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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor

Rachel,

My daughter had one of those orange jugs. It was a pathetic collection....to say the least.

Rachel has started the Rachelville 2 thread for all that want to come over and gab. :P


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CarlaB Enthusiast

Okay, I need your expertise ... I was going to go on a bike ride with my family. I wiped down my bike, felt bad, so came inside and had a snack. I sat down for about 5 minutes, then went back out. I was getting my water bottle ready and almost totally blacked out, got real dizzy and sat down till Adam came outside and asked him to walk me in.

What's up with that?? I haven't been glutened or caseined. I'm feeling great, except for the fatigue because of having this new appliance in my mouth (my husband had the same fatigue the first few days when he got his invisalign braces) ... any ideas?

DingoGirl Enthusiast
Yeah...I'm a little slow. I thought it was for women only...something about face creams?? :huh:

I figured it out now. Celia clued me in. :lol:

Anyways I figure alot of people (who are as slow as I am) might not go into the thread because of the title. There will definately be no men in R-Ville with a title like that! :lol:

PREMATURE POST - - -

okay now THREE threads to follow - - this is too much! - - - Cecile started the lunacy over there, was just minding my own bidness!! It's a hoot - take a look gals, and brave guys (defnitely female-oriented over there.....)

So many thread and too little time....I may have to resign. :o Can't keep up!!!

Hi to all - - haven't read anything yet today, just the last page here - - gotta get busy in the garden and such - gorgeous day.

xoxo

Rachel--24 Collaborator

Carla,

I'm not sure...do you have low blood sugar? I think Vincent knows alot about that. What did you eat for your snack? I got that feeling a few times when I started eating stuff like candy bars and alot of processed foods. Sometimes I would get shaky, lightheaded or dizzy. I'm not really sure why it happened though. :(

Donna,

I just ummmm...gave a sample to the orange jug....after that I read the directions. Sheeeesh...I'm so backwards about things sometimes. :rolleyes:

Anyways it says this on the directions.

For 3 days before and during the collection of the specimen, exclude the following items from the diet:

coffee, chocolate, bananas, citrus fruits and nuts. I'm not eating these things (good thing) but I thought I'd highlight the chocolate on the list...just for you. ;)

I almost ate nuts yesterday...so glad I didnt. :)

CarlaB Enthusiast

My fasting blood sugar was just tested a couple weeks ago and was normal. Sometimes I think it does get low. With my hurting mouth, I may not be eating enough ... I ate eggs, with ground buffalo and veggies for lunch (soft food). My snack was a chocolate Enjoy Life bar, but I was feeling bad when I ate it and I went outside within a few minutes afterward, so I don't think it could have made my blood sugar drop that quickly, but I don't know. I'm still dizzy just sitting here ... I promised not to get up before they got back.

CarlaB Enthusiast

Okay, I just did a search on "dental vertigo" and it said that TMJ and malocclusion can cause vertigo. Since this appliance is messing with my whole jaw, I guess in theory it could be what's causing my dizziness. This is scary!!

dlp252 Apprentice
Okay, I need your expertise ... I was going to go on a bike ride with my family. I wiped down my bike, felt bad, so came inside and had a snack. I sat down for about 5 minutes, then went back out. I was getting my water bottle ready and almost totally blacked out, got real dizzy and sat down till Adam came outside and asked him to walk me in.

What's up with that?? I haven't been glutened or caseined. I'm feeling great, except for the fatigue because of having this new appliance in my mouth (my husband had the same fatigue the first few days when he got his invisalign braces) ... any ideas?

Premature post....that's exactly what was happening to me around the first of the year...I happened to be in my surgeon's office for a pre-op appointment...we were almost done talking when I felt it coming on. I told him I felt like I was going to pass out, so he had me lay back on the table and called the nurse in who took my blood pressure...it had dropped REALLY low...they had taken it when I first went in as part of their normal patient routine and it had gone from something like 106 (can't remember what the second number wsa) to 90/50...I've had that happen before and I'm thinking it was probably always related to blood pressure...it usually happens when I have blood drawn--I can feel the blood draining from my head in that instance, but it also happens at other times...fortunately not too often anymore. In that case I think I was dehydrated...I had blood drawn in the morning then went shopping and didn't have my water with me, then went to the pre-op appt.

It also sometimes happens if I change altitude too quickly...like standing to floor or floor to standing, but not often.

