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Rachel--24

Omg...i Might Be On To Something

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Some upset tummies today, but so far nothing real bad.

Hopefully you and Rachel will get some answers from the pee test.

Good Andrea, I hope it doesn't get any worse than that for you all.

evie- I didn't get the chance to say how much I love your new picture, so good to finally put a face to your name!!

Chelse- head down to the Rachelville 2 thread! And you too were useful. We learned a lot about your gluten challenge and anemia, and and...how instrumental out purple glittery bats are.

I might try some polenta. Thanks for the suggestion Leah and miamia

Also thanks Leah for the post on the lime in the tortillas. I am not suppose to have citrus either and all corn tortillas have a trace of lime, I seem to do ok with them so your post makes sense.

As far as the corn bread goes, I think soda and baking powder are fine, I have a list that says small quantities of eggs in a baked product is usually tolerated for a low histamine diet. The liquid might be a problem...

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Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??


Rachel

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I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

There was just a thread on this! I'm a water advocate, myself, but there was some dispute...


The Queen of Hearts,

She made some tarts

All on a summer's day.

The Knave of Hearts,

He stole the tarts

And took them clean away.

Diagnosed at age 49 by biopsy 31 May 2006

Learning how to bake those tarts gluten-free!

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I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Yes you should drink more water. Some scientificness:

Drinking water helps nearly every part of the human body function. Considering that our flesh vessels are almost 50-80% water, depending on how much body fat you have, understanding its important role in our lives can be a fountain of health. Water makes up more than 75% of your brain, 80% of your blood and 70% of lean muscle. Absolutely every system in the human body depends on water. H2O regulates body temperature, removes wastes, carries much-needed oxygen and nutrients to your cells, helps cushion your joints, prevents chronic constipation, alleviates the burden on your already-stressed kidneys and liver, helps reduce headaches and dizziness, aids in digestion and dissolves vitamins, minerals and other nutrients so you can utilize them better.

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Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(


Rachel

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I completely agree. Here's the thread:

http://www.glutenfreeforum.com/index.php?s...l=#topicoptions

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

Wow, you even "Rachel" water!


The Queen of Hearts,

She made some tarts

All on a summer's day.

The Knave of Hearts,

He stole the tarts

And took them clean away.

Diagnosed at age 49 by biopsy 31 May 2006

Learning how to bake those tarts gluten-free!

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Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

:lol::lol::lol::lol::lol:

That's the thing about drinking water, not too little, not too much. A happy medium, imo at least.

Oooh I found some more scientificness about histamine and uticaria (hives) and angioedema:

Urticaria and angioedema symptoms result primarily from the physiological actions of histamine. Some individuals with urticaria have a decreased ability to degrade dietary histamine before it enters the circulation. Foods high in histamine, such as fermented foods, may exacerbate urticaria and angioedema in these individuals. Certain food additives may increase endogenous release of histamine and urticaria and angloedema symptoms

Plasma histamine, an important mediator of urticaria (hives) and angioedema, may be increased by diet through two mechanisms. First, under normal conditions, dietary histamine is degraded in the intestine by mucosal diamine oxidase enzyme (DAO); this prevents histamine's entry into the circulation. However, in chronic urticaria, DAO activity is decreased (1) and dietary histamine may increase plasma histamine (2). Second, certain foods and food additives may increase the endogenous release of histamine (3,4); this results in increased plasma histamine.

All very interesting to me since I have angioedema, but you know how many posts I come across on this board about people having hives/uticaria? It all has to relate somehow to the digestive process, lowered/heightened immunity, multiple food intolerances/allergies ...

And another thing, through my research I found out that meds for heart burn/reflux/GERD are mostly H2 blockers, as in histamine 2 blockers.

Duh, duh, duh....

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Wow, you even "Rachel" water!

ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<


Rachel

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ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Hey, she had an alien baby!


The Queen of Hearts,

She made some tarts

All on a summer's day.

The Knave of Hearts,

He stole the tarts

And took them clean away.

Diagnosed at age 49 by biopsy 31 May 2006

Learning how to bake those tarts gluten-free!

