have been long enough for you to begin healing and not get accurrate test results. IgG antibodies take the longest to become elevated, and they are also the last to fall back to normal. So, its possible if they are still high, they are a sign that your numbers were higher before switching to the diet...and that your intestines were on the road to healing. However, if I'm reading your results wrong, there goes that theory

[CMCM]

I have an appointment with supposedly the best specialist in town. It's not until the end of March though.

I need that piece of paper because of my mother in law. I know that sounds stupid but she is conviced that there isn't anything really all that wrong with me. She just doesn't get it. I love her dearly. I lost my parents when I was 14, so when I met my husband 7 years ago she became like my own mother. So in many ways we argue like mother and daughter and I need that paper to say "see I'm not making something out of nothing." I know that sounds crazy but I'm just turning 26 this week and she means the world to me, she's taken care of me like one of her own. But.......she's the type that wants the proof. Amazing though because she has IBS and we are all very careful for her in our cooking.

It's also for me, I want to see on paper that I haven't been nuts this whole time. I would also like to see if there is any malabsorbtion, or milk sensitivity.

As far as my other doctor goes, I don't know. I wrote her a letter explaining why I am displeased. I am not looking for her to become more sensitive to me. Just hopeful that she will be able to help someone else better the next time.

I can understand your situation wanted to satisfy your mother in law, but just keep in mind that this is YOUR body and YOUR life. My mom went thru 10 years of everyone thinking she was nutty with her complaints....and at that time she had not idea celiac disease even existed, she just was a mess physically. Even the doctors would say things like "Well now, I guess we'll just have to call this "Ann's disease", and the basic implication was that it was ALL in her head.

Wanting proof for yourself is a whole other thing. I myself kind of "knew", but I wanted to see it on paper for a lot of reasons. At the very least, even if you don't do the Enterolab complete panel, at least do the gene test. If you don't have the genes, then that's that. If you DO have a gene, the message is then clear: Don't eat gluten any more.

You might also want to buy the book "Dangerous Grains" and after you read it, give it to your mother in law to read. Knowlege is everything when it comes to gluten.

[4tomorrow]

My kit just came! I'm going to send it back in tomorrow. I will be glad to know for sure. That way there won't be any wondering.

I'll let you know when I get the results. How long does it normally take? They say three weeks but I didn't know if they were just giving themselves extra time.

[CMCM]

My kit just came! I'm going to send it back in tomorrow. I will be glad to know for sure. That way there won't be any wondering.

I'll let you know when I get the results. How long does it normally take? They say three weeks but I didn't know if they were just giving themselves extra time.

I sent my test in (it was picked up) on Jan. 3, and they emailed my results on Jan. 18, so that's about 2 weeks. I later ordered the eggs/yeast/soy test (on the 24th of Jan.) and I still don't have results for that one. At the time I ordered that test they said 2 to 3 weeks for results. I think they are currently kind of busy. I also noticed the price went up $20 (I paid $349 and now it's $369).

Did you order the full panel test?