Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

lonewolf Collaborator
lonewolf
Posted
Dear lonewolf,

I am not sure where you live. However, I was poking around on Google and found this forum, Open Original Shared Link which talks about dentists who remove metal amalgams. I also found some good sites about the dangers of mercury toxicity. I will send those URLs to you in a future post if you want. Just say the word! The people on this forum might be able to help you locate a dentist in your area doing this type of work.

Sincerely,

NoGluGirl

Thanks! I'm at work, so I'll check this out tonight. Any information you can give me will be much appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
lonewolf Collaborator
lonewolf
Posted
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

Yikes is right! :o

I dont rememeber my bill but I only had 2 fillings removed and it was done in one visit. I did have two other composites that were put in by the regular dentist (that I dont like :angry: ) and since we didnt know what materials were used he removed those and used materials that I tested compatible with.

I know my bill had to of been around $1000....not much more or not much less. I had to pay about $350 for the compatibility test which was done by an outside lab.

I probably could have gotten some or all of it paid for by insurance but I was too sick to figure stuff like that out. :huh: I just wanted the fillings removed.

Yeah...I would say I was beyond desperate. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

AndreaB Contributor
AndreaB
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

I know the guy we bought stuff from doesn't sell anything like that. I had mentioned the kids and baths. I would assume no because bath spouts are all different sizes.

For Seth's baths I just use the showerhead to fill up his tub. Could you do that with your baths?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Open Original Shared Link

Carla...that is an awesome list of mercury free dentists!!

Why couldnt I find anything like that when I was desperately searching?? My brain wasnt working all that well but I would have been really happy to have a list like that in front of me!! :o

I did end up with a good dentist though...looks like there are quite a few in my area...I'm happy with who I got. :)

I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

jerseyangel Proficient
jerseyangel
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

How about filling up the bath from the shower? :P

dlp252 Apprentice
dlp252
Posted
:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Yes, and keep in mind that that included replacing 5 crowns which are way more expensive. On almost all of them he had to put in a "post" whatever that means, which also cost more. And, several of the teeth were so drilled out to begin with that he had to build some of them up. Stupid amalgams. :angry:

My dentist was able to give me an estimate before we began of what my share would be. The posts and build ups were not part of that because those were things he couldn't tell until got in there.

Also, he told me that even porcelain crowns contain metal...at least the ones put in by my "regular" dentist did, so even those would not necessarily be good if there is still amalgam under there (which was the case for me).

dlp252 Apprentice
dlp252
Posted
I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

Me too, lol. He has quite the sense of humor, lol.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

Thanks Patti!

I wonder if they have these kinds of things at Bed Bath and Beyond or places like that....I'm gonna look around. I might end up ordering from this site if I dont find anything in the store. This gives me a better idea of what I'm looking for. :)

Anyone know about how long they last??

AndreaB Contributor
AndreaB
Posted
Anyone know about how long they last??

Mine lasts six months.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Mine lasts six months.

Thanks Andrea. I just did a serach and OMG...this is not as difficult as I thought it would be. :rolleyes:

The one Patti posted seemed pretty easy to use....no installation even. I found a bunch more...they are just balls that hang from the bath and the water passes over it while it runs. After the bath is full you kind of drag the ball through the water a few times. (I guess this collects the clorine and other bad stuff). The prices vary from site to site.

I also found some crystals that you can pour into the bath which remove chlorine as well.

Open Original Shared Link

One of the sites said it lasts 300 baths or 1 year.....not bad.

Do these things really work?? I think it would really help since I read that NDF works alot better on the metals when you remove chlorine from the water.....since it will always bind with chlorine first.

Also...It seems like chlorine is not good for us!

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Laura, hang in there, this is good progress. Your mystery illness is identified and you are treating it. It's a tough pill to swallow, and I sometimes still can't believe it myself, but it's really good to know what it is so you can fix it.

What abx is he starting you on?

AndreaB Contributor
AndreaB
Posted
Just wanted to give you a quick update....made a big change today.

Had an app't with my doctor and based on my symtpoms, my equivocal testing, my + RMSF, + mycoplasma, that we are going to start treating for LD and its other issues. I actually was able to start today.

Thanks for the update Laura. I've been wondering how you were doing.

What is RMSF?

Keep us posted on how the IV goes.

We are here for your support as well, if you need it. :wub:

CarlaB Enthusiast
CarlaB
Posted
What is RMSF?

Rocky Mountain Spotted Fever

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Omnicef? I just started that one Friday.

Judyin Philly Enthusiast
Judyin Philly
Posted

PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Carla, Yes, I think thats the one. I am going to start it probably over the weekend.

I jumped in at the full dose on Friday night, started herxing Saturday. I'm still feeling bad now. You might want to start slow. I'm on so many things though, when I started all the first stuff I didn't herx for a month.

Keep us posted. I'm actually excited for you that you FINALLY know what's going on.

Has your doc started you on probiotics?

happygirl Collaborator
happygirl
Posted

x

dlp252 Apprentice
dlp252
Posted
xoxo

Wow, thanks for the update and I'm so happy that at least you have a diagnosis and can start treatments. It sounds like a great plan to start your meds as few at a time as possible to know which one is the culprit if you react.

dlp252 Apprentice
dlp252
Posted
PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

Hi Judy! Anything new with YOUR testing?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well...
    2. SusanJ
      - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was...
    3. knitty kitty
      - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body. See my blog. Click on my name to go to my page...
    4. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      14

      New Celiac Mama in My 30s

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that...
    5. RMJ
      - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,981
    • Most Online (within 30 mins)
      7,748
    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      Outgrow celiac?

      By RMJ · Posted

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.