Donna,

I just ummmm...gave a sample to the orange jug....after that I read the directions. Sheeeesh...I'm so backwards about things sometimes. :rolleyes:

Anyways it says this on the directions.

For 3 days before and during the collection of the specimen, exclude the following items from the diet:

coffee, chocolate, bananas, citrus fruits and nuts. I'm not eating these things (good thing) but I thought I'd highlight the chocolate on the list...just for you. ;)

I almost ate nuts yesterday...so glad I didnt. :)

:lol::lol::lol: Sheesh...I'll have to fast for the three days before that test. :lol: Just had some macademia nuts...that's probably bad, lol. :rolleyes:

Okay, I just did a search on "dental vertigo" and it said that TMJ and malocclusion can cause vertigo. Since this appliance is messing with my whole jaw, I guess in theory it could be what's causing my dizziness. This is scary!!

Okay, so ignore my premature post above...this sounds pretty scarey! I do know that dizzyness was one of my main symptoms at the time I joined this thread and it's a horrible feeling, so I'm so sorry you're going through it.


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CarlaB Enthusiast
Okay, so ignore my premature post above...this sounds pretty scarey! I do know that dizzyness was one of my main symptoms at the time I joined this thread and it's a horrible feeling, so I'm so sorry you're going through it.

Thank you. And I was just starting to get really healthy, now I look like a sicky again! :(

Green12 Enthusiast

I am behind on the scientificness here, will have to catch up....

:lol: Rachel at the Ener-G bread, yes very sad and yet so exciting at the same time!

I have not been able to find a bread I can eat, they all just make me plain sick. Too many ingredients I guess, and too processed.

I am stuck with my corn tortillas and I have been eating the rice tortillas once in a while and I seem to do ok with them. And I have had tamales, potatoes, and some potato chips.

I would like to figure out a corn bread recipe I can eat, maybe that would be my "bread"

Am interested about the histamine pee test :lol: how do they treat it if your levels are abnormal??

Thank you. And I was just starting to get really healthy, now I look like a sicky again! :(

Oh Carla, I'm so sorry :(

Still waiting for the progluten reactions from yesterday.....my mom forgot about the flour she coats the pot roast with. She said it was just a little and shouldn't hurt us. :o:(

Andrea, how is everyone feeling so far??

Judyin Philly Enthusiast

ORANGE 'PEE' JUG STORY--- WHEN BEING TESTED FOR CUSHINGS...I WAS STILL WORKING..AND HAD TO COLLECT ALL PEE 24/7 FOR 7 DAYS, YES THAT'S ONE FULL WEEK.

TRY PEEING IN A JUG IN A HOSPITAL BATH ROOM :ph34r:

ONE THE LAST DAY...THE DR OFFICE CALLED AND SAID, "JUDY, I DON'T KNOW HOW TO TELL YOU THIS..BUT ON DAY 5 ONE OF YOUR JUGS LEAKED IN THE TRANSPORT VAN AND SO...WE'LL HAVE TO START ALL OVER AGAIN. I TOLD THEM WHAT THEY COULD DO WITH THEIR 'BIG ORANGE JUGS'

NEVER DID RULE IT OUT...I TOOK A PILL THAT STARTED WITH A 'D' THE DAY BEFORE THE FIRST JUG COLLECTION. MAYBE ONE OF YOU WILL KNOW WHAT IT WAS. ALL THE SWELLING IN MY BODY WAS GONE THE DAY AFTER TAKING IT...STILL CAN'T REMEMBER WHAT IT WAS.

JUDY IN PHILLY

CarlaB Enthusiast
ORANGE 'PEE' JUG STORY--- WHEN BEING TESTED FOR CUSHINGS...I WAS STILL WORKING..AND HAD TO COLLECT ALL PEE 24/7 FOR 7 DAYS, YES THAT'S ONE FULL WEEK.

TRY PEEING IN A JUG IN A HOSPITAL BATH ROOM :ph34r:

ONE THE LAST DAY...THE DR OFFICE CALLED AND SAID, "JUDY, I DON'T KNOW HOW TO TELL YOU THIS..BUT ON DAY 5 ONE OF YOUR JUGS LEAKED IN THE TRANSPORT VAN AND SO...WE'LL HAVE TO START ALL OVER AGAIN. I TOLD THEM WHAT THEY COULD DO WITH THEIR 'BIG ORANGE JUGS'

NEVER DID RULE IT OUT...I TOOK A PILL THAT STARTED WITH A 'D' THE DAY BEFORE THE FIRST JUG COLLECTION. MAYBE ONE OF YOU WILL KNOW WHAT IT WAS. ALL THE SWELLING IN MY BODY WAS GONE THE DAY AFTER TAKING IT...STILL CAN'T REMEMBER WHAT IT WAS.

