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Omg...i Might Be On To Something

Rachel--24

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I have one of those "bagless" ones. The dust and dirt just goes into a plastic thingy and you dump it out. I think I just need to replace filters....but where the heck do I get them??? :unsure:

You might have to order them from the manufacturer.

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Judyin Philly Enthusiast
Judyin Philly
Posted
Judy,I think Laura's right about the gluten challenge. Why test something we already know the answer to? :huh: You have bigger issues to address ;)

Donna,I'm sorry you are still sick today.

I guess the 10 or so cookies were a bit too much to handle :P

Patti--AND BIGGER ISSUES TO 'SCRATCH' UCK :ph34r:

Donna--HOPE YOUR FEELING BETTER. THINK YOU GOT IT ON THE CRUISE???? :blink:

Patti---OMG....YOU CAN ALWAYS MAKE ME LAUGH....HA HA HA PATTI'S 'RACHELING' COOKIES... :lol::lol::lol:

Judyin Philly Enthusiast
Judyin Philly
Posted

DON'T WORRY ABOUT ME YOU GUYS...I MIGHT 'SPIN' LIKE 'HAPPYGIRL' IN THE WASHING MACHINE ON THE 'SPIN' CYCLE BUT I'M NOT STUPID...YOU GUYS KNOW THAT ...BUT SEEMS TO MEDICAL COMM DOESN'T.

OF COURSE, I KNOW, YOU KNOW, WE ALL KNOW...CELIAC'S LONG TERM DON'T GET WELL RIGHT AWAY...TESTING FOR CANCER..COVERING THEIR A** IF YOU ASK ME.

REMEMBER MY 'GI' WHO SAID, ''''A GLUTEN CHALLANGE????,,, ARE YOU NUTS? IF I TOLD YOU TO PUT YOUR FINGER IN THE FLAME OF A LIT CANDLE JUST TO MAKE SURE IT WOULD BURN..SAME THING>

SO AGREE WITH HIM BUT I'M GOING TO CK OUT A NEW ONE. WILL ASK LOTS OF QUESTIONS BEFORE I MAKE APT..SEEMS THERE IS A 3 MONTH WAIT...FOR HER PRECIOUS OPINION.

JUDY

dlp252 Apprentice
dlp252
Posted

Well, I don't have strep throat, thank goodness. Still don't know what I have but it's not strep. I was able to get into see one of my mainstream doctors. I was also able to get the EKG my HN doctors wanted me to get. That came out completely normal. Of course it did, lol. My blood pressure was only 86/60 in the doctor's office though. Temperature had come up to 98.2 (at home it was 96 and 97.3 or some such thing), so they didn't even blink an eye there. The doctor gave me a prescription for antibiotics and said to hang on to it...if I'm not getting better by Thursday she said I should take them. Also if I wake up tomorrow obviously worse, I should take them.

Judy - I think it's more likely I got it in Disneyword or on the planes/airport coming home. They were so diligent about hand sanitizers on the ship, but at Disneyworld there wasn't anything like that of course, AND, there were lots of kids. I wasn't quite as diligent of using my hand wipes in Disneyworld as I should have been.

jerseyangel Proficient
jerseyangel
Posted

Hey Donna--

Glad at least it's not strep.

Last spring, I had a painful sore throat for 6 days before I went to the doctor--with no other symptoms other than a little nausea. I was negative for strep, and a few days later, it went away. I would have sworn I had strep because it was actually going around here. Sounds similar to what you have going on. Nasty little virus buggers :angry:

Lots of warm liquids, and salt water gargle :D

dlp252 Apprentice
dlp252
Posted
Lots of warm liquids, and salt water gargle :D

It really does feel better after drinking tea. And, I was wondering if the salt water gargle thing would also work if I swallowed the salt water (as in the salt therapy Rinne was taking about, lol). The HN receptionist told me I could take Vit C every hour if I wanted to--that that's what they do when someone needs Vit C therapy...I don't know if I want to take that much cuz I'd be in the bathroom all day tomorrow, lol, but a little more than I've been taking wouldn't hurt and along with the salt water...

rinne Apprentice
rinne
Posted
I never got the tests you had done for mercury or other metals. Was this a recent test from when you went to the seminar?? I only had hair analysis which showed high cadmium and something else... I think bismuth?? :unsure:

Rachel, these were blood tests that were done through regular laboratories but I think they are not generally done. They tested me for: lead; mercury; selenium; arsenic; copper; zinc; chromium; cadmium; thallium; potassium; calcium; magnesium; cobalt; manganese; molyodenum; vanadium; antimony; nickel.

