Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

AndreaB Contributor
AndreaB
Posted
Maybe you were brought here for a different reason ... maybe you will need to know in the future what a bulls-eye rash looks like ... hopefully so you can help someone -- a complete stranger rather than a friend of family member :P -- get treatment right away in an attempt to avoid chronic lyme.

I'm here for support too and I've made some good friends. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted
That dosen't mean we all have to have the exact same illness. There's a lot more to us than that :D

Yeah, we're all hot babes with great hair, too!!! :rolleyes:

dlp252 Apprentice
dlp252
Posted
Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

jerseyangel Proficient
jerseyangel
Posted
Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Darn right B)

rinne Apprentice
rinne
Posted
:lol::lol:

Rinne....you know you wanna say it... :P

Two words..... Lyme Clan :ph34r:B)

I'm practicing restraint. :P:lol::lol::lol:

Carla, I have had deja vu experiences but not lately.

CarlaB Enthusiast
CarlaB
Posted
Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

Yeah, well, I look like Kramer in the morning.

Mtndog Collaborator
Mtndog
Posted

Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

So,...... I wanted to pop (or should I say poop in my case!) in and say hello and wish everyone peace love and wubs :wub::wub::wub:

I feel so grateful to have met such a group of amazing people and such an inspiration to fight. I hope you all have a great week. I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

happy Birthday to Seth and Andrea, special wishes to you. :wub:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Green12 Enthusiast
Green12
Posted

Hi Bev, good to see you :) I was about to call for a Dingo rescue :lol: I haven't been able to keep up either, my brain has been all in a fog, nothing computes...

HAPPY BIRTHDAY SETH :wub:

Quick question, what test kit do I order from IGenX? Are there many to choose from? If someone has specifics regarding this I would so grateful for the info :)

...and I apologize in advance if this has been asked/covered already, I just don't want to go back and get lost :blink:

CarlaB Enthusiast
CarlaB
Posted

Julie, I got the complete Lyme Panel.

Green12 Enthusiast
Green12
Posted
Julie, I got the complete Lyme Panel.

Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

jerseyangel Proficient
jerseyangel
Posted

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

rinne Apprentice
rinne
Posted
Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

TriticusToxicum Explorer
TriticusToxicum
Posted
I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

I would have blamed my mojo as well - that is until Ms. Beverly from Beverly posted Open Original Shared Link on another thread. Now I'm REALLY CONCERNED about my mojo :o . If they've run off together I can only imagine...

AndreaB Contributor
AndreaB
Posted

Patti,

I think you have to have the paperwork from Igenix to send in.

GGGRRRR!!!

Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

TriticusToxicum Explorer
TriticusToxicum
Posted
Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

AndreaB Contributor
AndreaB
Posted
In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

I love surprises of this kind!

We'd love to see a picture after he/she is born.

jerseyangel Proficient
jerseyangel
Posted

Rinne,

The baby news is exciting! :D I love shopping for baby things--and I agree, this is going to be one beautiful child. :rolleyes:

Andrea,

I was afraid of that--I'll take it one step at a time. Thanks :)

I had my kids back in the dark ages--we never knew if we were having a boy or girl--it was just a nice surprise. (But, I "knew" they were both boys--I could feel it)

rinne Apprentice
rinne
Posted
Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

Julie, I think Bowen is a lab that is also considered reliable but I would want to check on that. Stephen Buhner, in "Healing Lyme" talks about the various tests and their weakness, it looks like there are new tests coming that are more reliable than the Western Blot. There is one that Bowen labs does now I think. He talks about Igenex as being an excellent lab and the importance of the quality of the lab work done. It is a little beyond my capacity for scientificness at the moment but basically Igenex pays close attention to detail and many other labs don't.

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

I don't know. My doctor's office took care of it all but then they use Igenex on a regular basis. Have you checked the Igenex site, maybe it says on there?

Green12 Enthusiast
Green12
Posted
I love surprises of this kind!

We'd love to see a picture after he/she is born.

rinne, congratulations on the grandbaby to be :) Very exciting!

Wanted to add that my thoughts and prayers are with Evie and her family.

AndreaB Contributor
AndreaB
Posted
Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

:lol: I figure someone would be willing to change seats so they won't have to kid sit. :)

dlp252 Apprentice
dlp252
Posted
I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

Ha, you said cyberically!! :lol:

Mtndog Collaborator
Mtndog
Posted
Ha, you said cyberically!! :lol:

I think it's like Siberiacally (like when you're really cold- you're Siberia cold!)

Rinne- Supercool about the baby! It's so cool it's Siberia cool.

Yes- Richard and i suspect our mojos have run away together (we think we were twins seperated at birth- I was adopted so it's possible). We suspect they have gone on a vacation somewhere tropical. Like this:

Open Original Shared Link

I hope they're having fun! I got soyed and then glutened (by body lotion which I read the ingredients on and realized once it was way too late and i had already racheled a bag of gluten-free breadsticks :angry: ). Soy + gluten=pain and the blues.

Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

CarlaB Enthusiast
CarlaB
Posted

For Igenex, if it's a lab that your doc doesn't normally use, you call them and order the kit for no charge. You take it to your doctor, then he/she takes the blood and sends it in. I would order the kit just to be sure.

Bev, it's our job to cheer YOU up!!! Just take another look at Richard's turkey ... it's really good for a laugh! Wouldn't it be funny to put foil over your turkey so that it looks like that on Thanksgiving!!! :lol:

dlp252 Apprentice
dlp252
Posted
Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

I still miss my dad after 10 years! You're entitled to feel blue! I always think of him still on his birthday, father's day, Christmas etc.

jerseyangel Proficient
jerseyangel
Posted

Donna and Bev--I'm so sorry that both of you are feeling blue :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,041
    • Most Online (within 30 mins)
      7,748
    Vfoley422
    Newest Member
    Vfoley422
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.