Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Old


flagbabyds

When were you diagnosed?  

79 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

jerseyangel Proficient
:o No one ever gets passed 49 :lol:

Now lets see ... that would be 15 with 35 years experience :rolleyes:

:lol: Love it--thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

We were diagnosed June 06 through enterolab.

I voted for me.......39 at diagnosis......40 now.

Children at the time of testing were 6 1/2 and 3 3/4. Youngest hasn't been tested but gluten's a problem with him. His reaction started at 2 1/2 months.

2Boys4Me Enthusiast

I voted for Ty (between ages 5 - 10) he was diagnosed about 3 months before his sixth birthday. He's the only one of us with a diagnosis.

(As for me, I'm 29 with 11 years experience :P .)

Liz92 Rookie

I'm 14 and found out when i was like 11... do you guys think it would be harder to of had gluten all your life and have to give up or resist the curiosity FOREVER! I think I have it pretty easy... I know what it tastes like but still am young enough to "release' the habit i guess.

  • 2 weeks later...
Kara B. Newbie

I was diagnosed when i was 14. That was about a year ago. i wish i would have found this site sooner. after a year i have learned a lot and it would have been easier if i had found the site.

Kara B. Newbie

Lizzie i dont no if i agree that it is easier 2 give up gluten after having eaten it. once u no wut it tastes like, then u cant forget. i think it would be easier if i had been eating gluten free since i was really little.

Liz92 Rookie

Ya, that makes sense.... but I think that after a while your taste buds "dull" because I remember that when I wasn't cel. I had this glutenfree store bought bread and it tasted HORRIBLE but now its not so bad... I dunno. Maybe I'm JUst special.. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kara B. Newbie

I dunno maybe ur rite bout the fact that u get used 2 it Lizzie. i still dont realy like gluten-free bread. but there r things that i hav gotten used 2.

jayhawkmom Enthusiast

Not really voting... because I count for 4 people. =)

1. 5 year old daughter (dx at 4) in June, 2006

2. Myself - dx in Sept of 06 - at 36.

3. 8 year old son - dx 1.17.07

4. 17 month old son - gluten free in October, 06. However, pediatrician is convinced we are missing something...and ran a panel last week. Results from Mayo Clinic are pending.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    2. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    4. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    5. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,346
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.