Mercury is high and manganese is low but other than that I fall within the normal range.

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Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Donna, that sucks that you got sick. :(

Is HN taking care of you?? They sent me a card...saying they're gonna do everything they can to get you better....so I'm gonna hold them to it. :P Just let me know if they dont come through. ;)

They wrote...

"Caring enough about someone to see that they receive the help they need is a wonderful thing to do.

We will make every effort to help Donna's health improve." :)

I guess they really knew who the "internet girl with the baseball hat" was. :lol:

rinne Apprentice
rinne
Posted

It seems that last post went through, I don't know why but I keep getting cut off, and it is not just this site.

Sorry I have been so lapse, thank you for your friends invitations. I feel like I am moving through molasses and even the littlest thing seems huge, been napping more and just trying to keep up with the reading. :)

I consider you all dear friends.

jerseyangel Proficient
jerseyangel
Posted

Rinne,

Just take your time--we all understand :)

I hope that things will start improving for you soon. No need to push yourself, though.

dlp252 Apprentice
dlp252
Posted
Donna, that sucks that you got sick. :(

Is HN taking care of you?? They sent me a card...saying they're gonna do everything they can to get you better....so I'm gonna hold them to it. :P Just let me know if they dont come through. ;)

They wrote...

"Caring enough about someone to see that they receive the help they need is a wonderful thing to do.

We will make every effort to help Donna's health improve." :)

I guess they really knew who the "internet girl with the baseball hat" was. :lol:

Wow, I'm sort of shocked they sent you a card, lol, but that's really nice...and I guess they DID really know, lol. :lol: They couldn't see me today (Dr. Carrie was out and Rosie wasn't sure she tested for strep anyway). So I went to Camino Med. I needed to get an EKG done anyway (Dr. Carrie wrote me a "prescription" way back in October, lol), so it worked out very well.

HN is certainly TRYING to get me well...I'll find out tomorrow what the stool tests showed and what medicine she prescribed for whatever it is they found, lol. :lol: I only know I'll get some prescription med tomorrow for something they found in the stool test. :lol:

dlp252 Apprentice
dlp252
Posted
It seems that last post went through, I don't know why but I keep getting cut off, and it is not just this site.

Sorry I have been so lapse, thank you for your friends invitations. I feel like I am moving through molasses and even the littlest thing seems huge, been napping more and just trying to keep up with the reading. :)

I consider you all dear friends.

Rinne, I've been getting kicked off a lot lately too...In my case I think it's AOL's fault. I got kicked off three times on the weekend while trying to catch up with my 40 pages.

I'm still not sure what the friends feature does/is, and I've been haphazardly adding people as friends...no rhyme or reason to how I went/am going about it. I've been too tired to spend any length of time online lately. I too consider everyone here dear friends whether or not I've added them as friends.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I too consider everyone here dear friends whether or not I've added them as friends.

Rinne and Donna....me too. You guys are all very dear to me. :)

I havent tried out the "friend" thing yet....so far I havent had the desire to list friends on here. Just know that you are *all* my friends.....I figure you guys know that already anyway. ;)

I think I would go crazy and list everyone on the board as a "friend" :P and really....whats the point?? :unsure:

Donna,

I'm guessing they found a parasite cuz Dr. Rick used to tell me that they *always* find parasites. They didnt find any in me though. :P

There was another girl on this board earlier this year that was also going to HN...started the same time as me. She had a parasite and they gave her meds for it.

My regular Dr. is at Camino Medical too....I wouldnt be surprised if we had the same Dr. there too. :lol: I see Dr. Vilardo....for the "regular" stuff.....which is really only scripts for my thyroid meds.

She doesnt know about all this other stuff....she looks at me and declares me "healthy". :rolleyes:

She's nice though. :)

I was surprised that HN sent a card too.....but it was nice....really thoughtful of them. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Sorry I have been so lapse, thank you for your friends invitations. I feel like I am moving through molasses and even the littlest thing seems huge, been napping more and just trying to keep up with the reading. :)

Rinne.....I'm sorry you're feeling bad. :(

I hope it passes soon....get rest and we'll be here when you feel like posting. :)

evie Rookie
evie
Posted
It seems that last post went through, I don't know why but I keep getting cut off, and it is not just this site.

