Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

CarlaB Enthusiast
Well i got in with my gp for an appointment tomorrow! Plus my mom is insisting she come with even though i am 21. She thinks i'm not forceful enough which is probably true. any ideas on what tests my gp should do?

If your doc doesn't use IGeneX, you need to call the lab and ask for a test kit to be mailed to you, then take it to your doctor. My doc said I had to go to the lab to be tested, I started crying (out of character for me), so she had her nurse take the blood to be sent in.

That is if you want to be tested for Lyme again.

I would ask for your records of your last Lyme test to see what lab was used and what the results really were.

If you're going in in order to be tested for Lyme, I would wait till you have the kit, but in the meantime ask for the records.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
Well i got in with my gp for an appointment tomorrow! Plus my mom is insisting she come with even though i am 21. She thinks i'm not forceful enough which is probably true. any ideas on what tests my gp should do?

Was your gp ordering a stool test for parasites?? Or was that a different Dr.?? I forgot. :ph34r:

It would be good to be tested for Ghiardia and H. Pylori.

I think Ghiardia would cause lots of diarreah....I dont remember if you have this problem or not??

Is it Monday yet???

I'm super impatient for my Dr. appointment. :ph34r:

Plus my mom is insisting she come with even though i am 21.

Linds....I'm 35 and my mom still insists on doing ALOT of things for me. It doesnt change....your mom will always be your mom no matter how old you are. ;)

If anyone is looking for books on Lyme Disease.....I found these.

I think I might get the first 2 listed.

Open Original Shared Link

Oh....I forgot to tell you guys...

At my last Dr. appt. he told me that there are some support groups in my area....he said to let him know if I'm interested and he can give me the info. He said there are several to choose from.

I'm thinking it would be good to meet some other people in my area who are going through the same stuff....but I'm gonna wait until I get more facts about my diagnosis and treatment first.

I'm wondering....if California "doesnt" have Lyme...why are there so many Lyme Dr.'s here...and so many support groups....and so many PEOPLE who have it! :blink:

Mango04 Enthusiast

Hi everyone...just popping in....and OMG I have a LOT of reading to do lol. I've seen quite a bit of really impressive Lyme scientificness around here lately. I popped in a couple weeks ago and I thought I needed some sort of Biology Phd or maybe a doctorate or something to understand what was going on :lol: You guys know your stuff. I have faith it will pay off.

I'll be home in a few weeks so hopefully I'll catch up sometime soon. Bye for now :wub::wub:

linds Apprentice

yep the mayo is in southern minnesota. Actually one of my friends just got hired there today as an RN so she has a job waiting for her there when she graduates in may.

Lymetoo Contributor
They ignore Lyme Disease....thats what my new Dr. told me.

He said I should be angry that this is going on...and that people are suffering needlessly.

Well yeah....I'm really angry about it now. The more I learn...the angrier I get. :angry:

Go read the article I just posted about the political mess we're in.

Rachel--24 Collaborator
Go read the article I just posted about the political mess we're in.

I saw it...my Dr. told me about this at my last visit. He said as of right now its not a felony to provide more than 21 days of antibiotics....but it is REALLY REALLY frowned upon.

Its scary.

happygirl Collaborator

there are three mayo clinics: minnesota, arizona, and florida.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice
Donna, in Grand Cayman, go swim with the sting rays if you have the opportunity ... very cool!! If not, at least go snorkeling, it's KNOWN for the great scuba diving and snorkeling. I've also been snorkeling in Cozumel, but I think Grand Cayman was the better of the two places for it. There's not much else to see at Grand Cayman except for the beautiful beaches. And watch out, after sunset the mosquitos come out for their feast!! Hopefully, you'll be back on the ship for that!

Have a wonderful time!!

Disney is great, too. I love the Rockin' Roller Coaster at MGM, and the Tower of Terror -- I had to face my fear of elevators at the Tower of Terror, LOL.

Well, I actually don't know how to swim, lol. :lol::ph34r: I forget what we're doing in Grand Cayman and Cozumel, but we've been to both places and I'd almost rather stay on the ship and sleep in, lol. Not that I don't like either place, it's just that I'm so tired lately and I've already been there, and I'll probably be there again since almost every caribbean cruise goes there, lol. My friend is being really great about all my health problems and said if we have to cancel any of the excursions we can...I'm thinking I might.

Yep, Disney...LOVE the scarey roller coaster type things. :P

Rachel--24 Collaborator
there are three mayo clinics: minnesota, arizona, and florida.

