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Symptoms


Davidcrook

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Davidcrook Newbie

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related


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Scott Adams Grand Master

If you have access to health care it would make sense for you to get screened for celiac disease. There are home tests available for under $100 if you don't have healthcare. To be screened you need to keep eating gluten daily until all tests are completed. Here is info on the blood tests:

 

JoBlackburn Rookie
44 minutes ago, Davidcrook said:

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related

Thats what made me click onto have a gluten and dairy problem! 

My symptoms were wheezing, tight chest and rapid heart beat. Do you have asthma by any chance? I do and gluten and dairy are bad for it in my case. Since I've cut them out and gone vegan it's Improved.

Also please make sure that no creams or anything you are putting on your skin have gluten. I made that mistake a few months ago and the wheezing was terrifying. 😰 

In my case it depends on how much gluten I have by accident a small amount it's a headache or migrane with tiredness, dizziness, constaption, body aches and that then progresses onto breathing difficulties and last week I made a mistake with a load of oat cakes! It makes me collapse with severe mood changes. 

 

Be safe please. 

Davidcrook Newbie

Hi, the nurse at my doctors thought it was asthma but the inhalers I had wasn’t working and I kept going back as the simplest things would make me out of breath tight chest and rapid heart rates but over the last few weeks eating has become harder. I only use the normal shower stuff but haven’t looked at the ingredients yet. Just getting frustrated as they can’t seem to see what’s wrong

knitty kitty Grand Master

David and Jo, 

Those symptoms you described are also symptoms of early thiamine deficiency.  The trouble breathing, cough, rapid heart rate, fatigue and digestive problems are all early thiamine deficiency symptoms.  

We can become low in thiamine within two weeks if we eat a high carbohydrate diet, are very physically active especially outdoors in hot weather,  and if we are under emotional stress or are ill.  (Doctors are giving thiamine to Covid patients with vitamin C and B6 to prevent sepsis.)

Thiamine deficiency is easily overlooked by doctors because the symptoms are so subtle. Ask your doctor for an erythrocyte transketolase test to check for thiamine deficiency.   

Hope this helps!

JoBlackburn Rookie
6 hours ago, Davidcrook said:

Hi, the nurse at my doctors thought it was asthma but the inhalers I had wasn’t working and I kept going back as the simplest things would make me out of breath tight chest and rapid heart rates but over the last few weeks eating has become harder. I only use the normal shower stuff but haven’t looked at the ingredients yet. Just getting frustrated as they can’t seem to see what’s wrong

as knitty kitty said it may well be thiamine deficiency or gluten, dairy or all three. maybe you could bring this up with your doctor ?

with the inhaler situation that is the same as me they had me on max strength and nothing helped till I sorted it out myself with dietary changes. asthma is an umbrella term and anything can flair it off for me its foods and seasonal allergies.  

have a wee look online there are a few really good bits of info on this like with gluten, dairy and asthma. 

if you don't want to maybe try cutting out gluten for a while and see how you symptoms improve 

thiamine rich foods are 

black beans

lentils 

edamame beans 

macadamia nuts

and if youre not vegan then pork,beef

knitty kitty Grand Master

Here's an article by Dr. Lonsdale about the asthma and thiamine connection.....

https://www.hormonesmatter.com/asthma-a1at-deficiency-thiamine/

Eat more Liver! It's a great source of thiamine!

🐱


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Posterboy Mentor
On 7/28/2020 at 1:19 PM, Davidcrook said:

Hi, I’ve been feeling unwell at the moment where I’m out of breath, tired all the time have a cough but not regular, my heart somethings beats a lot quicker and tight chest, I’ve had blood tests and a chest X-ray along side a COVID test and all have come back fine but looking at google it’s seems some of my symptoms are similar to celiac. I just ate some food and my stomach is hurting. Plus I seem to be going to the toilet a lot more and just wanted some advise on if everything seems to be related

DavidCrook,

I think Knitty Kitty has given you a good resource.

Try finding some Benfotiamine a Fat Soluble B1 and take it with meals.

See this article about the Vitamins deficiency that can cause a racing heart....

https://www.livestrong.com/article/503879-vitamin-deficiencies-racing-heart/

Thiamine and Magnesium Glycinate can also help your fatigue issues.

This is a nice article too how back in the "Olden Days" before doctor's knew Vitamins were things in foods that kept us healthy before an enlarged heart ( a sign of "wet" beri beri) was caused by a Vitamin deficiency.

This article explains why it is so that people/sailors could/would develop "Sailors Asthma" from a Thiamine Deficiency aka Beri Beri back in the day or Kakke if you know a little Japanese and how they used Barley to defeat Beri Beri in the Japanese Navy.

https://www.psychologytoday.com/us/blog/evolutionary-psychiatry/201204/nutritional-brain-bomb-thiamine-deficiency 

I hope this is helpful but it is not medical advise.

Posterboy,

DJFL77I Experienced

Hurricanes about to hit soon... stock up on your supplies if you're on east coast FL area...   power will surely go out here I guess  ;/

 

DJFL77I Experienced

the calm before the storm   😨

 

20200801_064814.webp

cyclinglady Grand Master

Stay safe!  

Matt McFaul Rookie
On 7/28/2020 at 2:08 PM, JoBlackburn said:

Thats what made me click onto have a gluten and dairy problem! 

My symptoms were wheezing, tight chest and rapid heart beat. Do you have asthma by any chance? I do and gluten and dairy are bad for it in my case. Since I've cut them out and gone vegan it's Improved.

Also please make sure that no creams or anything you are putting on your skin have gluten. I made that mistake a few months ago and the wheezing was terrifying. 😰 

In my case it depends on how much gluten I have by accident a small amount it's a headache or migrane with tiredness, dizziness, constaption, body aches and that then progresses onto breathing difficulties and last week I made a mistake with a load of oat cakes! It makes me collapse with severe mood changes. 

 

Be safe please. 

I was going to make a new post describing what happens to me, but you said it perfectly.  I experience the exact symptoms.  I guess you answered that for me 😕

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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