JUDY IN PHILLY

I would think they could have found something out since they were missing only one day!!

Rachel--24 Collaborator

Carla, I bet you're right about the appliance being the culprit! That really sucks though. :(

Julie,

I wonder if we could all come up with some kind of corn bread??? That would be so cool and so yummy....I love corn bread. :D

Ummm...I have no idea what they would do if the levels come back high. :unsure:

Right now I'm just gonna see if I'm right about it....one step at a time.... just having something come back abnormal would be cause for celebration. I think I might throw a party. :lol:

How twisted is that?? :lol:

At least if they see something is wrong and it corresponds to what I'm saying....I would think the docs would start looking into it....trying to get to the bottom of why this is happening. Thats my hope anyway. There are lots of reasons why histamine levels can rise. As far as I know the only treatment is restricted diet and antihistamines. Hopefully if the test is positive my doc will prescribe a compounded antihistamine if possible. Since the place I go to looks into the causes for these type things I'm hoping they will want to figure out whats causing the elevated histamine levels.

If the test is negative I'll be bummed....I better not build myself up too much.

ONE THE LAST DAY...THE DR OFFICE CALLED AND SAID, "JUDY, I DON'T KNOW HOW TO TELL YOU THIS..BUT ON DAY 5 ONE OF YOUR JUGS LEAKED IN THE TRANSPORT VAN AND SO...WE'LL HAVE TO START ALL OVER AGAIN. I TOLD THEM WHAT THEY COULD DO WITH THEIR 'BIG ORANGE JUGS'

:lol::lol::lol:

Judy, hilarious!!

I hope mine doesnt leak while I transport it from Manteca to my Mom's. Cant have my car reeking like pee. :ph34r: That would NOT be good. <_<

I have to figure something out though. The test needs to be exactly 24 hours. I started at 8:30 this morning....so I have to take my last sample at the same time tomorrow. I'll be at work at that time....no way am I gonna bring the big orange jug to work with me. :blink: It needs to be refridgerated so what am I suppossed to do put it in the break room fridge??? :lol:

I'm thinking The Dave may have a problem with me doing that. :P

I suppose I could "hide" it somewhere in my dairy cooler. I could quickly dash from the cooler to the restroom (cant exactly hide the jug under my shirt though)...I will just have to make sure the coast is clear.

I'll peek out of the cooler :unsure: .....make sure nobody is around...and then RUN! :lol:

Getting back into the cooler with the orange jug may be more of a challenge. <_<

EDIT: OMG....I seee The Dave. :o

Umm...I was just kiddin....I'm not really gonna bring the "orange jug" to work. hehehe :ph34r:

CarlaB Enthusiast
I have to figure something out though. The test needs to be exactly 24 hours. I started at 8:30 this morning....so I have to take my last sample at the same time tomorrow. I'll be at work at that time....no way am I gonna bring the big orange jug to work with me. :blink: It needs to be refridgerated so what am I suppossed to do put it in the break room fridge??? :lol:

I'm thinking The Dave may have a problem with me doing that. :P

I suppose I could "hide" it somewhere in my dairy cooler. I could quickly dash from the cooler to the restroom (cant exactly hide the jug under my shirt though)...I will just have to make sure the coast is clear.

I'll peek out of the cooler :unsure: .....make sure nobody is around...and then RUN! :lol:

Getting back into the cooler with the orange jug may be more of a challenge. <_<

Well, since The Dave has no authority over you, I guess you can do what you want. Put a big orange juice sticker on it, then just hope no one sells it!!!

Rachel--24 Collaborator
Well, since The Dave has no authority over you, I guess you can do what you want. Put a big orange juice sticker on it, then just hope no one sells it!!!

ROFLMAO!!!

:lol::lol::lol:

Can you imagine??? :lol:

Dave, this thread is full of scientificness...alien baby talk...orange pee jugs....you know boring ...not really your cup of tea. :P

There is another thread for Rachelville fun stuff....its in the Gab Forum. ;)

VydorScope Proficient

CarlB...

