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Omg...i Might Be On To Something


Rachel--24

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Green12 Enthusiast
Some upset tummies today, but so far nothing real bad.

Hopefully you and Rachel will get some answers from the pee test.

Good Andrea, I hope it doesn't get any worse than that for you all.

evie- I didn't get the chance to say how much I love your new picture, so good to finally put a face to your name!!

Chelse- head down to the Rachelville 2 thread! And you too were useful. We learned a lot about your gluten challenge and anemia, and and...how instrumental out purple glittery bats are.

I might try some polenta. Thanks for the suggestion Leah and miamia

Also thanks Leah for the post on the lime in the tortillas. I am not suppose to have citrus either and all corn tortillas have a trace of lime, I seem to do ok with them so your post makes sense.

As far as the corn bread goes, I think soda and baking powder are fine, I have a list that says small quantities of eggs in a baked product is usually tolerated for a low histamine diet. The liquid might be a problem...


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Rachel--24 Collaborator

Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

queenofhearts Explorer
I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

There was just a thread on this! I'm a water advocate, myself, but there was some dispute...

Green12 Enthusiast
I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Yes you should drink more water. Some scientificness:

Drinking water helps nearly every part of the human body function. Considering that our flesh vessels are almost 50-80% water, depending on how much body fat you have, understanding its important role in our lives can be a fountain of health. Water makes up more than 75% of your brain, 80% of your blood and 70% of lean muscle. Absolutely every system in the human body depends on water. H2O regulates body temperature, removes wastes, carries much-needed oxygen and nutrients to your cells, helps cushion your joints, prevents chronic constipation, alleviates the burden on your already-stressed kidneys and liver, helps reduce headaches and dizziness, aids in digestion and dissolves vitamins, minerals and other nutrients so you can utilize them better.

Rachel--24 Collaborator

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

queenofhearts Explorer

I completely agree. Here's the thread:

Open Original Shared Link

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

Wow, you even "Rachel" water!

Green12 Enthusiast
Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

:lol::lol::lol::lol::lol:

That's the thing about drinking water, not too little, not too much. A happy medium, imo at least.

Oooh I found some more scientificness about histamine and uticaria (hives) and angioedema:

Urticaria and angioedema symptoms result primarily from the physiological actions of histamine. Some individuals with urticaria have a decreased ability to degrade dietary histamine before it enters the circulation. Foods high in histamine, such as fermented foods, may exacerbate urticaria and angioedema in these individuals. Certain food additives may increase endogenous release of histamine and urticaria and angloedema symptoms

Plasma histamine, an important mediator of urticaria (hives) and angioedema, may be increased by diet through two mechanisms. First, under normal conditions, dietary histamine is degraded in the intestine by mucosal diamine oxidase enzyme (DAO); this prevents histamine's entry into the circulation. However, in chronic urticaria, DAO activity is decreased (1) and dietary histamine may increase plasma histamine (2). Second, certain foods and food additives may increase the endogenous release of histamine (3,4); this results in increased plasma histamine.

All very interesting to me since I have angioedema, but you know how many posts I come across on this board about people having hives/uticaria? It all has to relate somehow to the digestive process, lowered/heightened immunity, multiple food intolerances/allergies ...

And another thing, through my research I found out that meds for heart burn/reflux/GERD are mostly H2 blockers, as in histamine 2 blockers.

Duh, duh, duh....


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Rachel--24 Collaborator
Wow, you even "Rachel" water!

ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

CarlaB Enthusiast
ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

queenofhearts Explorer
Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Hey, she had an alien baby!

morganb Newbie
Hey, she had an alien baby!

lol :lol:

Canadian Karen Community Regular
Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Got that right - only try twins!!!!! :blink:

queenofhearts Explorer
Got that right - only try twins!!!!! :blink:

Hey, Karen, I have twin boys too! They're 19 now... but I remember that feeling!