Well the Mayo Clinic sucks for not acknowledging Lyme. :P

Same with Stanford here in Ca.

dlp252 Apprentice
Well i got in with my gp for an appointment tomorrow! Plus my mom is insisting she come with even though i am 21. She thinks i'm not forceful enough which is probably true. any ideas on what tests my gp should do?

Definitely the whole-shebang stool testing thing...the one with all the vials, lol. It's icky to do, but that's where they look for all the parasites...I'm still waiting for mine to come back. In the one I had done in February, I also had to give them a sample (in a margerine-type container that they provided), but didn't have to do that for the one I just did.

I think I might get the first 2 listed.

Open Original Shared Link

Oh....I forgot to tell you guys...

At my last Dr. appt. he told me that there are some support groups in my area....he said to let him know if I'm interested and he can give me the info. He said there are several to choose from.

I'm thinking it would be good to meet some other people in my area who are going through the same stuff....but I'm gonna wait until I get more facts about my diagnosis and treatment first.

I'm wondering....if California "doesnt" have Lyme...why are there so many Lyme Dr.'s here...and so many support groups....and so many PEOPLE who have it! :blink:

I bookmarked the page here at home for future reference...and yep, makes you wonder why support groups and specialists would be needed in an area which supposedly doesn't have any Lyme! Also making mental (like that will do any good, lol) about support groups for future reference.

Hi everyone...just popping in....and OMG I have a LOT of reading to do lol. I've seen quite a bit of really impressive Lyme scientificness around here lately. I popped in a couple weeks ago and I thought I needed some sort of Biology Phd or maybe a doctorate or something to understand what was going on :lol: You guys know your stuff. I have faith it will pay off.

I'll be home in a few weeks so hopefully I'll catch up sometime soon. Bye for now :wub::wub:

Hi Mango!!! It'll be good to have you home, lol!

Oh, and about the mom thing, lol...I'm 51 and my mom still worries about me! It's true, a mom never stops worrying and wanting to do stuff for you.

Well, had my appointment with the mercury dentist today for my permanent crown for the last quandrant he did. I'm not having any more done until January...new insurance kicks in and I have a reloaded Flexible Spending Account, lol.

Oh, and Lymetoo, I saw your post on the "antibiotic" thread about herxing from antibiotics, and it made me think...I have a problem with a lot of antibiotics...nothing serious, but usually feel slightly nauseated, dizzy and most of the time get diarrhea...now I'm wondering if it isn't just a little herxing going on, lol. I haven't been tested for Lyme yet, but have TONS of the symptoms and have had some exposure to some of the areas where it is more prevelant.

happygirl Collaborator

x

Green12 Enthusiast

Hi Mango! So good to see you :) It's so hard to believe your Australian adventure is coming to a close, where did the time go?? Looking forward to having you back and posting more :):)

Laura, I am so sorry about the glutening, but that is great news about the lyme specialist! Hope you recover quickly :)

Donna, your cruise does sound wonderful. Will you be taking any pictures??

AndreaB Contributor

Mango! Good to see you.....not that you'll necessarily see this. :P

I'm reading everything....just don't feel like commenting on a lot right now. Tired, headache and don't want to think that much. :ph34r:

DingoGirl Enthusiast
I'm reading everything....just don't feel like commenting on a lot right now. Tired, headache and don't want to think that much. :ph34r:

Well Andrea I am right there with you! Me too. Reading but tired......and still without my mojo. :blink: I hope your headache leaves you soon.

MANGO!! Good to see you.

Laura.....very cute pic but so sorry you got glutened. It does suck, doesn't it?

donna! is it, two more days??? :rolleyes:

Hello and goodnight to everyone else. It's going to be 28 degrees here tonight, I am crawling into my heated bed with magazines and stupid TV - - - - well, you all know my evening routine. :) How sad, this is my favorite part of the day.

Love to you all......

oh and HI EVIE!!!! so good to see you back!! take care of yourself. :)

Green12 Enthusiast
It's going to be 28 degrees here tonight

It's going to be 7 degrees here, yikes!! Enjoy your mags and tv, and cozy warm bed with the girls :)

Andrea, sorry about the headache, rest up :)

DingoGirl Enthusiast
It's going to be 7 degrees here, yikes!! Enjoy your mags and tv, and cozy warm bed with the girls :)

OMG SEVEN???? And I am whining about 28? :ph34r::huh: We just can't handle it here in California. We are shocked when the temp hits freezing.....big babies. :lol: OF course, they have to keep the oranges and other citrus warm with all kinds of methods....I do feel sorry for the farmers now. I once dated an orange farmer during the winter......he was a bit stressed. You know, a nice guy. Maybe I should call him...... :unsure: This was right before the Siege of Terror hit, in 2004......do you think he was the CAUSE of the siege? :huh::huh::lol:

Lymetoo Contributor
Oh, and Lymetoo, I saw your post on the "antibiotic" thread about herxing from antibiotics, and it made me think...I have a problem with a lot of antibiotics...nothing serious, but usually feel slightly nauseated, dizzy and most of the time get diarrhea...now I'm wondering if it isn't just a little herxing going on, lol. I haven't been tested for Lyme yet, but have TONS of the symptoms and have had some exposure to some of the areas where it is more prevelant.