Sorry I have been so lapse, thank you for your friends invitations. I feel like I am moving through molasses and even the littlest thing seems huge, been napping more and just trying to keep up with the reading. :)

I consider you all dear friends.

Hope you are feeling better soon rinne. I too have been getting dropped off here for quite sometime, even before the additions to the forum, but have been dropped from other places too. must be a few ghremlins in our computers lately. I did a lot of napping Monday also, must have eaten something I should not have had on Sat., paid for it all day Sunday with D and really got to it Monday and was sick. sunday was not a good day to be running to bathroom as we were having our family christmas dinner here but i did not talk about it and don't think anyone noticed (good).

I saw a bunch of pages back that you had a new gr. child, boy or girl? Always a happy time!! :D Take good care of yourself. I also consider all of the forum people my good friends. evie

AndreaB Contributor
AndreaB
Posted
They wrote...

"Caring enough about someone to see that they receive the help they need is a wonderful thing to do.

We will make every effort to help Donna's health improve." :)

I guess they really knew who the "internet girl with the baseball hat" was. :lol:

That's neat. :) They probably don't see too many females wearing baseball hats all the time. :P

I consider you all dear friends.

Get some rest R. The forum won't go anywhere. I hope you feel better soon.

I'm sure you all have noticed but I've been cutting down my time here drastically. I just discovered Sudoku.....need I say more. :) I always read on this thread though. :)

Love everyone. :wub:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I just discovered Sudoku.....need I say more. :) I always read on this thread though. :)

Whats Sudoku??? :huh:

Quick drive-by....

Anyone know if Imagine broths (come in a box) are still gluten-free??? I thought it used to say it on the box but I might be confused with another brand. :unsure:

I've been having some beef broth the past week...its yummy and warm. :)

I wake up feeling kind of nauseus but it goes away fast. It has spices and other stuff and I'm still reactive to almost everything I eat.....just wanted to make sure it wasnt gluten though.

I think soon we will be starting on foods at Bioset. :D

jerseyangel Proficient
jerseyangel
Posted

I have missed you, Andrea. Glad you're still keeping up by reading :)

Rachel--Imagine broths sometimes bothered me, too. I now use Pacific Organic and have had no problems at all.

Hi everyone :D

miamia Rookie
miamia
Posted
That's neat. :) They probably don't see too many females wearing baseball hats all the time. :P

Get some rest R. The forum won't go anywhere. I hope you feel better soon.

I'm sure you all have noticed but I've been cutting down my time here drastically. I just discovered Sudoku.....need I say more. :) I always read on this thread though. :)

Love everyone. :wub:

Andrea-

suduko- very addictive!! I discovered it and then got my sister addicted too. It actually is kind of calming for me if I am really uncomfortable it helps me to zone out.

It seems like everyone has been posted less. I ahve been too I've just been really exhausted and basically am waiting for results so don't have much health info til I get some of them back.

dlp252 Apprentice
dlp252
Posted
Rinne and Donna....me too. You guys are all very dear to me. :)

I havent tried out the "friend" thing yet....so far I havent had the desire to list friends on here. Just know that you are *all* my friends.....I figure you guys know that already anyway. ;)

I think I would go crazy and list everyone on the board as a "friend" :P and really....whats the point?? :unsure:

Donna,

I'm guessing they found a parasite cuz Dr. Rick used to tell me that they *always* find parasites. They didnt find any in me though. :P

There was another girl on this board earlier this year that was also going to HN...started the same time as me. She had a parasite and they gave her meds for it.

My regular Dr. is at Camino Medical too....I wouldnt be surprised if we had the same Dr. there too. :lol: I see Dr. Vilardo....for the "regular" stuff.....which is really only scripts for my thyroid meds.