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Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Got that right - only try twins!!!!! :blink:


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Got that right - only try twins!!!!! :blink:

Hey, Karen, I have twin boys too! They're 19 now... but I remember that feeling!

Leah


The Queen of Hearts,

She made some tarts

All on a summer's day.

The Knave of Hearts,

He stole the tarts

And took them clean away.

Diagnosed at age 49 by biopsy 31 May 2006

Learning how to bake those tarts gluten-free!

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Got that right - only try twins!!!!! :blink:

I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D


Rachel

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I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.


The Queen of Hearts,

She made some tarts

All on a summer's day.

The Knave of Hearts,

He stole the tarts

And took them clean away.

Diagnosed at age 49 by biopsy 31 May 2006

Learning how to bake those tarts gluten-free!

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Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Yeah...I used to think it would be the greatest thing...having twins. Not so much anymore though. One please. :D

That'll be fine for me.....two at once would wear me out for sure.


Rachel

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Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Ok Rachel-

I just had my blood work done and dropped off my orange jug o'pee . Mine was pretty full. I drink alot during the day normally. You should too. the best thing to do is to drink water beween meals, but less with meals becasue if you drink alot while you eat you wash away the enzymes and acids you need for digestion and we now you and i don't have the best digestive systems as is.- Hope this is helpful.

Miamia

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Your urine collection reminds me of the hell I went through last year doing the stool collection in a paint can! When the doctor said to me to collect everything in a paint can (which they so generously provide), I said "Ah, I think I need more than one paint can". He didn't believe me, but said to pick up two anyway. Sure enough, 24 hours later and 1 and 1/2 cans later, I proved him wrong! Man, I really, really felt sorry for whoever worked in that lab and had to open up those cans! Can you spell T-O-X-I-C?????

Anyway, when I went back to see him, he said that the volume of diarrhea that I had was almost double what the maximum normal amount usually is......... I refrained from saying "I told ya so........." :rolleyes:


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Rachel,

It is very intresting ,the histamine test,so if you have elvevated histamine level,(I guess ,you would)

what is the next step.? do you have any plan?

by the way your idieas and theories are wonderful.

elisabet

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Drive-by posting?????

Penguin -- you're leaving the thread ----- :(:(:( Why?

Weekend went well, dad seems normal, but tells me he is in a lot of pain.

I have too many pages to catch-up on. What is this about a Rachelville 2 thread?


Biopsy Feb 2006 - positive for celiac disease

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Guest Robbin

:) Hi All! I am recovering from the trip. Not good at all. Celia, your post/quote was so beautiful, it made me cry.

Rachel, you have helped me so much on this thread and I am sorry, I was one of the culprits who was a little too wacky and didn't stay on topic enough. :(

I have had so many "aha" moments on here. I would be forever questioning my own sanity had it not been for others who, to my astonishment, have the same or similar symptoms as I do. Corn, sweet potatoes, beans, tapioca, some waters, etc. have all been problems for me and when I read that someone else has the same problems and is looking for the answers too, well it is like finding a long lost sister (or brother). It makes you feel not so alone, miserable and nutty.

I am so glad to know all of you.

Celia, the coffee--I have been so sick the past three days, but a cup of coffee and (sorry) a nicotine fix along with immodium has kept me from wanting to end it all, (kidding only a little :blink: )

Mia, and Rachel, the pee jug is also used for kidney function testing-diabetics regularly have these too. Half my family at one point or another has a pee jug in the 'fridge, lol.

Judy -when you had your pee experience, they probably gave you a diuretic of some sort. I am sorry it was so miserable for you, but honestly it made me laugh and dear one, I NEED all the laughs I can get right now.

This whole miserable disease has got me so low I can see worm belly. It is also a non-fun dysfunctional-fam thing type depression thingy that I will survive :blink: (lots of wordage there, lol)

Thank you for the prayers for the safe trip. All I can say is the angels must have been watching over us, cause we had so many near misses. I vow to stay home for a good long time, lol.

Love, R

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Good morning everyone, I haven't been able to post on this thread for a couple of days, from my computer, and this is a test.


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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Hi Rinne,

Do you know about Rachelville 2 thread?


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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