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Finally An Answer!

4tomorrow

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4tomorrow Apprentice
4tomorrow
Posted

Gluten Sensitivity Testing

Fecal Antigliadin IgA 84 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 37 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 27 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0301, 0301

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 53 Units (Normal Range

<10 Units)

So here I go on my life's next adventure! I am thankful to know so that I can prevent it from becoming worse. Anyone know of a good dietician in central ohio?

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4tomorrow Apprentice
4tomorrow
Posted
  • Author

Does this mean that I am intolerant to casein in the same way that I am to gluten?Will that part go away or is it a "lifer" also?

Thanks, I went ahead and ordered the egg, yeast, and soy panel today. I saw that some of you can't handle salicitates (sp?) how did you find that out?

wolfie Enthusiast
wolfie
Posted
Gluten Sensitivity Testing

Fecal Antigliadin IgA 84 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 37 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 27 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0301, 0301

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 53 Units (Normal Range

<10 Units)

So here I go on my life's next adventure! I am thankful to know so that I can prevent it from becoming worse. Anyone know of a good dietician in central ohio?

I go to Dr. Maureen Latanick at the Millhon Clinic (near Worthington Hills). She is the one who suggested that I be tested for Celiac. She gave me some good info, but I got most of my info online. She did recommend that I call Mary Kay Sharett (there is a class being taught at Children's Hospital where she is speaking ~ Mary Kay Sharrett, MS,RD,LD,CNSD

Mary Kay is a Clinical Dietitian at Children's and resident expert on the celiac diet. She is the founder and clinical advisor of the Gluten-Free Gang Support Group that meets at Children's Hospital and the annual Celiac conference. She is a nationally recognized expert on the Celiac diet, a popular speaker at national and regional conferences and a favorite interview among the popular press). Here is a site for central Ohio and if you click on Calender of Events you will see "The Basics Class" where she will speak. If you need additional info, please let me know.....my 3 y/o is running around in circles and I have to go tend to her.

Kim :)

Ooopsss....forgot to post the site...

Open Original Shared Link

julie5914 Contributor
julie5914
Posted

I believe casein is for life. Some people have temporary trouble with lactose, but if it is casein as yours is, you are stuck. But Vanilla soy milk is pretty good. Regular milk tastes super funny to me now.

Guest barbara3675
Guest barbara3675
Posted

There is a good chance that the casein intolerance will go away after a few months. It is that way with many people after they do some healing. That was the way it was with me. In the meantime you can use rice milk on your cereal etc. It isn't bad at all/make sure it is nice and cold. The time will go fast, you will see and then you will be better. Knowing what is wrong is everything. Then you can deal with it head-on and get on with your life. Barbara

CMCM Rising Star
CMCM
Posted
There is a good chance that the casein intolerance will go away after a few months. It is that way with many people after they do some healing. That was the way it was with me. In the meantime you can use rice milk on your cereal etc. It isn't bad at all/make sure it is nice and cold. The time will go fast, you will see and then you will be better. Knowing what is wrong is everything. Then you can deal with it head-on and get on with your life. Barbara

I don't believe it is accurate to say the CASEIN intolerance will go away. I believe the lactose one possibly would. Lactose intolerance is a sensitivity to milk sugar, whereas caseiin intolerance is sensitivity to the milk protein. I also tested casein sensitive, and I was hoping it would later cease to be a problem, and here's what Enterolab said when I asked about it:

"Because you have a Celiac gene, if gluten is not removed from your diet you have a good chance of eventually incurring damage. We encourage you to eliminate both gluten and casein (dairy) from your diet for optimum health.

Dr. Fine encourages a lifetime elimination of both gluten and casein once you are positive. You may not have the same symptoms after a period of elimination and then reintroduction of casein into the diet, but it can still do damage and cause other more systemic symptoms."

I believe casein is for life. Some people have temporary trouble with lactose, but if it is casein as yours is, you are stuck. But Vanilla soy milk is pretty good. Regular milk tastes super funny to me now.

Which brand of vanilla soy milk tastes best to you? I've heard some are kind of icky...

4tomorrow Apprentice
4tomorrow
Posted
  • Author

I'm having a very hard time today. Everywhere I look I feel like I see crumbs.

My mother in law thinks that because I was diagnosed through Enterolab that I self diagnosed on the internet by some quack basically. She has been pissy about it everytime it has came up in the conversation.

