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How Old

flagbabyds

When were you diagnosed?  

79 members have voted

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flagbabyds Collaborator
flagbabyds
Posted

I was just wondering when everyone was diagnosed.

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flagbabyds Collaborator
flagbabyds
Posted
  • Author

i think it is interesting because everyone is diagnosed at different times and when i did my science fair most people were diagnosed inbetween 20-40 and i want to know when everyone else was dx

Guest jhmom
Guest jhmom
Posted

I answered for me but also wanted to let you know that my daughter was dx when she was 8 (it wouldn't let me vote twice).

byuiemily Newbie
byuiemily
Posted

Hi, I'm new to the forum. My name is Emily, and I'm almost a sophmore in college. I'm from Kansas, but am going to school in Rexburg, Idaho. I was diagnosed a week or two into my senior year of high school, so I was 17. I turn 19 in two days, so it's been almost 2 years since I found out I had Celiac.

plantime Contributor
plantime
Posted

Hi, Emily! I'm almost 40, just diagnosed, and living in Southeast Kansas. What part of Kansas are you from?

byuiemily Newbie
byuiemily
Posted

I'm from Topeka, born and raised there. Where in Kansas are you at?

plantime Contributor
plantime
Posted

Between Pittsburg and Columbus. I love this state!

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Guest DawterAod
Guest DawterAod
Posted

I haven't actually been diagnosed with celiac..

But i was diagnosed with a gluten intolerance a year ago, so i would've been 16.

travelthomas Apprentice
travelthomas
Posted

I

  • 1 month later...
Guest ecko_gurl18
Guest ecko_gurl18
Posted

Hi, my name is Sarah and i live in Toronto, Canada.I'm turning 18 next week and i was diagnosed with celiac disease when i was 18 months old. I don't even remember ever eating wheat, but sometimes i wish i could.

flagbabyds Collaborator
flagbabyds
Posted
  • Author

Same with me :) Except I was diagnosed @ 20 months, I don't remember wheat, barley, rye at all

  • 1 year later...
petlover Newbie
petlover
Posted

i was elevan and i dont have celiac disease but i am very senitive to gluten, barly, and malt

Asia :lol:

  • 1 year later...
dietsoda Newbie
dietsoda
Posted

i were diagnosed when i was 2 yrs..

babygirl1234 Rookie
babygirl1234
Posted

ive been gluten-free since i was 16

Kassie Apprentice
Kassie
Posted

i was diagnosed when i was 14 and a half. i have only had celiac for a little over a year.

Byuemily- i was just wondering, your from kansas why did u come all the way to idaho for college not like its a bad thing, but idaho is just kinda a small not very well known state (i'm from idaho)

Chicklet Rookie
Chicklet
Posted

I found out last year so I was 42 (still am) but I wasn't officialy diagnosed. (Sorry didn't notice this was a teen only one, oops. )

zansu Rookie
zansu
Posted
I found out last year so I was 42 (still am) but I wasn't officialy diagnosed. (Sorry didn't notice this was a teen only one, oops. )

Hey, she gave me older than teen options so I took it! :rolleyes: I'm 44, back in college full-time (masters) :huh: ; diagnosed at 42. hindsight shows it's been active most of my life (enameless teeth!) :D

Carriefaith Enthusiast
Carriefaith
Posted

I was officially diagnosed around my 23rd birthday. I think it was several days before my birthday!

psawyer Proficient
psawyer
Posted

This is a really old thread, recently revived. I wasn't a teen even when it was started. My official diagnosis was given to me two days after my 46th birthday. I'm 52 now. So, at the moment: I am 15 with 37 years of experience. :lol: My first post here, in 2004, was also in response to a poll by Molly.

Viola 1 Rookie
Viola 1
Posted

I was 42 when diagnosed, I'm 60 now ... that's 15 with 45 years of experience :lol: I love that Peter.

Kaycee Collaborator
Kaycee
Posted

Me diagnosed at 48, and am now nearly 50

Cathy

quantumsugar Apprentice
quantumsugar
Posted

Ha, I'm a dork. Diagnosed at 20 (not 22)... I'm 22, which gives me two whole years experience (in a few more months).

jerseyangel Proficient
jerseyangel
Posted

Wow--this is an old thread! :D

I was diagnosed in June of 2005 at age 49. I had symptoms from about the age of 30.

Shirley and Peter--I'm not sure, what does that make me? :unsure:

Viola 1 Rookie
Viola 1
Posted
Wow--this is an old thread! :D

I was diagnosed in June of 2005 at age 49. I had symptoms from about the age of 30.

Shirley and Peter--I'm not sure, what does that make me? :unsure:

:o No one ever gets passed 49 :lol:

Now lets see ... that would be 15 with 35 years experience :rolleyes:

Phyllis28 Apprentice
Phyllis28
Posted

I was diagnosed in the spring of 1978 at 20.75 years. Yep, that's almost 29 years.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

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      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

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      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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