Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi - I'm New Here

Thankagirl

By Thankagirl
in Coping with Celiac Disease

Recommended Posts

Thankagirl Rookie
Thankagirl
Posted

I have been to this site thousands of times and not realized there was a message board. I found out about my gluten intollerance about 5 years ago and have struggled with my love of food verus feeling sick constantly. I am so glad you all are here to support and share.

My mom just found out she has the same problem and it seems like every one meet knows at least one person with this.

I look forward to meeting you all!

Sarah

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

Welcome to the board Sarah you will find lots of good information and recipes on this site.

floridanative Community Regular
floridanative
Posted

Welcome Sarah - we're glad you found the board! I'm a newbie to the diet and after my biopsy I asked my Mother to get tested. She says she will (been looking for what's wrong for over two years to no avail) but she recently had a beach vacation and she also has a cruise coming up in the summer so I'm looking for that to be her next excuse as to wait to get tested. How did you get your Mother to get tested, if you don't mind my asking?

tarnalberry Community Regular
tarnalberry
Posted

welcome to the board! I'm glad you found us. :-)

jerseyangel Proficient
jerseyangel
Posted

Welcome, Sarah :)

plantime Contributor
plantime
Posted

Welcome to the board! We are always glad to help and listen, and especially glad to make new friends! :D

Canadian Karen Community Regular
Canadian Karen
Posted

Hi Sarah! Welcome to the board! There's a bunch of really great people here with a vast amount of knowledge about celiac. It's a great resource!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

maryn Newbie
maryn
Posted
Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

I am new too, and this is an awesome website. I am really excited to be able to chat withg people who understand. I have great friends, but unless yo go through it, you just don't understand. My son has been gluten-free for 4.5 years now. It seeems even hard to find a doctor who can really help. So, I am excited to be able to relate with people who can really relate. Thank You!

Thankagirl Rookie
Thankagirl
Posted
  • Author

thank you for your warm welcome!

How did you get your Mother to get tested, if you don't mind my asking?

My mom is a smart woman and knew from all I had been through that it was very likely that she had the same problem. She did it all on her own and is doing much better. She had gotten to an extrememe point before getting tested but the tests - as with me- weren't really conclusive. She started the diet and started feeling a lot better pretty quickly.

Sarah

elonwy Enthusiast
elonwy
Posted

Thats awesome that your mom has gone Gluten Free. My mom also has, after inconclusive tests, and is miraculously feeling better. I think she's still fighting a little bit, but she's doing really well and has jumped right into gluten free baking, which is nice :)

Welcome to the forum, it can be an odd place sometimes, but its helpful and fun and uplifting as well.

Elonwy

Guest Robbin
Guest Robbin
Posted

Sarah, Welcome! I am somewhat new too, but I have been SO encouraged here!

--Elonwy--ODD is GOOD isn't it? Better than BORING, right?!!! Where else, besides maybe a nursing home, can you hear so many discussions on POOP?

happygirl Collaborator
happygirl
Posted

haha, we Celiacs live in such a strange little bubble, don't we!

welcome to the board!

Thankagirl Rookie
Thankagirl
Posted
  • Author

HA ha ha ha!! You guys crack me up! I love boards like this - where everyone feels free to say what they need to say and can ask questions without being embarrassed!

:)

Sarah

Lollie Enthusiast
Lollie
Posted

Welcome Sarah! You are always free to ask or say whatever you need to! That is what makes this board so great!

Good Luck!

Lollie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
    2. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    3. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    4. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748
    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.