Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Green12 Enthusiast
Some upset tummies today, but so far nothing real bad.

Hopefully you and Rachel will get some answers from the pee test.

Good Andrea, I hope it doesn't get any worse than that for you all.

evie- I didn't get the chance to say how much I love your new picture, so good to finally put a face to your name!!

Chelse- head down to the Rachelville 2 thread! And you too were useful. We learned a lot about your gluten challenge and anemia, and and...how instrumental out purple glittery bats are.

I might try some polenta. Thanks for the suggestion Leah and miamia

Also thanks Leah for the post on the lime in the tortillas. I am not suppose to have citrus either and all corn tortillas have a trace of lime, I seem to do ok with them so your post makes sense.

As far as the corn bread goes, I think soda and baking powder are fine, I have a list that says small quantities of eggs in a baked product is usually tolerated for a low histamine diet. The liquid might be a problem...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator

Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

queenofhearts Explorer
I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

There was just a thread on this! I'm a water advocate, myself, but there was some dispute...

Green12 Enthusiast
I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Yes you should drink more water. Some scientificness:

Drinking water helps nearly every part of the human body function. Considering that our flesh vessels are almost 50-80% water, depending on how much body fat you have, understanding its important role in our lives can be a fountain of health. Water makes up more than 75% of your brain, 80% of your blood and 70% of lean muscle. Absolutely every system in the human body depends on water. H2O regulates body temperature, removes wastes, carries much-needed oxygen and nutrients to your cells, helps cushion your joints, prevents chronic constipation, alleviates the burden on your already-stressed kidneys and liver, helps reduce headaches and dizziness, aids in digestion and dissolves vitamins, minerals and other nutrients so you can utilize them better.

Rachel--24 Collaborator

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

queenofhearts Explorer

I completely agree. Here's the thread:

Open Original Shared Link

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

Wow, you even "Rachel" water!

Green12 Enthusiast
Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

:lol::lol::lol::lol::lol:

That's the thing about drinking water, not too little, not too much. A happy medium, imo at least.

Oooh I found some more scientificness about histamine and uticaria (hives) and angioedema:

Urticaria and angioedema symptoms result primarily from the physiological actions of histamine. Some individuals with urticaria have a decreased ability to degrade dietary histamine before it enters the circulation. Foods high in histamine, such as fermented foods, may exacerbate urticaria and angioedema in these individuals. Certain food additives may increase endogenous release of histamine and urticaria and angloedema symptoms

Plasma histamine, an important mediator of urticaria (hives) and angioedema, may be increased by diet through two mechanisms. First, under normal conditions, dietary histamine is degraded in the intestine by mucosal diamine oxidase enzyme (DAO); this prevents histamine's entry into the circulation. However, in chronic urticaria, DAO activity is decreased (1) and dietary histamine may increase plasma histamine (2). Second, certain foods and food additives may increase the endogenous release of histamine (3,4); this results in increased plasma histamine.

All very interesting to me since I have angioedema, but you know how many posts I come across on this board about people having hives/uticaria? It all has to relate somehow to the digestive process, lowered/heightened immunity, multiple food intolerances/allergies ...

And another thing, through my research I found out that meds for heart burn/reflux/GERD are mostly H2 blockers, as in histamine 2 blockers.

Duh, duh, duh....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Wow, you even "Rachel" water!

ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

CarlaB Enthusiast
ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

queenofhearts Explorer
Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Hey, she had an alien baby!

morganb Newbie
Hey, she had an alien baby!

lol :lol:

Canadian Karen Community Regular
Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Got that right - only try twins!!!!! :blink:

queenofhearts Explorer
Got that right - only try twins!!!!! :blink:

Hey, Karen, I have twin boys too! They're 19 now... but I remember that feeling!

Leah

VydorScope Proficient
Well, I only add bulk and nothing useful, so I'm leaving the thread.

Hope you all feel better!

:(:(:( Your welcom here!!!

Rachel--24 Collaborator
Got that right - only try twins!!!!! :blink:

I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

queenofhearts Explorer
I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Rachel--24 Collaborator
Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Yeah...I used to think it would be the greatest thing...having twins. Not so much anymore though. One please. :D

That'll be fine for me.....two at once would wear me out for sure.

miamia Rookie
Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Ok Rachel-

I just had my blood work done and dropped off my orange jug o'pee . Mine was pretty full. I drink alot during the day normally. You should too. the best thing to do is to drink water beween meals, but less with meals becasue if you drink alot while you eat you wash away the enzymes and acids you need for digestion and we now you and i don't have the best digestive systems as is.- Hope this is helpful.

Miamia

Canadian Karen Community Regular

Your urine collection reminds me of the hell I went through last year doing the stool collection in a paint can! When the doctor said to me to collect everything in a paint can (which they so generously provide), I said "Ah, I think I need more than one paint can". He didn't believe me, but said to pick up two anyway. Sure enough, 24 hours later and 1 and 1/2 cans later, I proved him wrong! Man, I really, really felt sorry for whoever worked in that lab and had to open up those cans! Can you spell T-O-X-I-C?????

Anyway, when I went back to see him, he said that the volume of diarrhea that I had was almost double what the maximum normal amount usually is......... I refrained from saying "I told ya so........." :rolleyes:

elisabet Contributor

Rachel,

It is very intresting ,the histamine test,so if you have elvevated histamine level,(I guess ,you would)

what is the next step.? do you have any plan?

by the way your idieas and theories are wonderful.

elisabet

Jean-Luc Rookie

Drive-by posting?????

Penguin -- you're leaving the thread ----- :(:(:( Why?

Weekend went well, dad seems normal, but tells me he is in a lot of pain.

I have too many pages to catch-up on. What is this about a Rachelville 2 thread?

Jean-Luc Rookie

Ok, I had a pre-mature post --- :lol:

I found the other thread.

Guest Robbin

:) Hi All! I am recovering from the trip. Not good at all. Celia, your post/quote was so beautiful, it made me cry.

Rachel, you have helped me so much on this thread and I am sorry, I was one of the culprits who was a little too wacky and didn't stay on topic enough. :(

I have had so many "aha" moments on here. I would be forever questioning my own sanity had it not been for others who, to my astonishment, have the same or similar symptoms as I do. Corn, sweet potatoes, beans, tapioca, some waters, etc. have all been problems for me and when I read that someone else has the same problems and is looking for the answers too, well it is like finding a long lost sister (or brother). It makes you feel not so alone, miserable and nutty.

I am so glad to know all of you.

Celia, the coffee--I have been so sick the past three days, but a cup of coffee and (sorry) a nicotine fix along with immodium has kept me from wanting to end it all, (kidding only a little :blink: )

Mia, and Rachel, the pee jug is also used for kidney function testing-diabetics regularly have these too. Half my family at one point or another has a pee jug in the 'fridge, lol.

Judy -when you had your pee experience, they probably gave you a diuretic of some sort. I am sorry it was so miserable for you, but honestly it made me laugh and dear one, I NEED all the laughs I can get right now.

This whole miserable disease has got me so low I can see worm belly. It is also a non-fun dysfunctional-fam thing type depression thingy that I will survive :blink: (lots of wordage there, lol)

Thank you for the prayers for the safe trip. All I can say is the angels must have been watching over us, cause we had so many near misses. I vow to stay home for a good long time, lol.

Love, R

rinne Apprentice

Good morning everyone, I haven't been able to post on this thread for a couple of days, from my computer, and this is a test.

AndreaB Contributor

Hi Rinne,

Do you know about Rachelville 2 thread?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.