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Alcohol

James47
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James47 Apprentice
James47
Posted

So as some of you already know I was 47 turning 48 before my diagnosis so a lot and a lot of internal damage.

I no longer obviously drink beer unless gluten-free variants of it but does anyone else really struggle when just drink any sorts of alcohol now.

I'm really thinking going tea total and avoiding it completely 

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knitty kitty Grand Master
knitty kitty
Posted
(edited)

Hey, @James47,

I encourage you to avoid alcohol completely.  

Alcohol affects your ability to absorb essential vitamins and minerals just like Celiac does.  

The body can crave alcohol because alcohol breaks down into glucose and the brain likes glucose for fuel. 

Carbohydrates breakdown into glucose, too, but more thiamine is needed to process carbs into fuel than it takes for alcohol to turn into fuel.  In an effort to conserve thiamine when there's insufficient thiamine available, carbs are turned into fat and stored in the abdomen.  

Supplementing with a form of thiamine called Benfotiamine is beneficial.  Benfotiamine has been shown to promote intestinal healing.  Higher doses of thiamine than the RDA are needed to correct thiamine insufficiency.  Thiamine is water soluble and nontoxic even in high doses.  

Once the body has a sufficient supply of thiamine coming in regularly, the cravings for alcohol can disappear because the body has sufficient thiamine to turn carbohydrates completely into glucose as fuel, and no longer needs to store half-processed carbs as fat.  Adopting a low carb diet with thiamine supplementation can help burn off those extra pounds of carbs stored as fat.  

Drinking alcohol can affect the absorption of Niacin.  Niacin is important in energy production along with thiamine.  Think of thiamine and niacin being on opposite ends of a see saw, or pistons in an engine.  Niacin primes the reaction, thiamine is the spark plug creating molecules of energy (ATP), and niacin resets everything for the next stroke. 

Niacin is also important in skin health.  Niacin deficiency is called Pellagra which causes blisters, scaling and discoloration on sun exposed areas of skin.  Pellagra can occur in Celiac Disease.  I have experienced Pellagra.  I also have Dermatitis Herpetiformis.  Pellagra  has been shown to have a correlation to Dermatitis Herpetiformis.  Niacin will improve dermatitis herpetiformis.  A form of Niacin, nicotinic acid, causes the small capillaries in the skin to expand, allowing antibodies to be cleared away from those dermatitis herpetiformis blister deposits.  Niacin helps with the itching as well.  The flushing may be uncomfortable at first.  It's said that the more severe the niacin deficiency, the worse the flushing.  But the flushing does lessen as you continue taking it, so stick with it.  

Without sufficient B vitamins, nerve cells continue to fire sporadically, hence the itching that never stops.  Pyridoxine B 6 is needed for nerve transmission regulation. 

Remember the eight B vitamins work together.  A B Complex as well as high dose thiamine (500 - 2000 mg/day) and niacin (up to 500 mg/day) will correct insufficiencies and thereby improve health.  The eight essential B vitamins are water soluble and easily excreted if not needed.  Taking the B vitamins several times a day increases their absorption.  I took a B Complex and extra thiamine and niacin with the first two meals of the day.  B vitamins may make you wide awake and energetic, so you may not want to take them close to bedtime.  

Do keep us posted on your progress!

Recommended Reading:

Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking

https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/

And...

Cutaneous manifestations in celiac disease

https://pmc.ncbi.nlm.nih.gov/articles/PMC4066147/

Edited by knitty kitty
Typo correction
Scott Adams Grand Master
Scott Adams
Posted

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Alcohol can certainly irritate an inflamed, damaged gut. 

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.  

 

James47 Apprentice
James47
Posted
  • Author

Thanks Scott and others who replied,, funnily enough I had milk other day and noticed my energy just dropped.. obviously bad for you but sugary sweets I Def noticed an almighty energy drop so I dont even have anything like that no more .

Hope you are all feeling well 

Scott Adams Grand Master
Scott Adams
Posted

I would not say that milk is bad for you, but for those who have lactose intolerance, milk allergy, etc., it's best avoided. 

  • 4 months later...
Suze046 Rookie
Suze046
Posted

Hey! I’m recently gluten free and yes I really struggle with alcohol now. I haven’t really drank in 2 months as it just made me feel awful the next day in terms of stomach ache mainly. I’ve had a couple of glasses of white wine here and there (mainly low sulphate) but every time it gives me a gut ache. I think it’s because but guy is so damaged from my journey to discovering my gluten intolerance and hopefully this will improve but honestly I’m just not bothered about having a drink now. I can’t even touch Prosecco or champagne I think the bubbles really upset me! 

Scott Adams Grand Master
Scott Adams
Posted

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery have additional food intolerance issues which could be temporary--wine and other alcoholic beverages might also fit in here. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

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Beverage Proficient
Beverage
Posted

I was diagnosed with Celiacs in 2015. I come from ethnic backgrounds that regularly drink a few glasses of wine or beer with dinner every night. Now that I have been gluten free for 10 years, I definitely have noticed that I gradually wanted that less and less. Now I just have 1 glass with Sunday dinner, and do not want more. Maybe I have just gotten out of the habit, ritual, or maybe my body is telling me. I do feel better overall though.

Suze046 Rookie
Suze046
Posted

Yeah I think my body is definitely telling me to lay off the alcohol I just don’t seem to agree with it right now but that might be because my gut is still trying to heal. 

knitty kitty Grand Master
knitty kitty
Posted

That "gut ache" after drinking may be more than alcohol not agreeing with a gut that's trying to heal.

Alcohol prevents absorption of vitamins, and actually breaks thiamine Vitamin B 1 so it cannot function.  Thiamine deficiency can cause Gastrointestinal Beriberi, with symptoms of digestive upsets and abdominal pain, nausea, vomiting, anorexia, and can cause neurological problems and problems with thinking and judgement.  I've experienced Gastrointestinal Beriberi myself.  Thiamine supplementation is a must, along with the other B vitamins and Vitamin C.  

Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking

https://pubmed.ncbi.nlm.nih.gov/31543793/

https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/

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      My only proof

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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