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Symptoms


Davidcrook

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Davidcrook Newbie

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related


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Scott Adams Grand Master

If you have access to health care it would make sense for you to get screened for celiac disease. There are home tests available for under $100 if you don't have healthcare. To be screened you need to keep eating gluten daily until all tests are completed. Here is info on the blood tests:

 

JoBlackburn Rookie
44 minutes ago, Davidcrook said:

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related

Thats what made me click onto have a gluten and dairy problem! 

My symptoms were wheezing, tight chest and rapid heart beat. Do you have asthma by any chance? I do and gluten and dairy are bad for it in my case. Since I've cut them out and gone vegan it's Improved.

Also please make sure that no creams or anything you are putting on your skin have gluten. I made that mistake a few months ago and the wheezing was terrifying. 😰 

In my case it depends on how much gluten I have by accident a small amount it's a headache or migrane with tiredness, dizziness, constaption, body aches and that then progresses onto breathing difficulties and last week I made a mistake with a load of oat cakes! It makes me collapse with severe mood changes. 

 

Be safe please. 

Davidcrook Newbie

Hi, the nurse at my doctors thought it was asthma but the inhalers I had wasn’t working and I kept going back as the simplest things would make me out of breath tight chest and rapid heart rates but over the last few weeks eating has become harder. I only use the normal shower stuff but haven’t looked at the ingredients yet. Just getting frustrated as they can’t seem to see what’s wrong

knitty kitty Grand Master

David and Jo, 

Those symptoms you described are also symptoms of early thiamine deficiency.  The trouble breathing, cough, rapid heart rate, fatigue and digestive problems are all early thiamine deficiency symptoms.  

We can become low in thiamine within two weeks if we eat a high carbohydrate diet, are very physically active especially outdoors in hot weather,  and if we are under emotional stress or are ill.  (Doctors are giving thiamine to Covid patients with vitamin C and B6 to prevent sepsis.)

Thiamine deficiency is easily overlooked by doctors because the symptoms are so subtle. Ask your doctor for an erythrocyte transketolase test to check for thiamine deficiency.   

Hope this helps!

JoBlackburn Rookie
6 hours ago, Davidcrook said:

Hi, the nurse at my doctors thought it was asthma but the inhalers I had wasn’t working and I kept going back as the simplest things would make me out of breath tight chest and rapid heart rates but over the last few weeks eating has become harder. I only use the normal shower stuff but haven’t looked at the ingredients yet. Just getting frustrated as they can’t seem to see what’s wrong

as knitty kitty said it may well be thiamine deficiency or gluten, dairy or all three. maybe you could bring this up with your doctor ?

with the inhaler situation that is the same as me they had me on max strength and nothing helped till I sorted it out myself with dietary changes. asthma is an umbrella term and anything can flair it off for me its foods and seasonal allergies.  

have a wee look online there are a few really good bits of info on this like with gluten, dairy and asthma. 

if you don't want to maybe try cutting out gluten for a while and see how you symptoms improve 

thiamine rich foods are 

black beans

lentils 

edamame beans 

macadamia nuts

and if youre not vegan then pork,beef

knitty kitty Grand Master

Here's an article by Dr. Lonsdale about the asthma and thiamine connection.....

https://www.hormonesmatter.com/asthma-a1at-deficiency-thiamine/

Eat more Liver! It's a great source of thiamine!

🐱


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Posterboy Mentor
On 7/28/2020 at 1:19 PM, Davidcrook said:

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related

DavidCrook,

I think Knitty Kitty has given you a good resource.

Try finding some Benfotiamine a Fat Soluble B1 and take it with meals.

See this article about the Vitamins deficiency that can cause a racing heart....

https://www.livestrong.com/article/503879-vitamin-deficiencies-racing-heart/

Thiamine and Magnesium Glycinate can also help your fatigue issues.

This is a nice article too how back in the "Olden Days" before doctor's knew Vitamins were things in foods that kept us healthy before an enlarged heart ( a sign of "wet" beri beri) was caused by a Vitamin deficiency.

This article explains why it is so that people/sailors could/would develop "Sailors Asthma" from a Thiamine Deficiency aka Beri Beri back in the day or Kakke if you know a little Japanese and how they used Barley to defeat Beri Beri in the Japanese Navy.

https://www.psychologytoday.com/us/blog/evolutionary-psychiatry/201204/nutritional-brain-bomb-thiamine-deficiency 

I hope this is helpful but it is not medical advise.

Posterboy,

DJFL77I Experienced

Hurricanes about to hit soon... stock up on your supplies if you're on east coast FL area...   power will surely go out here I guess  ;/

 

DJFL77I Experienced

the calm before the storm   😨

 

20200801_064814.webp

cyclinglady Grand Master

Stay safe!  

Matt McFaul Rookie
On 7/28/2020 at 2:08 PM, JoBlackburn said:

Thats what made me click onto have a gluten and dairy problem! 

My symptoms were wheezing, tight chest and rapid heart beat. Do you have asthma by any chance? I do and gluten and dairy are bad for it in my case. Since I've cut them out and gone vegan it's Improved.

Also please make sure that no creams or anything you are putting on your skin have gluten. I made that mistake a few months ago and the wheezing was terrifying. 😰 

In my case it depends on how much gluten I have by accident a small amount it's a headache or migrane with tiredness, dizziness, constaption, body aches and that then progresses onto breathing difficulties and last week I made a mistake with a load of oat cakes! It makes me collapse with severe mood changes. 

 

Be safe please. 

I was going to make a new post describing what happens to me, but you said it perfectly.  I experience the exact symptoms.  I guess you answered that for me 😕

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    • Aretaeus Cappadocia
      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
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