Fasting blood sugar WILL NOT test for low blood sugar, it is how ever one of hte tests for DIABETAES which is High Blood Sugar.

Do you have a home glucose testor? If so the test for LOW blood sugar (also know as hypoglycemia) is easy to do at home. The test kits are litk $15-$20 if you get an elcheapo which is all you need for this. I have the CVS sotre brand. Came with 10 test strips, and you will only need 5 or so for this.

What you do is first fast for AT LEAST eight hours. Its easiest to do this while your sleeping. Then test your blood sugar, it should be between like 70 and 120. If so, that is good and pretty much what you already tested, but theres more to come...

Next eat a sugary meal. Somthing most ppl would be fine with, but on the surgary side, aviod or minimaze protien/fat. Note the time you START eating. After that meal do not eat any more or it will efect the test. Then every hour check your blood sugar (from the time you started eating). YOur first test at one hour should be the highest, but under 140 or so. After that it should fall steadily. Do this for 4 hours. Your score should never drop below 70ish. If you get a low score AND you start feeling symptons (nausa, light headed, shakes, etc), then eat somthing!!! Wiat 15-20 after that and retest. If your symptons start clearing up, and your score heads back up thats considered diagnostic of "Reactive Hypoglycema".

Take those results to your doctor for an offical dx. Pleaes note the diabtes test where they make you drink a jug of sweet liquid is NOT SAFE for hypoglycemics, as it will cause a what we call a "crash".

If thats not clear, please ask away , and if I mis your question PM me :)

Good luck!

If you ever get a number over say 180 or 200, that would be indictiave of diabetes and you would need to talk to your doc about that.

mouse Enthusiast

Carla - I just lost it over the orange sticker and the hope no one would sell it. Thanks for the belly laugh. I have just spent over 30 minutes reading all 3 threads and I should be in the kitchen baking some things for me to put weight on.

CarlaB Enthusiast
Carla - I just lost it over the orange sticker and the hope no one would sell it. Thanks for the belly laugh. I have just spent over 30 minutes reading all 3 threads and I should be in the kitchen baking some things for me to put weight on.

Thanks!! I LOVE it when people laugh at my jokes!!! B)

CarlB...

Fasting blood sugar WILL NOT test for low blood sugar, it is how ever one of hte tests for DIABETAES which is High Blood Sugar.

Do you have a home glucose testor? If so the test for LOW blood sugar (also know as hypoglycemia) is easy to do at home. The test kits are litk $15-$20 if you get an elcheapo which is all you need for this. I have the CVS sotre brand. Came with 10 test strips, and you will only need 5 or so for this.

What you do is first fast for AT LEAST eight hours. Its easiest to do this while your sleeping. Then test your blood sugar, it should be between like 70 and 120. If so, that is good and pretty much what you already tested, but theres more to come...

Next eat a sugary meal. Somthing most ppl would be fine with, but on the surgary side, aviod or minimaze protien/fat. Note the time you START eating. After that meal do not eat any more or it will efect the test. Then every hour check your blood sugar (from the time you started eating). YOur first test at one hour should be the highest, but under 140 or so. After that it should fall steadily. Do this for 4 hours. Your score should never drop below 70ish. If you get a low score AND you start feeling symptons (nausa, light headed, shakes, etc), then eat somthing!!! Wiat 15-20 after that and retest. If your symptons start clearing up, and your score heads back up thats considered diagnostic of "Reactive Hypoglycema".

Take those results to your doctor for an offical dx. Pleaes note the diabtes test where they make you drink a jug of sweet liquid is NOT SAFE for hypoglycemics, as it will cause a what we call a "crash".

If thats not clear, please ask away , and if I mis your question PM me :)

Good luck!

If you ever get a number over say 180 or 200, that would be indictiave of diabetes and you would need to talk to your doc about that.

Thank you, I will walk to the pharmacy now (supervised by my daughter, but we live on the same block as the pharmacy, so it's as close as my car ...). I'll keep you posted.

AndreaB Contributor
I'll be at work at that time....no way am I gonna bring the big orange jug to work with me. :blink: It needs to be refridgerated so what am I suppossed to do put it in the break room fridge??? :lol:

I'm thinking The Dave may have a problem with me doing that. :P

I suppose I could "hide" it somewhere in my dairy cooler. I could quickly dash from the cooler to the restroom (cant exactly hide the jug under my shirt though)...I will just have to make sure the coast is clear.

