Reaction to gluten

[Hilary D]

Hello

 

i had the my diagnosis after a blood test recently.  My doctor said it would be a few months before I have an appointment for an endoscopy.  I have been on a gluten free diet since then, and have felt much better until today when i can only assume I did consume something containing gluten yesterday (or early this morning if it happens within an hour or so). I started feeling cramps and fatigue which has got worse as the day went on.  Is it common to feel so sick? I has wiped me out!

[Scott Adams]

After going gluten-free for a while some celiacs get super sensitive to gluten, and even tiny amounts can cause them great distress.

This will be a concern for you because if your doctor wants you to wait months to get an endoscopy you should technically probably still be eating gluten until that is finished, because your results would likely be false negative if you remain gluten-free. You'll probably want to discuss this with your doctor and decide if you need a biopsy, because diagnosis via blood tests is becoming more and more common.

[trents]

Ditto of what Scott said. It would seem smarter under the circumstances to assume the PCP's diagnosis of celiac disease is correct and just keep eating gluten-free. If you continue to feel better that is the proof of the pudding. No sense in risking irreversible damage to your body by continuing to eat gluten for months just to make sure your endoscopy/biopsy doesn't produce a false negative.