Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Question?


Lollie

Recommended Posts

Lollie Enthusiast

Does any one get a small itchy rash all over after eating gluten? I was glutened on Tuesday and have been itchy ever since....

Also, I've been gluten free for about four months and I have been very careful, and lucky, and haven't been glutened since the very first few weeks, until now. The question is, do the side effects of the gluten get more severe the longer you are without the gluten? It seemed like I was much sicker and had more joint pain then I had before. And it continued for a solid 2 days, which before, it would have only lasted a few hours.

Thanks for any input!

Lollie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I can get a rash and I can also get hives when I eat gluten. I seemed to get new symptoms after going gluten free that can be quite intense, such as heart problems and stomach pain.

jerseyangel Proficient

Hi Lollie--During a gluten reaction, I get a small rash on my face and itching with no rash all over--especially my neck, arms, sides and back. The itching takes a long time to go away.

plantime Contributor

Each time I have a glutening, I am sicker longer than I was the time before. It makes me that much more careful!

jenvan Collaborator

Have you investigated the rash to be DH yet?

Rusla Enthusiast

My last accidental glutening a few days ago at NYF not only did I get very sick, and itch all over but my DH came out on my skin over a period of two days. This has been the worst with a few minute crumbs of glutening. I find each time gets worse and worse. I am so very careful about being in contact with gluten.

Jnkmnky Collaborator

I've been told the longer you're gluten-free, the higher the chance of actually having a bad reaction such as anaphalayxes shock. After years of being gluten-free, it's a good thing to carry an epi pen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lollie Enthusiast

That's what I was afraid of! I figured it must get worse with time.....

Jenvan- I haven't looked into the DH, because I rarely have any kind of a rash. And this doesn't seem to be the same thing as what I've seen pictured and discribed. But, if it persists......

JerseyAngel- That is what my rash is like. It is mostly on my torso (especially my stomach), and it itches like crazy. Do you take anything like Benedryl?

Believe me, I will be even more careful then I was before!

Lollie

mart Contributor
I've been told the longer you're gluten-free, the higher the chance of actually having a bad reaction such as anaphalayxes shock. After years of being gluten-free, it's a good thing to carry an epi pen.

I just heard that from a man who has celiac and has been gluten free for many years now. His reaction to gluten is anaphylaxis. Yikes!

My little boy has been gluten-free for 8 months now, and although I don't think he has DH, I've noticed that for the longest time he has tiny bumps on the skin of his face (which you can only see if you get really close to him). I don't know what that is, but I'm assuming it's related to celiac and maybe even permanent.

jerseyangel Proficient

Lollie--On my torso and inner forearms, I only get red spots here and there. The rash tends to happen on my face. The itching is widespread, though. I used to use Claritan--just recently, my new allergist put me on Zyrtek, which I like. I know, it's scary when these things happen and it does make me super vigilant ;) I also use a hypoallergenic laundry detergent--usually Purex Free and Clear. I also found a mild bath soap without harsh cleansers to be helpful. California Baby Sensitive line is nice--and I can now get it at Wegmans!

penguin Community Regular
Do you take anything like Benedryl?

Believe me, I will be even more careful then I was before!

Lollie

Whatever you do, don't use topical benadryl! My allergist said it actually makes skin allergies/reactions worse! :o

He told me to just lay on the cortisone...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,667
    • Most Online (within 30 mins)
      7,748

    AubreyMBSMartin
    Newest Member
    AubreyMBSMartin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.