Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My One Year Follow-up Test Results

jenvan

Recommended Posts

jenvan Collaborator
jenvan
Posted

Hey friends! Just thought I would share... I got back the results from my 1 yearish follow-up biopsy etc. The biopsy and blood work (Celiac panel and liver enzymes etc) are normal! :D So good news there... My question is for any of you who have had a follow-up biopsy. The biopsy itself if normal, there is no scalloping or mosaic pattern upon viewing the SI, however, it is still flat and has lost the folds. My GI said it may always be flat. Anyone else here anything about this? It wouldn't totally surprise me, as I have had Celiac for many many years...possibly my entire life. Thanks !

OH, ps--I plan to get my food intolerances tested again at some point. I will post that info as it may interest some of you... I am treating it as a sort-of experiment in leaky-gut theory :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Jen--Wow--great news about your tests! Way to go! :D Can't help on the follow-up biopsy, haven't had one yet. I am looking forward to your findings regarding food intolerances and leaky gut ;)

elisabet Contributor
elisabet
Posted

Wonderful news,good for you.

as I posted before ,my son s teacher said that she was celiac and after 4 years in a Gluten-free Casein-free diet,she could have them in moderation ,I don t know if she had any biopsy or not but I can ask her and post it here.

best of luck

Jnkmnky Collaborator
Jnkmnky
Posted
Wonderful news,good for you.

as I posted before ,my son s teacher said that she was celiac and after 4 years in a Gluten-free Casein-free diet,she could have them in moderation ,I don t know if she had any biopsy or not but I can ask her and post it here.

best of luck

She could have "them" in moderation... ? Do you mean gluten - in moderation? Just curious. :)

  • 2 months later...
elisabet Contributor
elisabet
Posted
She could have "them" in moderation... ? Do you mean gluten - in moderation? Just curious. :)

Yes she says she can have bread and cheese in moderation.

mart Contributor
mart
Posted

Good news Jen! Hallelujah! You are obviously doing a great job on your diet!

wolfie Enthusiast
wolfie
Posted

That is great news! :)

I am interested to hear about the food intolerance testing and leaky gut as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dionnek Enthusiast
dionnek
Posted
Yes she says she can have bread and cheese in moderation.

How can she have gluten in moderation? I thought that if you had celiac, it never went away. Does she really have celiac or just gluten intollerance? I'm new to this, so if there is hope out there that I can once again enjoy my baked goods (normal baked goods that actually taste good!) that would make me so happy! :D

AmandaD Community Regular
AmandaD
Posted

That's very, very cool Jen - you give me hope for when I have my follow-up biopsy. If I were you I'd just call the doc and have them reiterate what it meant...but sounds like you're doing terrific!

Guest nini
Guest nini
Posted

If you have Celiac, the gluten-free diet is for LIFE. Regardless of if you have no symptoms or lots of symptoms when you consume gluten, you need to avoid it for life. No IF'S, AND'S, or BUT'S about it, even if there are no symptoms when you consume gluten after being gluten-free for a while, you are still doing damage to your insides. Cheating increases your risk of intestinal lymphomas and other autoimmune disorders. Anyone that believes that they can have some every once in a while is decieving themselves. When you have Celiac, the only cure is strict adherence to the gluten-free diet for life. Period.

Judyin Philly Enthusiast
Judyin Philly
Posted

Jen, so happy for your good report

judy

laurelfla Enthusiast
laurelfla
Posted

that's great! i'm so happy for you to get good results!

jenvan Collaborator
jenvan
Posted
  • Author
How can she have gluten in moderation? I thought that if you had celiac, it never went away. Does she really have celiac or just gluten intollerance? I'm new to this, so if there is hope out there that I can once again enjoy my baked goods (normal baked goods that actually taste good!) that would make me so happy! :D

Wow--was surprised to see this thread up again :) Dionnek--as Nisla says, gluten-free is gluten-free for life if you are a Celiac--you won't be able to eat the conventional baked goodies again. However, there are some wonderful gluten-free ones out there! I made gluten-free/cf chocolate chip cookies with the tollhouse recipe that are great!

BTW--I wrote my contact at the Chicago celiac disease Center about my question over recovering intestinal folds... She confirmed that it is unlikely I will ever gain them back, but that the biopsy is still be negative/normal even so. That also makes sense since I have had celiac disease for so long, and am older. Does make me think that a slight absorptive disadvantage will continue b/c of it though...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,781
    • Most Online (within 30 mins)
      7,748
    Jackie Vogel
    Newest Member
    Jackie Vogel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Rogol72
      Build muscle back feeling weak?

      By Rogol72 · Posted

      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
    • Scott Adams
      What apps or tech tools help you manage celiac disease?

      By Scott Adams · Posted

      I am just sharing this newly launched app:  
    • Scott Adams
      Build muscle back feeling weak?

      By Scott Adams · Posted

      It's great to hear that eliminating gluten has helped alleviate symptoms like eye burning, which is a significant and positive change. The first and most important step is to ensure you're consuming enough protein throughout the day to support muscle repair and growth, which can be challenging with a busy schedule. Since you're already physically active at work, adding focused strength training just 2-3 times per week can make a major difference. Bodyweight exercises like squats, push-ups (modified if needed), and lunges, or using resistance bands at home, are excellent, efficient places to start. Remember, consistency with these short sessions and prioritizing post-workout recovery, including good sleep and hydration, are just as crucial as the workouts themselves. It's a smart, gradual process at any age.
    • Scott Adams
      Glutened

      By Scott Adams · Posted

      That's terrible! This article, and the comments below it, may be helpful:    
    • Scott Adams
      suggest gluten free food

      By Scott Adams · Posted

      Trader Joe's carries a good variety of affordable gluten-free foods like bagels, hamburger buns, pasta, etc. I like Franz Gluten Free bread, which is available at my local Costco. Food For Life and Little Northern Bakehouse (advertisers here) also make excellent gluten-free breads. Costco also sells gluten-free pizzas, crackers, gravy, etc.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.