Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Is Not That Hard!

chrissy

By chrissy
in Coping with Celiac Disease

Recommended Posts

teankerbell Apprentice
teankerbell
Posted
we eat peanuts and roasted nuts-----i'm a little confused about why you are only buying raw nuts, i assume you haven't been able to find any that haven't been dusted with flour---but i totally agree with you about unprocessed nuts being more expensive!!! i can't figure out how to say this---i keep typing and deleting-----but i think you really understood what i was saying when i said it is amazing how your perspective can change when it really needs to.(when you are forced into dietary changes)

it's the people that haven't learned to swim that are afraid of the water.

i just think it might be a little less overwhelming to the newly diagnosed if the docs and the written reports said things a little differently----more like,"the gluten free diet may seem overwhelming at first, but given a little time and practice, it will become much easier than you think."

when our ped gi first talked to me about celiac he said, "the good news is, it is totally controllable with diet."

that is alot more positive than," the diet is really difficult, but it will controll the disease."

christine

Christine,

I found out that roasted nuts are not gluten-free so I steer clear of those and eat only raw.

But yes, when you are forced to do something, you either deal with it or let it get you down. I refuse to let this get the best of me. It is just the cards that were dealt to me and life goes on. I would rather have to control my diet than have to take meds.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

No casserole yet. I've been working too much for past month or so. Husband also is don't feeling well lately and he can't introduce new stuff while feeling sickish; so have to wait on this a little more.

happygirl Collaborator
happygirl
Posted

Teankerbell-Can you elaborate on certain nuts not being gluten free? I was a little confused on that as I have ones in my house that are. Thanks!

prinsessa Contributor
prinsessa
Posted

I have only been on this diet for about a week and it at first seemed much harder. Now that I am feeling better, I don't really miss eating things with gluten. Yesterday I ate something that was in a flour tortilla (on purpose to see how I felt) and I felt sooo bloated after. I didn't have any D, but the bloating was bad enough. I like cooking and make most of my food from scratch anyway. I'm going to ask my MIL to teach me some good Mexican recipes since most Mexican food doesn't have gluten in it. I am also going to learn how to make a lot of Thai food. The hard thing will be when my kids go on the diet. I want them to get a blood test first....but will try the diet if the test comes out negative. I know it will be hard since they love food that has gluten in it. And it will be hard to make sure DD doesn't eat anything at school that she shouldn't.

teankerbell Apprentice
teankerbell
Posted
Teankerbell-Can you elaborate on certain nuts not being gluten free? I was a little confused on that as I have ones in my house that are. Thanks!

Hey,

My step-daugher who is celiac disease and on this message board alot, found out that roasted nuts are not gluten free. She has tried, almonds and peanuts for sure. But after finding this out, she stays away from all roasted nuts and so do I.

Guest Viola
Guest Viola
Posted

Actually, I think the problem lies with some 'dry' roasted nuts. You need to call the company and check on those.

happygirl Collaborator
happygirl
Posted

Thanks for clearing that up, Shirley! I eat various types of nuts and just wanted to double check :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jaten Enthusiast
jaten
Posted

For me cooking/eating gluten-free at home has gotten so much easier. AFter just a couple of months it's already almost second nature for both me and my very supportive, non-celiac husband when we're in our own gluten-free kitchen. So in this respect the gluten-free diet is easy.

I haven't had too many pity parties. I'm so glad to know what was making me sick and that it is something that can be "fixed" without surgeries, and medicines, and it's not terminal (which is the way it was feeling when I lost 35 lbs in 8 wks).

Social situations, and any food consumption beyond my own kitchen is very difficult for a number of reasons. If I go to a restaurant then 1) I'm afraid of CC because more often than not I get sick regardless of where I eat or what I order. 2) I don't like that my diet has to be a focus at the beginning of every meal as I talk with waiters and/or managers and/or whatever food preparers in restaurant, etc. I'd really like to just browse the menu, place an order, and continue whatever conversation without the "to do." So many of our social situations in the work place and with friends & family are food-oriented. This is really, really hard for me. I'm not even beginning to feel comfortable in these situations. Yes, my friends and family are great. It's just.................well, this is where I have found that it gets really tiresome. Hence the contradiction to the final sentence of paragraph one. In this respect, the gluten-free diet is really hard.

cgilsing Enthusiast
cgilsing
Posted

I actually like the way the gluten-free diet has changed my life in some respects. I never really cooked much before I was diagnosed. It was just so easy to get something on the way home or go out to eat. Plus if I did cook, it was always something quick and easy like manwich. Since I started gluten-free I really found a new passion for cooking. I like eating a variety of food and now the only way I can is to cook it myself. I never thought that I would cook some of the things I do now! I don't think gluten-free is hard at all once you get used to it (at least for day to day). Eating out and at other people homes is hard, but I'm always a little put off when people say "Oh I could never do that! I don't know how you do it!" It's really not that hard.

jerseyangel Proficient
jerseyangel
Posted
Teankerbell-Can you elaborate on certain nuts not being gluten free? I was a little confused on that as I have ones in my house that are. Thanks!

I know that Fisher Roasted and Salted Almonds are gluten-free. I called the company just last week. They also sent me their gluten-free list. If you or anyone is interested, I will be happy to post it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested...
    2. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing...
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    5. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748
    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.