Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! More Weight Loss


chrissy

Recommended Posts

chrissy Collaborator

one of my twins has lost 3 1/2 lbs in just over a week. ( 1 1/2 lbs in 2 days) our ped gi is on vacation for a week. i don't know how to get and keep weight on this child. she had gotten up to 81 lbs, but is now down to 73 1/2. she has once (that i know of) cheated on the diet and ate 5 pieces of a toxic cereal. i explained to her that a crumb is too much. she also picked m&m's out of a cookie crumb filled bowl---even though her twin told her not to. would these contaminations cause her to lose weight? she has also gotten rashes back on her elbows.

christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nic Collaborator
one of my twins has lost 3 1/2 lbs in just over a week. ( 1 1/2 lbs in 2 days) our ped gi is on vacation for a week. i don't know how to get and keep weight on this child. she had gotten up to 81 lbs, but is now down to 73 1/2. she has once (that i know of) cheated on the diet and ate 5 pieces of a toxic cereal. i explained to her that a crumb is too much. she also picked m&m's out of a cookie crumb filled bowl---even though her twin told her not to. would these contaminations cause her to lose weight? she has also gotten rashes back on her elbows.

christine

Hi, are your sure she hasn't gotten into anything else? I know it can be tempting for children to cheat. Also, did she have any symptoms after she cheated? I know that having "D" can cause weight loss as well as the malasorption. I am not sure though if such a small amount can cause such drastic weight loss. I would call your Pediatrician since your GI is on vacation (or maybe he has a covering doctor).

ryebaby0 Enthusiast

I'm assuming your peds GI isn't practicing alone -- I'd call the office and ask them for another doctor there to give you an opinion, or call your pediatrician. But it seems to me that yes-- being glutenated could cause that much weight loss if she has D. Try rice, bananas, chicken, applesauce, and chocolate Ensure until she is gaining again, and lock up the forbidden foods if she's a cheater. (Peanut butter is another thing with lots of calories, if she's not allergic; milkshakes are good too)

joanna

ms-sillyak-screwed Enthusiast

Don't feed babies SOY! NO matter what the doc says.

I added this post last night PLEASE take a minute and READ. SOY IS POISON!!

Open Original Shared Link

I pulled up the ensure web site and looked up what is in it. click on the link to read for yourself.

Open Original Shared Link

Claire Collaborator

If she can have dairy give her gingerale and light cream to drink - once or twice a day. It is an old remedy that came from a doctor back when doctors didn't always reach for the prescription pad. My frail aunt was given this and though she stayed thin she weighed about 90 pounds - compared to the 75 pounds that she was before. Claire

e&j0304 Enthusiast

My gluten intolerant 3 year old has been drinking soy milk for the past 2 years. Now I'm starting to freak out. My little guy drinks it too. Do I really need to be worried about this?

My dd had her thyroid tested in Aug. and her TSH was 2.75. They said that was normal. She had another test too that was supposedly normal.

I guess we should try to get her onto a different milk. It's hard when they can't handle dairy and Rice Dream contains gluten...

Shannon

ms-sillyak-screwed Enthusiast

Read all labels...

I don't have kids so I'm really clueless. Many here know a lot more then I do. But I would stay away from soy at all expense.

I created a web site for my local celiac disease support group and I posted this link on their site. I don't know what they say about soy but take a peek. Open Original Shared Link

Oh I did read something about Open Original Shared Link

M&M have milk in them I know because they were my all time favorite candy I can no longer eat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
My gluten intolerant 3 year old has been drinking soy milk for the past 2 years. Now I'm starting to freak out. My little guy drinks it too. Do I really need to be worried about this?

My dd had her thyroid tested in Aug. and her TSH was 2.75. They said that was normal. She had another test too that was supposedly normal.

I guess we should try to get her onto a different milk. It's hard when they can't handle dairy and Rice Dream contains gluten...

Shannon

Shannon--I use Vance's Dari free--it's a potato based milk type beverage. It's very good--I know some others on here use it for their kids. I can't handle soy or rice, so it's been great for me.

Open Original Shared Link

jaten Enthusiast

Being an adult, I don't know that my experience would equate with your daughter's, but yes, being glutened (and for me 5 pieces of cereal would be a severe glutening right now), I get thrown back into malabsorption and drop 3-5 lbs over the next few days. (This is regardless of the severity of the D)

3-5 lbs for my body is a different percentage than for your child, but if 5 pieces of cereal would do this to my larger body, I would imagine it could do the same to her smaller body. I don't know, but I'm supposing that as I get further out in my recovery, I won't be tossed into malabsorption as quickly. (Seems reasonable that once healed, and no longer teetering on the edge of what was complete villi atrophy, the damage would not revert so quickly, but again, this is just an asumption on my part.)

Good luck to you and your little one.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.