Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms


Davidcrook

Recommended Posts

Davidcrook Newbie

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

If you have access to health care it would make sense for you to get screened for celiac disease. There are home tests available for under $100 if you don't have healthcare. To be screened you need to keep eating gluten daily until all tests are completed. Here is info on the blood tests:

 

JoBlackburn Rookie
44 minutes ago, Davidcrook said:

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related

Thats what made me click onto have a gluten and dairy problem! 

My symptoms were wheezing, tight chest and rapid heart beat. Do you have asthma by any chance? I do and gluten and dairy are bad for it in my case. Since I've cut them out and gone vegan it's Improved.

Also please make sure that no creams or anything you are putting on your skin have gluten. I made that mistake a few months ago and the wheezing was terrifying. 😰 

In my case it depends on how much gluten I have by accident a small amount it's a headache or migrane with tiredness, dizziness, constaption, body aches and that then progresses onto breathing difficulties and last week I made a mistake with a load of oat cakes! It makes me collapse with severe mood changes. 

 

Be safe please. 

Davidcrook Newbie

Hi, the nurse at my doctors thought it was asthma but the inhalers I had wasn’t working and I kept going back as the simplest things would make me out of breath tight chest and rapid heart rates but over the last few weeks eating has become harder. I only use the normal shower stuff but haven’t looked at the ingredients yet. Just getting frustrated as they can’t seem to see what’s wrong

knitty kitty Grand Master

David and Jo, 

Those symptoms you described are also symptoms of early thiamine deficiency.  The trouble breathing, cough, rapid heart rate, fatigue and digestive problems are all early thiamine deficiency symptoms.  

We can become low in thiamine within two weeks if we eat a high carbohydrate diet, are very physically active especially outdoors in hot weather,  and if we are under emotional stress or are ill.  (Doctors are giving thiamine to Covid patients with vitamin C and B6 to prevent sepsis.)

Thiamine deficiency is easily overlooked by doctors because the symptoms are so subtle. Ask your doctor for an erythrocyte transketolase test to check for thiamine deficiency.   

Hope this helps!

JoBlackburn Rookie
6 hours ago, Davidcrook said:

Hi, the nurse at my doctors thought it was asthma but the inhalers I had wasn’t working and I kept going back as the simplest things would make me out of breath tight chest and rapid heart rates but over the last few weeks eating has become harder. I only use the normal shower stuff but haven’t looked at the ingredients yet. Just getting frustrated as they can’t seem to see what’s wrong

as knitty kitty said it may well be thiamine deficiency or gluten, dairy or all three. maybe you could bring this up with your doctor ?

with the inhaler situation that is the same as me they had me on max strength and nothing helped till I sorted it out myself with dietary changes. asthma is an umbrella term and anything can flair it off for me its foods and seasonal allergies.  

have a wee look online there are a few really good bits of info on this like with gluten, dairy and asthma. 

if you don't want to maybe try cutting out gluten for a while and see how you symptoms improve 

thiamine rich foods are 

black beans

lentils 

edamame beans 

macadamia nuts

and if youre not vegan then pork,beef

knitty kitty Grand Master

Here's an article by Dr. Lonsdale about the asthma and thiamine connection.....

https://www.hormonesmatter.com/asthma-a1at-deficiency-thiamine/

Eat more Liver! It's a great source of thiamine!

🐱


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Posterboy Mentor
On 7/28/2020 at 1:19 PM, Davidcrook said:

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related

DavidCrook,

I think Knitty Kitty has given you a good resource.

Try finding some Benfotiamine a Fat Soluble B1 and take it with meals.

See this article about the Vitamins deficiency that can cause a racing heart....

https://www.livestrong.com/article/503879-vitamin-deficiencies-racing-heart/

Thiamine and Magnesium Glycinate can also help your fatigue issues.

This is a nice article too how back in the "Olden Days" before doctor's knew Vitamins were things in foods that kept us healthy before an enlarged heart ( a sign of "wet" beri beri) was caused by a Vitamin deficiency.

This article explains why it is so that people/sailors could/would develop "Sailors Asthma" from a Thiamine Deficiency aka Beri Beri back in the day or Kakke if you know a little Japanese and how they used Barley to defeat Beri Beri in the Japanese Navy.

https://www.psychologytoday.com/us/blog/evolutionary-psychiatry/201204/nutritional-brain-bomb-thiamine-deficiency 

I hope this is helpful but it is not medical advise.

Posterboy,

DJFL77I Experienced

Hurricanes about to hit soon... stock up on your supplies if you're on east coast FL area...   power will surely go out here I guess  ;/

 

DJFL77I Experienced

the calm before the storm   😨

 

20200801_064814.webp

cyclinglady Grand Master

Stay safe!  

Matt McFaul Rookie
On 7/28/2020 at 2:08 PM, JoBlackburn said:

Thats what made me click onto have a gluten and dairy problem! 

My symptoms were wheezing, tight chest and rapid heart beat. Do you have asthma by any chance? I do and gluten and dairy are bad for it in my case. Since I've cut them out and gone vegan it's Improved.

Also please make sure that no creams or anything you are putting on your skin have gluten. I made that mistake a few months ago and the wheezing was terrifying. 😰 

In my case it depends on how much gluten I have by accident a small amount it's a headache or migrane with tiredness, dizziness, constaption, body aches and that then progresses onto breathing difficulties and last week I made a mistake with a load of oat cakes! It makes me collapse with severe mood changes. 

 

Be safe please. 

I was going to make a new post describing what happens to me, but you said it perfectly.  I experience the exact symptoms.  I guess you answered that for me 😕

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

    2. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    3. - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,438
    • Most Online (within 30 mins)
      7,748

    Thomasine
    Newest Member
    Thomasine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.