Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

dlp252 Apprentice
dlp252
Posted
Donna (or anyone who is interested):

a great list (and its very shocking!)-

Open Original Shared Link

Thank you Laura! Mind boggling isn't it?! I think I've determined that corn isn't the problem (at least not in it's purest form) for me, but I've bookmarked the page just in case. I see many things on that list that DO bother me for some reason so it's good to have.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted
Thank you Laura! Mind boggling isn't it?! I think I've determined that corn isn't the problem (at least not in it's purest form) for me, but I've bookmarked the page just in case. I see many things on that list that DO bother me for some reason so it's good to have.

I avoid obvious corn ... don't really think I have a problem, but I think that until I feel better it's a good idea for me to avoid major allergens. Hopefully, it won't develop into a problem!!! Yikes!

Laura, I thought of you when I ate my short grain brown rice last night .... you are the one who asked that of me, right?

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Yes I did. Thanks for the thought! I am really missing my carbs. I ate a steak for breakfast this morning (hey, I was hungry!)

My husband usually buys me a porterhouse on Friday ... then I eat the leftover steak with eggs and gluten-free toast on Saturday! YUM!! He's in Florida right now, so I guess I'll buy my own steak this week!

Are you intolerant to all carbs at this point?

dlp252 Apprentice
dlp252
Posted
Yes I did. Thanks for the thought! I am really missing my carbs. I ate a steak for breakfast this morning (hey, I was hungry!)

Great minds think alike, lol...I also had steak, ribeye to be exact...also had corn which I know you can't have. I've been having steak for breakfast since Whole Foods has been sold out of my beloved Bumble Bars, lol. :lol:

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

-

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Carla, I sure hope so. But, if part of the problem is that I'm reacting to lectins, I'm not sure how that works....many people have lifelong intolerance to lectins. (Not trying to be pessimistic, just trying to be realistic!)

That's probably true, but it could be that those people never bother to go to the trouble to heal their gut. Let's think positively!!

jerseyangel Proficient
jerseyangel
Posted

I react to all the lectins, too--except potatoes, thankfully. I really have no idea how long it will be before I can eat any of them again. (or if) Some cause more severe reaction than others, some immediate, some delayed. That's why it's so hard to figure it all out.

I plan to go at least a year at my present diet. I know my sensitivites are due to leaky gut, and I want to give it enough time to heal. Sometimes though, I feel like I'm "flying by the seat of my pants" on this! I know that I do ok when I stick to meats as my only protein source--all of the plant sources give me problems. That's why I feel it's leaky gut--it's the proteins that leak out and cause reactions. I think..

CarlaB Enthusiast
CarlaB
Posted

I'm eating only meat and eggs as my protein, then just veggies. I do eat some potatoes, rice and gluten-free bread, but only twice a day (I know, it's better than nothing!!). Veggie sources of protein don't sit well with me either.

jerseyangel Proficient
jerseyangel
Posted

I can get away with rice--but not more than about once or twice a month. Any more often, and it starts to bother me. I wish I could eat eggs--but they make me terribly nauseous.

I usually just eat meat, fruit, veggies, almonds and potatoes. Oh, and some dark chocolate :ph34r:

Writing it down makes it seem very restrictive, but in reality, I manage to eat pretty well.

happygirl Collaborator
happygirl
Posted

x

AndreaB Contributor
AndreaB
Posted

Laura,

Thanks for the website. I've bookmarked it, but haven't looked at it yet. I'm not intolerant to corn but won't have the test results back on the others (except the baby) for a couple weeks yet. I also don't like the gmo corn and I assume that is what is used for all the derivatives. Grrrrr, maybe I'll have to study that list and see how much we can leave out. I do believe gmo stuff wrecks havoc with our systems. Could be part of the puzzle as to why so many intolerances develop, especially with leaky gut.

What do you guys think?

I have found that the veggie sources of protein have become more of a problem for me. I can tolerate a few beans/legumes but most are out.

happygirl Collaborator
happygirl
Posted

x

jerseyangel Proficient
jerseyangel
Posted
Ah, theories. One day the puzzle will be completed.