Ya never know. It MIGHT have been yeast rearing its ugly head, but could also be herxing.

linds Apprentice
It's going to be 7 degrees here, yikes!! Enjoy your mags and tv, and cozy warm bed with the girls :)

Andrea, sorry about the headache, rest up :)

I wish it was going to be 7 here it is already -4 with a =15 windchill and its just supposed to be getting colder. I just want it to snow though!!! If its going to be cold there should at least be snow to have some fun in. :D

Lymetoo Contributor
wanted to say hi and let you all know that i got another referral to a lyme specialist in my area.

What state are you in? I have a complete list of LLMD's. [well, as complete as it's going to get!! :rolleyes: ]

Lucky us. We're in for a nice ICE STORM tonight, followed by 6-12" of snow. It's the ice I'm worried about!! AARRGGGHHH!!!!

Rachel--24 Collaborator
OMG SEVEN???? And I am whining about 28? :ph34r::huh: We just can't handle it here in California. We are shocked when the temp hits freezing.....big babies. :lol:

OMG...I'm freezing. Its not 28 here....its somewhere in the 30's. I cant handle it. I miss my heated bed that I dont have anymore. :(

I'm hoping this will end soon....it seems much colder than normal winter temp. :huh:

Julie....7 degrees :blink: I think I would die.

I'm just reading along too. Too cold to really do much...I need to get into the bathtub.

Mango.....we'll all be glad to see you back home and posting more. We've missed you. :)

I'm looking forward to hearing more details about Australia...have you seen any koalas at all??

Laura,

Thats great about the Lyme Dr. I hope you can see him soon. :)

Sorry you got glutened though. Bummer. :(

Andrea....I'm tired too. Sorry you're not feeling good. I'm headed for a bath and then getting underneath all my covers and staying toasty till morning. :)

Night everone. :wub:

OMG....Linds and Lymetoo

ICE STORMS and negative temperatures...SNOW... :blink: ...its all too much for me. I'm getting colder just reading this stuff. What a baby I am... :P

miamia Rookie
What state are you in? I have a complete list of LLMD's. [well, as complete as it's going to get!! :rolleyes: ]

Lucky us. We're in for a nice ICE STORM tonight, followed by 6-12" of snow. It's the ice I'm worried about!! AARRGGGHHH!!!!

Lymetoo-I was just wondering a few things-

How long did you suffer from candida?

I Was also just curious before you were diagnosed for lyme what were your major complaints- major symptoms? I was also wondering how you are feeling now and what kind of diet you follow now

Thanks

Miamia

dlp252 Apprentice

I am SOOO happy I have my heated mattress pad, lol, us wimpy Californians need stuff like that...can I just say that I am REALLY looking forward to the WARM Florida sun, lol. Okay, it may rain, but at least it will be warmer than here. :P

miamia Rookie
I am SOOO happy I have my heated mattress pad, lol, us wimpy Californians need stuff like that...can I just say that I am REALLY looking forward to the WARM Florida sun, lol. Okay, it may rain, but at least it will be warmer than here. :P

Oh Donna-

your leaving tomorrow you must be so excited!!! I wish I was going with you

dlp252 Apprentice
Oh Donna-

your leaving tomorrow you must be so excited!!! I wish I was going with you

I am and I wish you were too!

CarlaB Enthusiast

Hello everyone!

Sorry you got glutened, Laura.

Donna, have a great time! Even though you can't swim, you can still go see the sting rays, you can stand in the water, it's not deep. Just be sure you wear a life jacket on the boat!!

Andrea, I guess it'll take a while for you to rest up from the trip. I remember when the kids were younger how much time it took to get rested up when you can't even sleep through the night. You will sleep again, I promise!! Once they're teenagers, you have to wake them up!!

It's warm here today, 66. A cold front is coming in though. This is unseasonably warm for us. We'll be in the 30's soon. Adam is my feet warmer. :) He loves the winter time because I sleep right next to him!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.