Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oats: Who Eats Them?


Ksmith

Oats  

30 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

Ksmith Contributor

Okay,

There is seemingly some controversy over oats and whether they are gluten-free. I'd like to know where you guys stand.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

I don't eat them, but then again, I never really ate them before I went gluten-free either unless they were in a cookie!

teankerbell Apprentice

Until there is a definitive answer on Oats, I am staying away.

key Contributor

I have tried McCann's and have a reaction. It isn't AS severe as when I am gluttened, but they definitely DO NOT agree with me and it is SO sad. My legs and joints ached while I tried reintroducing them. I was exhausted. Plus nauseated at some point everyday and loose stools. My son also with celiac reacts, but not as severely as when it is gluten from something else. It is strange. I don't know if it is just a bit different or if there is a small amount of gluten in them still from contamination. Being vegetarian, I would love to eat them, but I can't tolerate them.

Monica

Rachel--24 Collaborator

I ate McCanns and reacted with immediate "D". Diarreah is rare for me so I thought it was just a fluke. I ate the oats again and got more of a glutened type reaction. They were REALLY good and I miss oats but I wont be trying them again.

VydorScope Proficient

I cant asnwer the question, becuase the right answer is not listed:

"If I could find UNCONTIMATED oats I would try them."

The primary problem with Oats is they are covered in gluten from wheat.

plantime Contributor

I eat McCann's, and >only< McCann's oatmeal with no problems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ashley Enthusiast

'Sides from oats in oatmeal cookies, I never really liked oats before having Celiac, so, nope.

chrissy Collaborator

i am going to get some of theose oats from (wisconsin?) that are grown by the people with the celiac son and are supposed to be gluten free. our ped gi said if the oats say gluten free on them, then they are ok. the ones i am looking into show a copy of their gluten testing. one of my girls starts to itch with gluten (i know now it cause she cheated the other day)

dessa, aren't you pretty sensitive? if you are eating mcanns and are not reacting----that gives me some hope!

christine

VydorScope Proficient
i am going to get some of theose oats from (wisconsin?) that are grown by the people with the celiac son and are supposed to be gluten free. our ped gi said if the oats say gluten free on them, then they are ok. the ones i am looking into show a copy of their gluten testing. one of my girls starts to itch with gluten (i know now it cause she cheated the other day)

dessa, aren't you pretty sensitive? if you are eating mcanns and are not reacting----that gives me some hope!

christine

Can you give any more info one these wisconsin oats? Like a web site maybe?

Mango04 Enthusiast

glutenfreeoats.com

I ate a muffin made with oat flour. It made me feel like I had a rock in my stomach for the rest of the day. It wasn't like I was actually sick or in pain - it was just a very bizzare feeling.

jaten Enthusiast

No, my GI said No Oats when he finished testing and diagnosed me in Dec. He said, "Some will tell you they're ok, and they might be, but I'm telling you, no oats for you. You can't risk it."

Nuff said for me.

CMCM Rising Star

Oat is a grain, and it does have its own unique protein. Therefore, like wheat/oats/barley, there is the possibility that a person who reacts to the wheat gluten protein could also react to the protein in oats. This is separate from the possibility of cross-contamination. Like with so many other things to do with celiac disease, this is yet another thing they haven't figured out. Lots of disagreement on it, too, among the doctors. :angry:

VydorScope Proficient

The facts as I know them...

Oats naturally do NOT contain gluten. How ever the protein that IS in oats is very clsoely realted to gluten and SOME celiacs will have a gluten like reaction to them.

The other problem is PURE oats are extremly hard to find at this time, and ALL celiacs will react to oats that are contimated with gluten, cause well thats what celiac is! :)

I personaly would be willing to try them IF I could find a pure source, but I would NOT give them to my son. When he is old enough to make taht call for himself, he can.

jerseyangel Proficient
The facts as I know them...

Oats naturally do NOT contain gluten. How ever the protein that IS in oats is very clsoely realted to gluten and SOME celiacs will have a gluten like reaction to them.

The other problem is PURE oats are extremly hard to find at this time, and ALL celiacs will react to oats that are contimated with gluten, cause well thats what celiac is! :)

This is what I understand, also. I would not try them, however, because I used to get mild D from eating oatmeal and would only eat it if I knew I didn't have to to out that day. I would not take the chance on them now.

cgilsing Enthusiast

I'm not sure what to think about oats. I don't currently eat them, but I have never had an obvious reaction from eating them before. I have decided that after I have the baby I'm going to try them (a little at a time) and see what happens. I know that cross-contamination is a big issue, but I'll try the Wisconsin oats. If it turns out that they don't bother me, it would really open up a lot of new options for me. B)

Guest Robbin

Oats were the original tip-off for me. I love them, but even the McCanns leave me sick with D. It's kinda strange, but oats and barley caused the severe reactions that really got me thinking about celiac. It wasn't until I cut out wheat and then tried it again that I noticed just how bad it was. I think it was because wheat was just so prevalent in my diet. I am interested in learning more about this Wisconsin oat farm, but I thought that oats were contaminated genetically as well, not just in processing (?) Or, maybe I am just asking a really strange question?

plantime Contributor
dessa, aren't you pretty sensitive? if you are eating mcanns and are not reacting----that gives me some hope!

christine

Yes, Christine, I am quite sensitive. Within minutes of getting glutened, my sinuses swell, in 20 minutes I am almost doubled over with pain. The protein in oats is very similar to the one in wheat, so some people do react to oats. It is something that you have to try for yourself. If it scares you, or you are just not comfprtable with trying it, then don't. There is no need to torture yourself over it!

Vincent, I agree with you saying that you might try them yourself, but wait until your son is old enough to make the choice for himself. I see a great measure of parental responsibility there! :D

jenvan Collaborator

I second what Vincent said--NO oats b/c uncontaminated is near impossible to find at this point and there is no testing to know if you are one of those celiacs who reacts to them, gluten-free or not. IMO, more research needs to be done on oats before I would eat them or recommend them to anyone.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,552
    • Most Online (within 30 mins)
      7,748

    judytay080
    Newest Member
    judytay080
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.