You said it, Laura! And sooner, rather than later would be nice :D

Mtndog Collaborator
Mtndog
Posted

I just wanted to say I really care about the people on this thread and I'm not going anywhere. Y'all should come visit the Tickle Me Elbow thread in Gab/Chat. It's ALL jokes ALL the time. Laughter IS the best medicine.

Rrachel- rest and take care of YOU!

CarlaB Enthusiast
CarlaB
Posted
I just wanted to say I really care about the people on this thread and I'm not going anywhere. Y'all should come visit the Tickle Me Elbow thread in Gab/Chat. It's ALL jokes ALL the time. Laughter IS the best medicine.

Rrachel- rest and take care of YOU!

Forty women is another place ... I don't think we've seen you there yet, have we Beverly?

eKatherine Apprentice
eKatherine
Posted
What is the problem with just posting a question if you can't figure this thread out? How hard is it to just ask? If you don't like the chit-chat, just ignore it.

No need to ask, there's nothing to figure out. Either it's on topic - some topic - or it's all over the place.

I had just been checking this thread out every month to see if it looks like it's on topic (anything to do with celiac). I read a page or two or three. Nope, just chit-chat, check in again in a month.

This time I came in on the page where Vincent was complaining about being cut off while somebody needed support, and I couldn't figure out what was going on, so I went back 20 or 40 pages to see. I was horrified at what I read. :o:blink::unsure:

AndreaB Contributor
AndreaB
Posted
This time I came in on the page where Vincent was complaining about being cut off while somebody needed support, and I couldn't figure out what was going on, so I went back 20 or 40 pages to see. I was horrified at what I read. :o:blink::unsure:

The posts Vincent was talking about were deleted. This thread has been one largely of support of whatever people have been going through. We've covered the gamut of corn, dairy, msg, auxigro, sulfur, lyme, mercury toxicitiy, water and filters, along with others I'm sure I'm forgetting. We've had chit chat and laughter in between to elevate some of the stress that people have been going through.

It would be nice if threads could be renamed, but once people jump in and see that this is an all inclusive "intolerant" thread, the ones that want to stay do. We welcome everybody that wants to try and figure out things based on the collective responses of others on this thread.

Is the topic dairy anymore. Not usually, but lots of us still love dairy even though we can't/don't have it anymore. :D

Simply-V Newbie
Simply-V
Posted

Hmm Talking about lectins.. I found a page which talked about IgA involvement in binding lectins.

Open Original Shared Link

Got me to wondering if that isn't why my IgA was so high. Because when I was tested I was eating soy & peanuts (which I found out later are closely related to the white bean which I'm IgE to.)

I may have my doc re-run the test for IgA and see. This is the only reference I've seen anywhere online a reference to IgA doing something other than gluten.

Anyway, I don't think I have problems with all lectin foods, but it does help fill in some blanks. I still eat most grains (cept corn) with no problems, potatoes, and tomatoes. Just everything else that I avoid: Dairy, legumes, peppers, corn.

Anyway, just thought I'd share my info.

AndreaB Contributor
AndreaB
Posted
Hmm Talking about lectins.. I found a page which talked about IgA involvement in binding lectins.

Open Original Shared Link

Got me to wondering if that isn't why my IgA was so high. Because when I was tested I was eating soy & peanuts (which I found out later are closely related to the white bean which I'm IgE to.)

I haven't looked at the page yet.....I will bookmark it for later though.

I wanted to comment on the white bean, soy and peanuts. I left my binder with my doctor by accident so I don't have ready reference. I am intolerant to the navy bean (does that count for the white bean?), soy bean, pinto bean and kidney bean. I tested ok for peanuts IgE/IgG but don't eat them since I don't want to develop a problem with them and I've read that soy or peanut intolerance will usually lead to becoming intolerant of the other.

lindalee Enthusiast
lindalee
Posted

She is also concerned with my mercury level, but even more so, my aluminum level (so much for all the great gluten-free uses of FOIL!! :blink: ).

CarlaB Enthusiast
CarlaB
Posted
Carla, I got sick the other night eating grilled fish wrapped in foil. I have been suspecting that foil... :blink: just saw your post.... maybe that aluminum is the problem. :ph34r:

That's interesting, depending on the fish, you may have gotten aluminum and mercury all in one meal!! I used to cover things with foil all the time to cook ... I stopped doing that.

happygirl Collaborator
happygirl
Posted

x

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.