Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing For Celiac Disease


JoyceG

Recommended Posts

JoyceG Newbie

Hi my name is Joyce. My 3.5 year old son has autism and has been following a Gluten-free Casein-free diet since October 2004. He has made great progress with the diet. A number of kids with autism have a family history of celiac disease.

I decided to go Gluten-free Casein-free due to allergies(sinsus), ezcema and digestive issues in July 2005. It seems to be helping. I have not knowningly had gluten containing food. I did have McDonalds french fries on two occasions before McDonalds announcement. Recent blood work indicates that I have an elevated C Reactive Protein level. This is an indication of imflamation somewhere in the body.

I now want to confirm whether or not I have Celiac Disease (financial reasons). My doctor has ordered the Antibody to wheat protein test blood test.

Since I have been Gluten free for more than six months, how many days before the test do I need to reintroduce gluten into my diet to see if the antibody is present? How much of an infraction do I need, a weeks worth of gluten filled foods, a couple of days or one meal? Does the test require a fasting period?

Joyce


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

There is no set period for everybody. It really does vary. Most celiac experts say you should be eating gluten for a minimum of 12 weeks, but even then who knows. I think the amount per day is something like 4 pieces of bread -- a fair amount. There's no fasting period for the blood tests but a short time for the biopsy.

richard

Rachel--24 Collaborator
There is no set period for everybody. It really does vary. Most celiac experts say you should be eating gluten for a minimum of 12 weeks, but even then who knows. I think the amount per day is something like 4 pieces of bread -- a fair amount. There's no fasting period for the blood tests but a short time for the biopsy.

richard

I agree with Richard...at least 3 months with a good amount of gluten eaten daily. Eating gluten for only a short time before testing (especially having been off it for 6 months) will likely give you negative results even if you have Celiac.

JoyceG Newbie

Thanks for the quick replies. This is a different response than what the Physicians Assistant at my Doctor's gave. She indicated a weekend of gluten filled foods should be enough. I'm not sure if I want to go through with the test now. I have gotten use to eating this way. I feel better and my allergies have improved (no ear or sinsus infections and no longer taking claritin or algeria on a daily basis). I have not had any stomach issues since I had a grilled chicken salad that I suspect was marinated in soy sause, my boss also had stomach issues the next day. He recovered in a day. It took me two weeks.

I guess this is what I get for playing doctor and not going through the proper procedures to get on the diet. I was hoping to be tested so I could be confirmed or not confirmed as Celiac so I could deduct the difference in food on our taxes. Since Autism is not considered life threating the diet foods are not tax deductable based on my sons condition.

Joyce

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,228
    • Most Online (within 30 mins)
      7,748

    CindyNR
    Newest Member
    CindyNR
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.