I'll peek out of the cooler :unsure: .....make sure nobody is around...and then RUN! :lol:

Getting back into the cooler with the orange jug may be more of a challenge. <_<

EDIT: OMG....I seee The Dave. :o

Umm...I was just kiddin....I'm not really gonna bring the "orange jug" to work. hehehe :ph34r:

ROFL

:lol::lol::lol::lol:

queenofhearts Explorer

On the subject of corny scientificness,

1. Polenta!!!!! I love it but then I'm a grits lover & they're close cousins. I like it best after it's been chilled & then fried in olive oil & garlic. It's scrumptious with tomato sauce, for those who can eat that... or ratatouille.

2. Corn eating bread questers-- I've been thinking about coming up with a recipe that's somewhere between corn bread, tortillas & a pancake, that is, thicker, softer & fluffier than tortillas, but usable as a sandwich matrix... What are your dos & don'ts for quick breads? Soda okay? Are egg yolks out too, or only whites? Please advise & I'll try to accomodate.

3. Lime in hominy/ grits/ masa-- it's my understanding that it all gets washed off, but I suppose it's conceivable there is a tiny bit of residue. But it is an alkali, & don't you have a problem with acids? So it might even help...

Leah

miamia Rookie
Donna, I always react to the rice cakes.....its a quicker reaction then what I'd get from plain brown rice or brown rice cereal. I've been wondering what it is exactly about the cakes that do me in. From what I've read about it when stuff is heated past the boiling point they develop more amines. When foods ripen or ferment they develop more amines. Really ripe bananas will have alot of amines (even not ripe they are considered high). I'm thinking the way the rice cakes are made they probably are heated and develop more amines that way. Since I'm already overloaded I'll react pretty quickly. If I wasnt overloaded I could probably eat the cakes now and then as long as I dont overdo it and reach my threshhold.

The "orange pee jug" (:lol:) and the bloodtest are both for histamines. I asked the doctor at HN if she could order me the test. She wasnt familiar with it but she looked it up, ordered it and gave me the lab slip. On the lab slip there was a bunch of labs to go to for the test. I picked one on Remmington in Sunnyvale. Just went in on Friday and walked out with a huge orange pee jug. :lol:

Are you doing the test for histamines? Or is the orange jug universal for all sorts of "pee tests"?? :lol:

Its already 12:30 and I havent even gone yet. The first morning one doesnt count....you're not suppossed to "save" that one. My jug is gonna be so not full. :rolleyes:

My doctor is testing me for a bunch of things so I am not sure if this one is for histamines or its the universal orange jug- it may be. Its 8:30 Pm here and I have been peeing in this stupid thing since 7 in the morning. I always pee frequently so I am doing pretty good at filling it up but I think I might go mad in the process!!

Miamia

Rachel--24 Collaborator
1. Polenta!!!!! I love it but then I'm a grits lover & they're close cousins. I like it best after it's been chilled & then fried in olive oil & garlic. It's scrumptious with tomato sauce, for those who can eat that... or ratatouille.

Just got back from the store...was grabbing my pears and guess what was right above them on the produce rack?? A tube of polenta! Organic too. I bought it but not sure when I'll try it...kinda scared. Hopefully if its good I dont pull a Rachel and eat the whole thing at once. :rolleyes:

miamia Rookie
Just got back from the store...was grabbing my pears and guess what was right above them on the produce rack?? A tube of polenta! Organic too. I bought it but not sure when I'll try it...kinda scared. Hopefully if its good I dont pull a Rachel and eat the whole thing at once. :rolleyes:

there are all these easy things you can do with it including making pizza from it. Rachel- what flours if any can you tolerate now? I bet we could come up tih a corn bread I am a pretty good cook- chef in rachelville

miamia

ROFL

:lol::lol::lol::lol:

Andrea-

how is everyone feeling

queenofhearts Explorer

Hope you enjoy it! Remember to fry-- right out of the tube it would taste pretty gross. But it's good with just salt & pepper if you can't do garlic or other yummies...

Leah

penguin Community Regular

Well, I only add bulk and nothing useful, so I'm leaving the thread.

Hope you all feel better!

AndreaB Contributor
Andrea-

how is everyone feeling

Some upset tummies today, but so far nothing real bad.

Hopefully you and Rachel will get some answers from the pee test.

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      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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