Leah

VydorScope Proficient
Well, I only add bulk and nothing useful, so I'm leaving the thread.

Hope you all feel better!

:(:(:( Your welcom here!!!

Rachel--24 Collaborator
Got that right - only try twins!!!!! :blink:

I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

queenofhearts Explorer
I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Rachel--24 Collaborator
Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Yeah...I used to think it would be the greatest thing...having twins. Not so much anymore though. One please. :D

That'll be fine for me.....two at once would wear me out for sure.

miamia Rookie
Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Ok Rachel-

I just had my blood work done and dropped off my orange jug o'pee . Mine was pretty full. I drink alot during the day normally. You should too. the best thing to do is to drink water beween meals, but less with meals becasue if you drink alot while you eat you wash away the enzymes and acids you need for digestion and we now you and i don't have the best digestive systems as is.- Hope this is helpful.

Miamia

Canadian Karen Community Regular

Your urine collection reminds me of the hell I went through last year doing the stool collection in a paint can! When the doctor said to me to collect everything in a paint can (which they so generously provide), I said "Ah, I think I need more than one paint can". He didn't believe me, but said to pick up two anyway. Sure enough, 24 hours later and 1 and 1/2 cans later, I proved him wrong! Man, I really, really felt sorry for whoever worked in that lab and had to open up those cans! Can you spell T-O-X-I-C?????

Anyway, when I went back to see him, he said that the volume of diarrhea that I had was almost double what the maximum normal amount usually is......... I refrained from saying "I told ya so........." :rolleyes:

elisabet Contributor

Rachel,

It is very intresting ,the histamine test,so if you have elvevated histamine level,(I guess ,you would)

what is the next step.? do you have any plan?

by the way your idieas and theories are wonderful.

elisabet

Jean-Luc Rookie

Drive-by posting?????

Penguin -- you're leaving the thread ----- :(:(:( Why?

Weekend went well, dad seems normal, but tells me he is in a lot of pain.

I have too many pages to catch-up on. What is this about a Rachelville 2 thread?

Jean-Luc Rookie

Ok, I had a pre-mature post --- :lol:

I found the other thread.

Guest Robbin

:) Hi All! I am recovering from the trip. Not good at all. Celia, your post/quote was so beautiful, it made me cry.

Rachel, you have helped me so much on this thread and I am sorry, I was one of the culprits who was a little too wacky and didn't stay on topic enough. :(

I have had so many "aha" moments on here. I would be forever questioning my own sanity had it not been for others who, to my astonishment, have the same or similar symptoms as I do. Corn, sweet potatoes, beans, tapioca, some waters, etc. have all been problems for me and when I read that someone else has the same problems and is looking for the answers too, well it is like finding a long lost sister (or brother). It makes you feel not so alone, miserable and nutty.

I am so glad to know all of you.

Celia, the coffee--I have been so sick the past three days, but a cup of coffee and (sorry) a nicotine fix along with immodium has kept me from wanting to end it all, (kidding only a little :blink: )

Mia, and Rachel, the pee jug is also used for kidney function testing-diabetics regularly have these too. Half my family at one point or another has a pee jug in the 'fridge, lol.

Judy -when you had your pee experience, they probably gave you a diuretic of some sort. I am sorry it was so miserable for you, but honestly it made me laugh and dear one, I NEED all the laughs I can get right now.

This whole miserable disease has got me so low I can see worm belly. It is also a non-fun dysfunctional-fam thing type depression thingy that I will survive :blink: (lots of wordage there, lol)

Thank you for the prayers for the safe trip. All I can say is the angels must have been watching over us, cause we had so many near misses. I vow to stay home for a good long time, lol.

Love, R

rinne Apprentice

Good morning everyone, I haven't been able to post on this thread for a couple of days, from my computer, and this is a test.

AndreaB Contributor

Hi Rinne,

Do you know about Rachelville 2 thread?

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I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
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