Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Has This Board Been Here?

nikki-uk

By nikki-uk
in Coping with Celiac Disease

Recommended Posts

nikki-uk Enthusiast
nikki-uk
Posted

I just wondered how many years this board has been up and running-I see now that there are over 7000 members(!).

Are there any members who have been around from the start-how popular was it in the beginning,and most importantly how on earth did you manage before? :unsure:

The internet's a great thing,stops you feeling isolated and in turn helps us all 'cope' with the inconvenience of a gluten free diet,and of course is a great source of information for us to share with one another.

one things for sure,-I hadn't even heard of coeliac disease before hubbies dx 18 months ago.Now-well I know alot ,and am still learning!! :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

I joined three months after the creation of this board.

Before that there was an old board with an outdated layout, and it is still around--I can find the link if you want it--but it's no longer used, obviously.

I know Mariann (gf4life) was on the previous board, though I'm not sure how long. There are undoubtedly others.

Rachel--24 Collaborator
Rachel--24
Posted

I think I remeber seeing that Tarnalberry is member #1 or maybe it was member #2. I dont remember exactly but she must have been here since day one.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

The board was here a long time but very different when I first joined. When it was changed to how it is today everyone had to re-sign up.

jerseyangel Proficient
jerseyangel
Posted

Nikki--Great questions! I've been wondering the same things. I have never been a member of a forum before--I only accidently stumbled onto this one while doing a Google search. It was a couple months after my diagnosis, and I was pretty lost in terms of what to expect, what to eat and just about everything, really. It was a lucky day for me, though. For all the computer 'veterans', is it typical for a group to have 7000+ members, and a much smaller number who regularly post? There must be a lot of people out there just reading.

Rachel--24 Collaborator
Rachel--24
Posted
The board was here a long time but very different when I first joined. When it was changed to how it is today everyone had to re-sign up.

Ahh...so Tarnalberry may have just been the first to "re-sign" up....but not actually one of the first members?

angel-jd1 Community Regular
angel-jd1
Posted

Open Original Shared Link

That is the link to the old board. I was on the old board for quite a while also before Scott moved us over to this new updated one. Lots of good info.

-Jessica :rolleyes:

I joined three months after the creation of this board.

Before that there was an old board with an outdated layout, and it is still around--I can find the link if you want it--but it's no longer used, obviously.

I know Mariann (gf4life) was on the previous board, though I'm not sure how long. There are undoubtedly others.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Thanks, Jessica!

angel-jd1 Community Regular
angel-jd1
Posted

You're welcome :)

-Jessica :rolleyes:

Thanks, Jessica!
ianm Apprentice
ianm
Posted
For all the computer 'veterans', is it typical for a group to have 7000+ members, and a much smaller number who regularly post? There must be a lot of people out there just reading.

That is pretty typical. I belong to some other forums and you get a few hardcore users and the rest stay on the sidelines.

I never would have made it without this forum.

jerseyangel Proficient
jerseyangel
Posted
I never would have made it without this forum.

Nope--me either, I'm convinced of it.

Rachel--24 Collaborator
Rachel--24
Posted

Yeah...its the same with all the forums I've been on. Actually I see more participation on here than any of the other forums I've joined but yeah most people are just "lurking" and never post.

jerseyangel Proficient
jerseyangel
Posted

I guess I never would have expected the comradery we all seem to have here--such a good feeling to know my cyber friends are out there :D

VydorScope Proficient
VydorScope
Posted

Its likely that most of that 7000 never come here anymore. Its fairly typical for ppl to sign up, hang out for a short bit then fade away. Some boards actively trim thier user lists to keep the numbers realistic, but Scott does not appear to, nor does he appear to do anything about the artificaly inflated online user count (most of that number is spiders/bots/etc). Dont blame him, its alot of extra work, and realy does nothing meaningful. :)

paw Apprentice
paw
Posted

I am still learning so I don't have all kinds of gread advice to offer -- at least not yet. I do post questions sometimes. I would not want to say some food or product is ok and have someone get sick because I am just learning.

:)

jerseyangel Proficient
jerseyangel
Posted

Thanks Vincent--I'm learning something new every day :)

tarnalberry Community Regular
tarnalberry
Posted
Ahh...so Tarnalberry may have just been the first to "re-sign" up....but not actually one of the first members?

Yep. I had been signed up on the old format board for ... a year, maybe just half a year? Something like that. Then signed up promptly when Scott moved to the new format, which I think was first thing in 2004.

  • 1 month later...
flagbabyds Collaborator
flagbabyds
Posted

I was on the old board since the beginning, I would really only post in the teen section, because the old board was really hard to navigate about, but when the new board came up, it took me a couple tries to get it right,but it is soooo much better.

plantime Contributor
plantime
Posted

I don't know how long it has been here. I found it before I was diagnosed, and I don't think I would have been able to manage without it.

flagbabyds Collaborator
flagbabyds
Posted

It's an awesome resource for newly diagnosed, I just like reading people's posts, and responding, and then making radom posts here and there when I have quick questions. The size has really jumped since Scott made the new format, it is much easier to navigate around:0

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,745
    • Most Online (within 30 mins)
      7,748
    Barbfh
    Newest Member
    Barbfh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.