She doesnt know about all this other stuff....she looks at me and declares me "healthy". :rolleyes:

She's nice though. :)

I was surprised that HN sent a card too.....but it was nice....really thoughtful of them. :)

HA, finally we see a different doctor, lol. I see Srinivasan...she's over at the site off of Sunnyvale-Saratoga Road. I've only actually seen her a couple of other times...for my physical exam in February and when I fell in June. I sort of got the :rolleyes: look from her yesterday...I think that's why she called later to offer more help, but she also "chuckled" as she was leaving the message when she said I hadn't gotten help from mainstream testing. :P

I hate that word "parasite", lol. I like "bug" better. :lol: Anyway, I'm figuring that's exactly what I have...they were so sure they would find something and I was so sure they wouldn't, lol. I"m waiting to fill my prescription from yesterday until I see what the HN doctor's give me, cuz sometimes Walgreen's won't fill prescriptions if you've recently filled one that is similar or that you shouldn't take with another. My appointments today are at 3:00 and 3:45, but I may call to see if I can come in earlier cuz I'm staying home from work again.

miamia Rookie
miamia
Posted
Whats Sudoku??? :huh:

Quick drive-by....

Anyone know if Imagine broths (come in a box) are still gluten-free??? I thought it used to say it on the box but I might be confused with another brand. :unsure:

I've been having some beef broth the past week...its yummy and warm. :)

I wake up feeling kind of nauseus but it goes away fast. It has spices and other stuff and I'm still reactive to almost everything I eat.....just wanted to make sure it wasnt gluten though.

I think soon we will be starting on foods at Bioset. :D

Rachel-

I was just reading about - and have always read about the healing powers of broths I always think to get them but whenever I ahve bought them in the past they end up sitting in my cabinet. I am always cold so you would think I would want soup but I never do.

I am so interested to hear about how the bioset works for you in terms of food reactions - if it helps you I think I would be convinced to give it a go!!! So make sure you post I am waiting eagerly for your reaction!!!

Miamia

miamia Rookie
miamia
Posted
HA, finally we see a different doctor, lol. I see Srinivasan...she's over at the site off of Sunnyvale-Saratoga Road. I've only actually seen her a couple of other times...for my physical exam in February and when I fell in June. I sort of got the :rolleyes: look from her yesterday...I think that's why she called later to offer more help, but she also "chuckled" as she was leaving the message when she said I hadn't gotten help from mainstream testing. :P

I hate that word "parasite", lol. I like "bug" better. :lol: Anyway, I'm figuring that's exactly what I have...they were so sure they would find something and I was so sure they wouldn't, lol. I"m waiting to fill my prescription from yesterday until I see what the HN doctor's give me, cuz sometimes Walgreen's won't fill prescriptions if you've recently filled one that is similar or that you shouldn't take with another. My appointments today are at 3:00 and 3:45, but I may call to see if I can come in earlier cuz I'm staying home from work again.

Donna -

I forgot to say I am so happy your trip went so well!!!! Sorry you ahve not been feeling well since though!! I always thingk that since we suffer so often because of our illnesses we should be immune from ordinary colds and flus- unfortunatly this is not the case!!!

What tests are you getting the results of today?

Miamia

dlp252 Apprentice
dlp252
Posted
Whats Sudoku??? :huh:

A number game...very addicting. I have it in electronic version which is quite fun...took it on vacation with me. There is a large square, broken up into 9 smaller blocks, which contain 9 smaller squares. The idea is that each row, each column, each medium block will only contain the number 1-9 one time. So you have to fit the numbers in, like a puzzle, so that each row, column and block only has 1, 2, 3, 4, 5, 6, 7, 8 and 9 one time. Hard to explain in written form I guess, lol. Usually, they give you a few of the numbers in the correct places to give you a head start.

dlp252 Apprentice
dlp252
Posted
Donna -

I forgot to say I am so happy your trip went so well!!!! Sorry you ahve not been feeling well since though!! I always thingk that since we suffer so often because of our illnesses we should be immune from ordinary colds and flus- unfortunatly this is not the case!!!

What tests are you getting the results of today?

Miamia

Thanks Mia...it's funny cuz I usually don't catch a normal cold, lol. I don't think this is either cuz I haven't sneezed at all...it may be bronchitis...it's going down into my chest today. Grrr.

I had a comprehensive stool testing done before Thanksgiving. These are the results of that testing.

jerseyangel Proficient
jerseyangel
Posted

I'll be anxiously awaiting your results, Donna. Hope they can get you in earlier.

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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