I am trying to tell myself that her opinion shouldn't matter but it does. She is a huge part of our lives and I would really appreciate it if she didn't act like I'm some idiot who can't tell what's going on inside my own body. Thankfully my hubby is very supportive and he is trying to help me with her.

Yesterday I was in a good mood because I felt like I finally had an answer, today I am very frustrated. Thanks for letting me vent.

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CMCM Rising Star
CMCM
Posted
I'm having a very hard time today. Everywhere I look I feel like I see crumbs.

My mother in law thinks that because I was diagnosed through Enterolab that I self diagnosed on the internet by some quack basically. She has been pissy about it everytime it has came up in the conversation.

I am trying to tell myself that her opinion shouldn't matter but it does. She is a huge part of our lives and I would really appreciate it if she didn't act like I'm some idiot who can't tell what's going on inside my own body. Thankfully my hubby is very supportive and he is trying to help me with her.

Yesterday I was in a good mood because I felt like I finally had an answer, today I am very frustrated. Thanks for letting me vent.

Here's what I'd suggest about your mother in law: Get a bunch of books on this subject...go to Amazon and you'll find several (Dangerous Grains, Wheat Free Worry Free, Against the Grain, Celiac Disease...a Hidden Epidemic). Read as many of these as you can and learn all the facts, and then rattle off all these facts to her. Get a pink highlighter and select key information to flash in front of her. People who are ignorant on a subject often respond to the WRITTEN WORD....i.e. if it's in a book/newspaper etc. it must be true. Now of course, we rational people know that just because something is written it isn't necessarily true, but if you have a number of sources saying the same thing it will surely have some impact on her unlearned current opinion. Good luck! And don't let her opinion get you down. Know your facts and that will give you confidence to not be affected by the often ignorant opinions of others.

I'm having a very hard time today. Everywhere I look I feel like I see crumbs.

My mother in law thinks that because I was diagnosed through Enterolab that I self diagnosed on the internet by some quack basically. She has been pissy about it everytime it has came up in the conversation.

I am trying to tell myself that her opinion shouldn't matter but it does. She is a huge part of our lives and I would really appreciate it if she didn't act like I'm some idiot who can't tell what's going on inside my own body. Thankfully my hubby is very supportive and he is trying to help me with her.

Yesterday I was in a good mood because I felt like I finally had an answer, today I am very frustrated. Thanks for letting me vent.

Here's what I'd suggest about your mother in law: Get a bunch of books on this subject...go to Amazon and you'll find several (Dangerous Grains, Wheat Free Worry Free, Against the Grain, Celiac Disease...a Hidden Epidemic). Read as many of these as you can and learn all the facts, and then rattle off all these facts to her. Get a pink highlighter and select key information to flash in front of her. People who are ignorant on a subject often respond to the WRITTEN WORD....i.e. if it's in a book/newspaper etc. it must be true. Now of course, we rational people know that just because something is written it isn't necessarily true, but if you have a number of sources saying the same thing it will surely have some impact on her unlearned current opinion. Good luck! And don't let her opinion get you down. Know your facts and that will give you confidence to not be affected by the often ignorant opinions of others.

  • 2 weeks later...
Claire Collaborator
Claire
Posted

In most of these books you can find a reference to Enterolab. Be sure to draw these to her attention. Claire

Guest nini
Guest nini
Posted

The guy that runs Enterolab IS a Dr. and by having your tests done, he became YOUR Dr. so all people really need to know is that YOUR Dr. dx'ed you with Celiac! LOL, not some self diagnosis!

CMCM Rising Star
CMCM
Posted

Also...the doctor who runs Enterolab is not only a DOCTOR, but he is a doctor who has chosen for many years to specialize in CELIAC DISEASE and its diagnosis. His method was developed in response to the dissatisfaction he had with traditional blood testing, which misses a lot of people for various reasons. He realized his stool test caught huge numbers of people who had been missed by blood tests. He has been compiling data for over 6 years now, and he is therefore up there with the relatively few celiac experts out there. Because your doctor didn't know about him and his testing means only one thing: your doctor ranks among the clueless majority of American doctors.

By the way, since my own Enterolab testing, I've written them around 6 or 7 detailed emails questioning various things and getting explanations for things, and they are wonderful about replying---usually the very next day---with good and clear explanations. :)

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

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    • trents
      Accuracy of testing concerns

      By trents · Posted

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    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
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      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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