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Non Celiac/gluten Intolerant

Guest Kalynn

By Guest Kalynn
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest Kalynn
Guest Kalynn
Posted

Can anyone tell me what tests would be done to determine only an intolerance to gluten? My blood tests came back negative for Celiac, but I've been gluten free since October. I know people think I'm crazy, but if I eat things with gluten in them, it tears up my stomach for a while. I've gained few of my 20 pounds back (lost unintentionally) and am feeling better now than I have in almost a year. I would, however, like to know if it is a gluten intolerance.

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Mango04 Enthusiast
Mango04
Posted

It looks like you have your answer already. If you notice positive results when you eliminate gluten from your diet, you should not eat gluten (and I gaurantee you nobody here thinks your crazy when you say gluten tears up your stomach for a while :lol: ) I believe Enterolab is an option though if you really feel the need for some sort of test result, but you don't need an official diagnosis to choose a gluten-free diet :)

Guest Kalynn
Guest Kalynn
Posted
It looks like you have your answer already. If you notice positive results when you eliminate gluten from your diet, you should not eat gluten (and I gaurantee you nobody here thinks your crazy when you say gluten tears up your stomach for a while :lol: ) I believe Enterolab is an option though if you really feel the need for some sort of test result, but you don't need an official diagnosis to choose a gluten-free diet :)

Will the Enterolab results be accuarate after being gluten-free?

Mango04 Enthusiast
Mango04
Posted

They say if you use Enterolab testing there's no need to reintroduce gluten into you diet

www.enterolab.com

:)

Rachel--24 Collaborator
Rachel--24
Posted

Yes, you can be off gluten for several months and still test with Enterolab. I was off gluten 4 months prior to my test and it came back positive.

slpinsd Contributor
slpinsd
Posted

Kalynn:

I also had only mildly postive bloodwork, only IgG. For 8 years, my stomach is torn up too after I eat something like pizza or pasta. What else could it be? Have you had food IgG testing done? It could be that type of reaction, or to wheat. But I agree, if you have seen positive results from the diet, keep on it. I also ordered the Enterolab testing for peice of mind, and I am currently gluten-free. The testing also includes a genetic test if you get the whole package. Enterolab says their stool testing is more sensitive and it shows up in the stool first. Also, there is always chance for a false negative with the blood testing.

I'm dealing with weight loss issues, as well. I have a history of several times of unintended weight loss (10-20 lbs at a time- 25 over the past 8 yrs), and since I went gluten-free though, the weight loss keeps going. Hang in there.

Also, Meredith, did you have positive AGA IgG or IgA? Those are indicative of gluten sensitivity. The TtG is more specific for Celiac, but you could still have Celiac and test negative for this.

Rachel- was your bloodwork negative for all 3, or just TtG?

Rachel--24 Collaborator
Rachel--24
Posted
Rachel- was your bloodwork negative for all 3, or just TtG?

I didn't have an IgG test. I was tested for anti-gliadin IgA and tTG IgA.

I've had IgG food testing done which showed nothing and recently had some other unrelated bloodwork done. After those results my doctor told me I'm a low-immune responder. My IgG is too low compared to most people. Maybe this is why my IgG food sensitivity test came back with nothing significant...I dont know. I also dont know if this affects my IgA as well. I was never tested for IgA deficiency.

My Enterolab results were positive but the numbers were fairly low....totally out of proportion with my malabsorption score which was close to being severe. I did the egg, yeast and casein tests with Enterolab as well and came back normal for those....although I cant eat them. My doctor said I'm unable to test positive due to my low-immune response. If this is true I wonder what the actual #'s would have been regarding my gluten testing if I had a higher immune reponse. I think I should get the IgA deficiency test just so I'll know for sure.

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CMCM Rising Star
CMCM
Posted
Can anyone tell me what tests would be done to determine only an intolerance to gluten? My blood tests came back negative for Celiac, but I've been gluten free since October. I know people think I'm crazy, but if I eat things with gluten in them, it tears up my stomach for a while. I've gained few of my 20 pounds back (lost unintentionally) and am feeling better now than I have in almost a year. I would, however, like to know if it is a gluten intolerance.

A blood test is not necessarily the final word on whether or not you have celiac. I would really suggest the full panel offered by Enterolab. Thru that test, I was able to find out that I have TWO genes....a celiac one and one for gluten sensitivity. I found out I was casein sensitive as well. With Enterolab, they say you can accurately test when you haven't had gluten for up to a year. When I got tested, I had been off gluten for about 7 weeks or so. If you don't want to do the full panel (which includes the gene test and the casein test) for $349, you could just do the gene test for $149, and that would tell you about the gluten sensitivity. If you are having identifiable symptoms,however, you might be well served by the full panel test. I always thought I was lactose intolerant (well, perhaps I could be that too), but I was surprised to find out about the casein intolerance. I wouldn't have known that without the test. According to Enterolab, if you are casein intolerant you also have to avoid dairy because casein can cause intestinal damage the same as gluten can.

A number of years ago I got a blood test for celiac (because my mom has it), and while I don't really know if my doctor ordered the proper tests, they did come back "negative." Yet my symptoms persisted, and it wasn't until I did the Enterolab test that I got the full picture.

Mango04 Enthusiast
Mango04
Posted
And Meredith- I'm a fellow San Diegan too!

HI! I was thinking of starting a thread to look for other San Diegans on here. It's good to know there's atleast one other person from sd :)

Kalynn - Good luck w/ the testing. Hope you find answers you're looking for. I've ordered the gene test from Enterolab myself and am still waiting for the results.

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

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    • trents
      Accuracy of testing concerns

      By trents · Posted

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    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

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